Post Edited (snugglesrn) : 7/19/2007 2:53:02 PM (GMT-6)
Snuggles - thanks for posting regarding the diet. I agree that proper diet is important but when you have a searched long and hard, been to a million doctors, had dozens of tests, etc., the last thing you want is for someone to suggest that it is just your diet. It's true, however, that all with headaches should find the trigger, if possible but sometimes food has nothing to do with it. My trigger is the barometric pressure. What I eat has absolutely nothing to do with my migraines. The neurologist did suggest, at first, that I keep a food diary to see if there were any food triggers but once we ruled those out, he kept looking. So, unfortunately, my diagnosis doesn't have an easy answer such as my diet.
I just think that as a new person, searching for answers on here, it would be a little dishearting for someone to suggest it might just be something so very simple as eating something different. Just my opinion but I was glad to see you approach the issue!
I am so glad I read your post regarding the PFO and Migraine connection. I saw a Neurologist, specializing in Migraines, at the University of Virginia Medical College, and he referred me to a medical study, the MIST II Medical Trial, on the exact problem. The link is:
Oh Cranky - we should form a group - I felt like I was writing your last post myself. I have said it on here many times! My meds work and then the office folks in the neurologist's office treat me like I am a crack addictwhen I need refills! I loved how you phrased - call me a drug seeker, I am. You are correct. I guess I am, too. I want the meds that keep me from hurting hours or days on end. If I take what the doctor prescribed - Relpax, Prednisone, Zofran (if needed for nausea) and Dilaudid (ooooooh, that's the bad word right there), then I am fine! Sooooo, why does everyone seem to have such a stinkin' problem????? I am just like you - any time we have weather changes, specifically storms, I have a migraine. I could become rich being a weather forecaster!! But, now I have gotten where I try to suck it up and tough it out unless it gets really bad. Then, usually, I end up in the ER for IV Dilaudid because it has gotten so bad the Dilaudid by mouth won't work.
Thanks for your post! At least I don't feel so alone. I hate to tell anyone these days that I take all those meds - people truly look at me like I am a crack addict. Oh well - if migraine pain wasn't so bad, I would wish it on all the people that turn their noses up at me for taking my meds; however, I truly don't wish that pain on anyone!
Hope you get through the storms without pain!
snuggles - just wanted to say one quick thing - it is not my doctor who is the problem! He is actually awesome - he listens to me and then prescribes the meds that work. The problem is his office staff. It seems impossible to get past them to speak to him and they (I suppose they may be nurses but my guess is that they are med techs or the equivalent) are the ones that act like I am a crack addict. I have mentioned this to him and he has acted like he will speak to them but I am sure that it is difficult for him to get staff and to keep staff so he probably treads very lightly. What most people don't realize is that many doctors never know that their patients are having problems getting through the receptionist, nurse, etc. Doctors usually don't realize how frustrated patients are because most of the time, I think, they never get the messages. My doctor is actually great about giving refills, etc. (except on the Dialudid which he legally can't write refills for) and he tells me to call his office when I need a reill on the Dilaudid. That is when I run into the problems.
Anyway, because he is so great, I just wanted to clarify. Figure I am always the first to complain so I can at least write the positives, too!
Hope you are having a non-migraine day (sounds like something that Hallmark should make a card for!).