Doctors like your Mom's just make me want to grab them and shake them. They obviously don't get the intensity of pain that comes with migraine attacks. Waiting to take an abortive drug is stupid. First, if you don't take it right when your symptoms start, you have very little chance that they will help at all, once your migraine pain becomes intense. I totally get the "wait and see" thing from my mother. It seems like every time I get an attack that my abortive doesn't handle, my mother always asks "can't you just stick it out?" NO!!! I CAN'T STICK IT OUT". I wouldn't be calling for a ride to the ER if I could stick it out.
I HATE going to ER. It takes hours to be seen, my average runs about 5 hours. The bright lights, loud noise, and cold temperature just make the migraine worse. I do have to go there frequently, and a lot of doctors think I'm a drug seeker. Then they want to know why I'm not on a preventative. Well, because I've tried them ALL and none of them helped. Then it's why don't I have a local neurologist. Well, because none of the drugs they would prescribed have all failed for me, and they don't want to prescribe any narcotics.
I'm on SS Disability, for my migraines, chronic back and knee pain, depression, and panic/anxiety disorder. I'm in pain all the time. I see several doctors/specialists, but none of them want to treat me the way I need to be treated. They want to pawn me off on someone else. Then I see people on this board, or the Chronic Pain board, etc... being normally prescribed the level of meds I need, and I can't figure out how they find the doctors to treat them correctly.
I just spent four days in the hospital for some internal bleeding. I was on Dilauded while I was there, but the nurses did a very poor job at delivering my pain meds on schedule, sometimes, even a couple of hours late. I had some tylenol#3's with me, so I would take one or two to mitigate the pain, waiting for the nurses to show up. Well, my parents figured out that I was doing that, and decided I was an addict. NO, I'M IN PAIN! When I was discharged, I was given a prescription for Percocet, which my parents kept, and made me call them every time I needed a pill. In addition to the stomach pain I had, I also ended up with a blood clot in my arm, which was also extremely painful. I was so ticked off, especially since my parents weren't giving me the full dosage of medication, and weren't timely in showing up with my pills. Plus, I had to call them practically every time to request a delivery, like I had to justify my request every time. It made me furious. I'm not a junkie, I'm in pain. I just want to live with a normal quality of life, free from pain.
I hate Doctors and Parents that don't get what a life with chronic and acute pain is like, much less what it is like to have to fight for appropriate medication. It's no wonder I stay depressed.
baseballmomof3 - I feel your pain and frustration. Let us know how things are going.
Leigh Ann: I have been on a trip for 2 1/2 weeks so sorry that I am just now responding back to you; however, thank you so much for your post. It helps to know that others feel like I do. I was in the ED not once but twice right before my trip because I decided to try to "just tough it out" with my migraine. Never have I had to go two consecutive days to the ER but this time, I went one afternoon, got discharged (still with a "mild" headache) and then back again the next morning early. I have to tell you that I wished you lived close to me because I cannot say enough great things about my ER and doctors. They are so kind and compassionate (for now, at least) and actually wanted to admit me the second morning I was there specifically for pain control. My pain was gone with the second visit so I opted to come home which worked! While I was away, I ended up in an out-of-state ER and they were actually pretty good, also. I swear, though, I need to find a job as a weather predictor. The day I ended up in the ER out of state, I awoke to bright, sunny skies. By lunch (still sunny), my head was pounding and I told anyone that would listen, that it would be storming that afternoon. Everyone thought I was crazy. Guess what? Severe storms that evening!
Anyway, even my family is starting to get sick of me always being sick. Seems like no time is immue - vacation, parties, work, ballgames, etc. I seem to interrupt our life on a weekly or monthly basis. I feel so bad that they are having to deal with me. What frustrates me even more, though, is that if I take all my meds as precribed, I avoid the ER, hours of pain and vomiting. But, even my doctor's "nurse" is hateful and makes me feel like a drug seeker when I call for refills so I have tried to stop taking any of my pain meds at all. Then.......off to the ER we go. WHAT IS THE ANSWER? Why, when something is precribed and working, do I feel so darn guilty about taking it? I function beautifully when I take my meds. I am not drugged out, sleepy or weird. I can live my life. Without taking them, I am in the bed, in the dark, a bucket by my side. Would someone please explain!! The preventives help until the weather changes. The abortives work with the narcotics if taken early enough. Why can't this be a good thing?
Sorry for the length and the ranting. I am just so frustrated. Any advice from any of you would be appreciated.