36yr old Headache Sufferer Who Needs Help and Understanding

Migraine 101..Which one do you have
0
Auras - 0.0%
0
Spots - 0.0%
1
Light sensitivty - 33.3%
1
Hightent sense of smell - 33.3%
0
Hightent sense of hearing - 0.0%
1
other - 33.3%

 
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lollipop1217
New Member


Date Joined Jun 2007
Total Posts : 1
   Posted 6/8/2007 9:19 PM (GMT -6)   
  sad I want to start out by saying that i am not a drug seeker or a sympathy junky..  The reason I said that is due to the fact that is seems that the community of doctors and nurses want to think that all you want is drugs. Well I here to say that I would rather not have the headache than to have the  side affects of the drugs. I am allegic to imitrex,migrinal, maxalt, and all the other beta blockers made for migraines, because I have asthma. that makes me a prime target for the Dr.s and nurses accusing me of being a drug seeker. I have had migraines since i was 10 yrs old, asthma since birth and seizures for 5 yrs ( my neurologist doesn't know where the seizures are coming from). I am taking Topomax, Nuerotin, Stadol NS, Phenegran, and all the other meds for my asthma. I have all the classic symptoms that come with a migraine..spots, light sensitivity, sound, vomiting,.etc.. I have had ct scans , mris, and other studys with no results. So needless to say i am at a loss. How do I handle the doctors and nurses who treat me with such disregard and disrespect? When I am in such exscruciating pain? I have such a snowball effect of problems. I get a migraine, start vomiting, get dehydrated, start wheezing, then start having seizures. It's ridiculous. Doctors just don't get it. I need to get the headache under control. Please can someone give me some good advise. I NEED IT SO DESPERATELY. I AM BEGGING FOR SOME WISE WISE PEOPLE.
 
                                                                GOD BLESS

Needmylifeback
New Member


Date Joined May 2007
Total Posts : 6
   Posted 6/9/2007 9:30 AM (GMT -6)   

Hello lollipop1217, 

I am new on this site as well.  I logged on and saw your message and wanted to send my sympathy and understanding.  I am 51 and have had migraines since I was 20 and I know it is rough seeing doctors and trying to make them understand your problem.  I am currently disabled due to the frequency of the migraines.  I worked up until 5 years ago and I could no longer hold down a job because I became so undependable. 

As far as you asking about the doctors and nurses, how to make them understand your not "drug seeking", well you're right, that is a hard one.  I worked at a medical facility for one year and what I was told by some of the doctors and nurses was that migraines and back aches were their 2 worse "excuses" for people seeking drugs at the ER and the doctor's office.  I told them that made it really difficult for the people that really needed help, especially when it comes down to having to go to the ER because the pain can be so unbareable and you're dehydrated.  I sometimes think in my life time I'll never see the day that as a whole, the nurses and doctors (not all of them, but a lot of them) will ever understand and will always treat pain that is hard to diagnose or see. 

Every individual's migraines are not exactly the same, as you are aware of by now.  My neuroligist and the other one's in my past are still not sure exactly why we or I should say I, have the migraines.  It must be bad to have both migraines and seizures.  My doctor said a lot of people that have one of them, get the other.  They have tried several seizure medicines to help with my migraines.  So far, nothing really helps to prevent them, except for me to watch and be careful of everything I do, i.e. different foods (especially no msg), stay away from stress, sleep right (not too much or too little), the list goes on and on.  Sometimes the slightest things will trigger one.  I'm sure you've figured your "triggers" out.  Maybe you can ask around and find a doctor that has has a better understanding of migraines/seizures and with more empathy.

You also said you couldn't take Beta Blockers because you are alergic to them.  Imitrex, Maxalt, etc. are a different type drug (sumatriptan), so you are allergic to them too?  I use Imitrex and it helps me a lot, but at times, not at all.  Before sumatriptan drugs came out, I was in the ER all the time, now I rarely go. 

I am sorry for your pain and I will pray for relief.  All you can do as far as the doctors, is try to get them to understand the pain you are in.  Take care and God bless you!

Sincerely, Patty


Needmylifeback
New Member


Date Joined May 2007
Total Posts : 6
   Posted 6/9/2007 9:31 AM (GMT -6)   

Hello lollipop1217, 

I am new on this site as well.  I logged on and saw your message and wanted to send my sympathy and understanding.  I am 51 and have had migraines since I was 20 and I know it is rough seeing doctors and trying to make them understand your problem.  I am currently disabled due to the frequency of the migraines.  I worked up until 5 years ago and I could no longer hold down a job because I became so undependable. 

As far as you asking about the doctors and nurses, how to make them understand your not "drug seeking", well you're right, that is a hard one.  I worked at a medical facility for one year and what I was told by some of the doctors and nurses was that migraines and back aches were their 2 worse "excuses" for people seeking drugs at the ER and the doctor's office.  I told them that made it really difficult for the people that really needed help, especially when it comes down to having to go to the ER because the pain can be so unbareable and you're dehydrated.  I sometimes think in my life time I'll never see the day that as a whole, the nurses and doctors (not all of them, but a lot of them) will ever understand and will always treat pain that is hard to diagnose or see. 

Every individual's migraines are not exactly the same, as you are aware of by now.  My neuroligist and the other one's in my past are still not sure exactly why we or I should say I, have the migraines.  It must be bad to have both migraines and seizures.  My doctor said a lot of people that have one of them, get the other.  They have tried several seizure medicines to help with my migraines.  So far, nothing really helps to prevent them, except for me to watch and be careful of everything I do, i.e. different foods (especially no msg), stay away from stress, sleep right (not too much or too little), the list goes on and on.  Sometimes the slightest things will trigger one.  I'm sure you've figured your "triggers" out.  Maybe you can ask around and find a doctor that has has a better understanding of migraines/seizures and with more empathy.

You also said you couldn't take Beta Blockers because you are alergic to them.  Imitrex, Maxalt, etc. are a different type drug (sumatriptan), so you are allergic to them too?  I use Imitrex and it helps me a lot, but at times, not at all.  Before sumatriptan drugs came out, I was in the ER all the time, now I rarely go. 

I am sorry for your pain and I will pray for relief.  All you can do as far as the doctors, is try to get them to understand the pain you are in.  Take care and God bless you!

Sincerely, Patty


baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 6/9/2007 10:21 AM (GMT -6)   
lollipop:
 
I think everyone on this site can empathize with you - most all of us have been in your shoes.  I will tell you that I work in a Pediatric ER now and have also worked in an adult ER and I was terrified to go to that same ER the first time I had a migraine.  I knew that I had heard some of the staff talk about drug seekers who c/o migraines; however, I have found that, for the most part, the staff has been wonderful.  I share my fears with them each time I have to go (tell them that I am afraid that they will think I am a drug-seeker) and they have all assured me that is not the case.  Now, they may be talking about me behind my back but I truly don't think so.  I try to be very up front about my history and about what meds I take.  I also try to be willing to start with whatever meds they suggest (usually Toradol) even though I know that won't work.  I figure that if I am willing to try what they want, maybe they will realize that I am not just seeking narcotics.  I tell them the meds my neurologist has me on to help me avoid coming to the ER.  I also have printed off a form from this site (not sure where it is so maybe someone can help) that is a treatment form for your doctor to fill out and for you to carry with you to the ER.  This way the ER knows that your doctor follows you closely and they are then aware that you truly have a problem. 
 
I am getting ready to go on a 2 week trip and I am going to have one of these forms filled out to take with me just in case I get a migraine that I cannot control while away.  I am hoping that if I have this with me and have to go to a ER away from home, they will not treat me as if I am a drug seeker.
 
Just some suggestions and I would love to hear if others have more suggestions.  Good luck.
DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray

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