Painless migraine episodes - how long are your auras?

Do you have the following nerological symptoms do you suffer the most with "painless migraine episodes"?
0
Severe balance/dizziness problems? - 0.0%
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Weakenss on one side of body? - 0.0%
0
Problems with co-ordination? - 0.0%
1
Confusion? - 100.0%
0
Fatigue? - 0.0%
0
Slurred speach? - 0.0%

 
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suffering
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/23/2007 7:08 PM (GMT -6)   
Doc's think I have painless migraines...having episodes for 20 yrs and getting progressively worse.  They last for weeks (longest was 5 1/2 weeks) and I feel like I am going crazy durng the episodes...always have pressure on left side of head, severe weakness on right side (left arm and leg feel heavy as led!!), loose all sense of coordination and balance (always feel like I'm going to fall down, trip over my feet from the feeling of being off balance!!!) and my concentration goes out the window.  When I have these episodes I feel like I cannot make it through a day...it affects my quality of life.  I also feel so alone as family cannot understand all of of these symptoms without pain...they think its "all in my Head"  - like I am making up the symptoms.  I never have the epidodes during a stressfull period...it is always some time after a stressfull period...which does not make any sense to me.  I cannot pinpoint any trigger for the episodes.  Does any one esle suffer the way I do?  Do your episodes last for weeks?  I want to know if there are others like ,e so that I know that I am not alone and not going crazy!!!
 
Interested in hearing from anyone who suffers like me!!!!!!!!!

snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/24/2007 5:36 AM (GMT -6)   
I know exactly how you feel. I have the exact same thing. I have been just diagnosed with Acephalic migraines with Auras along with Migraines with Auras. I go through the exact symptoms you descriped but on the opposite side. the weakenes is on my left side and etc. I am a stay at home mom and I have a hard time getting through the day with my four year old. I am lucky that my daughter is so well behavied.
My epidsodes last forever. months. but it's hard to distiguish between my acephalic migraines and my migraines with aura sometimes. I do have them right now under control with medication (preventive and abortative) hopefully my migraine free period will last. I seem to go through migraine free cycles and with no rhyme or reason and then I get whammed with it all at once and with no known triggers. Can't seem to figure it out.
My neurologist put me on extremely high risk for a stroke. She is having me get a ECHO done and checked for a PFO which is common for migraines with auras and silent migraines or Acephalic migraines, you should ask your doctor about it. You might be at high risk also since your symptoms for a your migraines mimick a stroke!
Are you on any medication such as a preventative and an abortive for your silent migraines? If so what are you on. I am on Topamax, once I got over the side effects it worked great.
Family and friends don't seem to understand at all-I pretty much given up on them- My husband and daughter understand and that all that matters. The rest of the family (in-laws really) tell me to take an asprin and get over it! They just don't get it. I know you probably feel alone- There are not to many people that have Acephalic migraines but you are not alone and you are not going crazy at all! You can talk to me any time! I know exactly how you feel! I know half the time I feel LOST ! It would be nice for me to chat with someone that knows how I feel too! I look forward to chatting with you also!

suffering
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/25/2007 7:40 PM (GMT -6)   
Thanks for replying!!!!!! I am assuming Acephalic migraines is another name for silent migraines, correct? And you say that you may have these silient migraine episodes for months? Wow, I thought weeks was bad enough...Like you, when I go thru these episodes I feel like I cannot cope and getting thru a day is an effort. I am a Charterd Accountant and have 5 1/2 and 3 1/2 year old boys and have a husband, so when I have the episodes for me its like the world is crashing in on me and I feel like I am going out of my mind. Whenever I go thru an episode I get scared as I am always afraid that I have a brain tumor or something because nerologically I am a mess. When you have a silent migraine, do you feel pressure, without pain, always on the same side of the head? For me it has always been on the left side...never on the right..weird, hey? My last episode was the worst which really scared me as I had severe weakenss on the right side and even had weakenss in my torso...like my mide section was so heavy and awkward. My balance and corodiantion were so bad I felt in a real daze. I decided that I had to go to the family doctor again and take action on this as i've had enough..i even broke down crying as I couldn't handle it anymore...so I now have a CT scan, MRI and an appointment booked for a neruologist...MRI isn't until Feb next year, but at least I have one. I've been on Novo-Atenol 25 milligrams a day (very low dose) for about a week or so now...It's a BETA-blocker..something to do with blocking adrenaline..not sure if it is preventative or abortive....both I guess...My symptoms have almost gone (for this episode anyway) but hard to tell if the meds have worked or if the episode has just gone away on its own...I haven't noticed any side effects...What side effects do you have on your meds??I've always tried to figure out what triggers the episodes and I cannot pin point it...i wish that it were linked to stress as then I'd manage it to prevent the silent migraines...but its not stress..the episodes come on for no rhyme or reason...usually much after a stressful period.. This last episode was at the tail end of our vacation (a cruise vacation with husband without the kids) and I if I were more relaxed, i would have been a vegatable...so it's not triggered by stress for sure. I'm 36 and been having the episodes for 20 years.. usually 1 to 2 bad episodes a year..with smaller ones in between... Since I've been feeling more normal over the past week, I feel on top of the world and am enjoying life again..when i go thru the episodes I don't want to do anything...I avoid even the meanial of tasks as it takes too much mental and physical energy and to be honest I don't have the coordination or balance to do the tasks...Oh another question, do you experience mental confusion when you have the silent migraines? I do and that is hard in my career. Lastly, when I am symtom free, I still feel that I have this baseline feeling of being clumbsy..how about you?


Please keep in contact...as knowing someone else who goes thru this gives me comfort....

I will enquire about the possible high risk for stroke..that is a scary thought....

snugglesrn
Regular Member


Date Joined May 2007
Total Posts : 40
   Posted 6/26/2007 5:20 AM (GMT -6)   
I am so glad that I finally found someone going through the same thing as me. I felt so alone. This is a scary thing to go through! My husband is very understand. My daughter is to young to really understand. She only knows that mommy is sick. I think the only reason that I got my MRI, MRA and CAT scans done so quickly is because they thought that I had a stroke since I have a hard time communicating during one of my attacks. They did the CAT scan first and thought my third ventricle was enlarged so they then did a MRI and MRA-they came out normal. Thank god.
Acephalic Migraines is another term for silent migraines-My new Neurolgest is preferrs this term to silent migraines because she says that silent migraines makes it sounds like theres really nothing wrong with you when there really is something wrong. That was her explaination.
I try not to panic when I have an episode-sometimes I can't help it but other times I can ride it out. I always panic when I am away from home and have an attack especially when I am alone or with my daughter. When I have a silent migraine attack I always feel pressure and I don't know how to describe it but before I get my aura I feel funny. during the attack I have a hard time moving my right side and my left side tired or the neurolgest says weaker than my right. After my Aura goes away everything gets really bright so bright it makes my eyes hurt so bad and I can finally see again and talk (I make more sense at this point stutter a lot I have to consentrate to put words together) vertigo hits and stays for weeks. Then the next day I get the aftermath (this is what sticks around for the next couple weeks) I still have the vertigo along with flue like symptoms-aches and pains diahreaha teeth soorness neck stiffness( usually sticks in collarbone) confusion sticks around for sometime but is managable. Tiredness, feels like there is a 500 pound weigh on me and it takes and effort just to raise my arm. These are the symtpoms that stick around for a while. I call it the AFTERMATH OF THE SILENT MIGRAINE!!!
I don't know what starts these migraines- silent and my regular migraines with auras- I can't find the triggers. I find that I go through cycles which I find is weird. I'm at my wits end and I don't know what to do anymore.
Please feel free to e-mail me personally since I don't check this forum alot and I wold love to keep in touch with you. My e-mail address is RSauerhoefer@verizon.net
Please e-mail anytime. it is nice to know that I am not going through this alone and that there is someone else out there that is just as scared as me and having just as a hard time getting through daily life. I will be looking forward to your e-mails and I am hoping you to having a SILENT MIGRAINE FREE DAY!

BUSHDA
New Member


Date Joined Jul 2007
Total Posts : 1
   Posted 7/2/2007 3:21 PM (GMT -6)   
I am 48 years old and have been experiencing seeing a ring for about 30 years. Episodes can be quite intense. I see a ring of vibrating color that is heavier on the left bottom. The colors are on fields that look like sharp angels. It starts out small and can become quite large disrupting most of my vision. At first I assumed that they were an LSD flashback, as it feels like that. I later thought that I was becoming schizophrenic as I was experiencing what I now know are Bi-polar symptoms in combination with halo episodes. It might be interesting to a researcher reading this that some of the bipolar states, the ring episodes, and my experimentation with hallusonogans drugs many years ago have many similarities. Episodes are followed by for lack of a better word a tripy state. I believe that many of the works of art we see are a manifestation of this state. My recommendation to anyone experiencing halos is not be afraid, and just go with it. You are not going insane. Fear causes anxiety that can release other chemicals such as adrenaline that are then associated with the episode causing greater anxiety the next time you fee it coming on. When you feel it starting go someplace quite and relax. If you are driving pull over as it is dangerous. Tell yourself this will pass. close your eyes and try to make out all of the detail of the experience as this can be quite interesting.

mikelean
New Member


Date Joined Apr 2007
Total Posts : 10
   Posted 7/2/2007 5:58 PM (GMT -6)   
Unfortunately you are not alone. I have the same symptoms excpt mine are also left sided. Had one a few days ago. Sometimes they last weeks but lately just a few days. I am on only abortive no preventative.
Mikelean

MomW
New Member


Date Joined Jul 2007
Total Posts : 2
   Posted 7/17/2007 10:48 PM (GMT 0)   
Dear Suffering, I have painless migraines but do not have the other symptoms you have. I only get the auras which drive me crazy while I have them. Luckily they do not last more than several minutes. Just wanted to let you know I understand and I hope you find something that works for you. I have had these for many many years but never more then tha auras with maybe a slight upset stomach. I wish you the best.

britt23
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/17/2009 1:29 PM (GMT -6)   
  I am so exited to finally find someone else with the same symptoms that I have had for the past few years. I am only fifteen, and have been having these "episodes" for the past few years. My main symptoms last for a few hours, such as blochy vision, numbness down the side of my face (either left or right side), dizziness, trouble talking, a hard time understanding what to say or what I am saying, studdering, not recognizing voices, or even familiar faces. I also feel like I am about to faint. I usually panic because it can get so scary!
  The aftermath of these silent migraines can be just as bad as when as when I am having them. I only get them for a few hours, but weeks after they have happened, I still feel confused, weak, and I might have a horrible headache that can last for weeks. I felt alone, like no one had any idea what was happening to me, no matter how much I would explain what was happening. One of the worst parts for me, is that every time I get one of these attacks, my eyes sight gets progressively worse. I have to struggle with my eye sight getting better and worse throughout the day, even if I haven't had a silent migraine is months. There is never a day when my eye sight doesn't change. It can get bad in seconds, and last that way throughout the day.
  I have been to several doctors that have had no idea what to do about my symtoms, or why they were occuring. I have had many tests to rule out any obvious conditions that may cause these episodes like a CT scan, MRI, EEG, blood glucose tolerance test, thyroid test, eye exams, and they even want to do a lumbar puncture. I think that it may be caused by bright lights for me (lie videogames or TV). It seems like every time I get one, it is casued by light. Thanks to everyone that has written, and I hope that I could help!

dizzylady
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/11/2009 12:47 PM (GMT -6)   
Hi suffering

you are not going mad i have had dizziness for three years and have just recently been diagnsoised with silent migraine like you my family dose not understand i have just been taken off of all dairy foods caffiene gsm and chocolate can barely walk all in the last three weeks. its very lonely and frustratin but your not alone dizzylady

Helena
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/24/2009 10:10 PM (GMT -6)   
It is relieving to read that there are others out there with similar issues!

I believe I had my first episode when I was 7 or so. My mom thought I was having a stroke. I remember sitting in Sunday school and my teacher asking me to read an excerpt from the bible. I told her I couldn't see all the words. I don't actually remember having another till I was 15. The biggest one came on a month before my wedding when I was 23. They did an MRI and said everything was normal.

They all start the same. I feel tingling in my fingers and can actually feel it traveling up my arm, to my face, then on my tongue (always on my left side). After that, I usually have weird visual effects. I lose all peripheral vision and see what I refer to as "snow" around a pinhole vision. I would also lose the ability to read because I couldn’t all of the letters, as if there were blind spots. The whole episode only lasts minutes. For me, these symptoms never have a headache, but I feel motion sick for a few weeks after. During this time, I also have terrible auras when I close my eyes, seeing a tunneling effect. I had another MRI after the latest episode 3 years ago. My Family doc said that I had MS!! I was devastated. I have no family history of MS and was puzzled. He told me that my MRI was indicative of someone who had MS and referred me to a neurologist. How come this wasn’t visible 3 years ago in my first MRI??? I went for another opinion of course. I met a neurologist who spent a long time just talking to me and getting to know my history. He determined that I was VERY sensitive to birth control, specifically the Ortho Evra patch. I had been on it since I was 22 and on BC pills since I was 18. He told me to get off all hormonal birth control and that if I stayed away, I should be ok. He also believed that I am even slightly sensitive to my own hormones, which explains my earlier episodes. Apparently, it was the massive dosages of estrogen that were the problem. I ended up with a diagnosis of acephalic migraines.

Since then, 3 years ago, I haven't had near as many issues. I still have an occasional episode of aura once a year or so. My periods are irregular now, which I think is my body’s way of giving me a break from the migraine symptoms associated with a monthly cycle!

I guess this is my plug for all you ladies who are suffering from acephalic migraines and the like...stay away from fake hormones! It is worth a try if you are suffering. There are so many other options out there!

alwayssomething
New Member


Date Joined Jun 2009
Total Posts : 10
   Posted 6/26/2009 8:10 AM (GMT -6)   
about 8 years ago, while pregnant, I was getting strange spells. I would get very lightheaded, my heart would race, I'd vomit, and sometimes hit the floor. I would then feel tingly and weak. Numerous times this happened and I'd have to be rushed to the hospital. My blood pressure was always extremely low. They never had an explanation until my OB sent me to the Neurologist. He diagnosed my problem as having migraines without pain.
I noticed I had this problem most frequently when out and about doing my routine shopping or at work. He explained that this was due to the fact that florescent lights are huge migraine triggers. He also told me to increase my intake of salt. I kept my shopping to a minimum ( to stay away from the florescent lights) and was put on home rest. I noticed a big difference!

I would also recommend making a journal for headaches. What you have eaten, where you are, any medications you have taken, etc., are all good things to write down. This way, you can maybe start to recognize things that may be triggers for your Migraines.

Jola2
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/16/2010 2:01 PM (GMT -6)   
Hi you guys. I'm writing with a different experience. I am a 53 year old female. On Monday of this week I had a zig-zag strobe-light type of visual experience for about 10 minutes. I had no clue what this was, but since last fall I had had a vitreous humor detachment, I thought it best to call my eye doc. He sent me to a retina specialist who examined me, said my retina looks fine (no tears), and that--ruling out a retina problem--the zig-zag visual experience was a silent migraine, or aura. (I've never had a migraine in my life.)

My aura experience on Monday was quite a bit different from those described in this forum. There were only two basic symptoms that I noticed: 1) a curved, zig-zag flashing light which was continuous for about 10 minutes. It occurred in the lower right of my field of vision--whether I had my hand covering up one eye or the other; 2) During that 10 minutes I had a lot of trouble reading. You see, I was trying to research what might be causing my zig-zag symptom. So, I was on some medical web site, but I couldn't make heads nor tails out of the article. Each word looked correct, and the spelling looked right. But when I'd try to read the words as a sentence, the sentence made no sense! I had to read very, very slowly and even then I couldn't do it. So, I tried another site (USAToday's article about the Toyota steering wheel issue), and I couldn't read that one either. Yet, I could write just fine--and I could write as fast as I typically write--and the sentences were written correctly (I saved them and checked them after my aura was over.) Very odd.

Anyway, it sounds like some of you have some challenging problems with this, and my heart goes out to each of your situations. On the positive side, though scientists/doctors don't seem to know a lot about the human brain yet, knowledge in this world is now increasing so fast, that it would seem logical that treatments for these type of neurological issues should be available within 5-10 years. Just one person's guess, I know, but I'm holding on to it for my dad's movement disorder problem--and anything else that comes up with my family's health.

Best wishes,
Jola

scottrousseau
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/6/2010 12:00 PM (GMT -6)   
after 3 years i think I have narrowed my symptoms down to this diagnosis..  acephalic migrane  ..finally..
my symptoms include the following..glowing circle of light that eventually blocks my center vision completely..I can see objects outside of it but cannot see in the center..at the peak of the event direct sunlight or a bright light bulb is extremely intense..weak in the knees..shaking..followed by an intense sweat drenching flow that stops as quick as it starts..leaving me anywhere from wobbly to having to be in bed for at least 2 hours and sometimes drained for the rest of the day..driving is very difficult.  internal gassyness and diharhea usually follow soon after..for a time I thought that the gas and cramping were causing the symptoms..
if you can shed any perspective on this please do..thanks.. 

ravenschild54
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 8/26/2010 3:37 AM (GMT -6)   
I get all these symptoms my episodes last for weeks at a time and i have never found anyone else that understands till now, I have another symptom that i have started getting which is my tongue tingles..as if all the othere things weren't enough. I am 55 and have had migraines since age 11 but these "silent" ones just for the last few years, i do still get the odd headache alpong with them but mostly the awful neurological symptoms, i do function ok but they are always there in the background. So stressful. I would love to here how others cope, i constantly worry over stroke even though my doctor says there are a lot of risk factors other than migraine which i dont have eg : smoking , overwieght, high BP, all hese are fine.
Still i am glad i have found this site, anyone who wants to contact me feel free. :)

ladyelaine
New Member


Date Joined Dec 2009
Total Posts : 2
   Posted 12/5/2010 4:11 PM (GMT -6)   
I have these silent migraines too and am glad to find other people sharing their symptoms. I am 60 and have had episodes for 20 years now, had all kinds of tests, been to many doctors. Either they don't care or no one really knows. Here are my symptoms:
• become suddenly so sleepy it literally feels like I am going to pass out, so I have to be careful driving.
• become so lethargic I can barely perform even the smallest of chores.
• thinking is not at its best
• dizzy, but not to the point of losing balance.
• Most migraines occur over the weekend when I am more relaxed, but lately have been getting some during the week
• body feels heavier and joints hurt
• cannot tolerate bright lights or intense noises
• they last from 1 hour up to 4 days, having to use vacation time for days off (migraines are only reason I miss work)
• gained weight over years due to craving of sweets and food (my body offsetting lethargy I suppose)
• loss of participation in fun activities, being with friends and family

My life is literally in the hands of my migraines. I cannot plan anything on the weekends, or if I do, I must warn the other parties that I could have to cancel. When I am not having the migraines my energy level is not up to the level it should be. Some days when I am in the middle of an episode, I really think about ending my life. Oh, I would never do it, but it just crosses my mind that this is just too hard to do anymore, I feel desperate, especially when I am in the middle of an episode. If there is anyone who would like to share any insights please contact me.

Glacier
Regular Member


Date Joined Mar 2011
Total Posts : 31
   Posted 3/6/2011 8:16 PM (GMT -6)   
I am happy to find this site/thread. I have had this problem for as long as I can remember. I find intense fear triggers mine but sometimes after a period of intense stress that subsides will also trigger it.

Normally I get them in a bunch for about a month or two then don't get them again for years. I am in a clump of them right now. I just started take a beta blocker ans they are coming much more frequently now, at least 3 times a week now for a month straight.

Yes, the aura is very scary. My heart races and pounds and I shake and sweat and go into panic mode. It lasts between 20 minutes to a half hour. If it's shorter than that I will get another one right after the first.
 
At this point in my life I am glad I live alone because anyone watching me during one of these incidents would think I need to be hospitalized.  Or watch me freaking out and keep asking me questions. The last thing I need during one of these things is to have to talk. I just put my sunglasses on and go in my dark bedroom until it's over. shocked
 
The medical term for these things is "Scintillating scotomas" or in simpler terms "Flashing, electric blindspot". There are videos of this horror. I can't watch them, they upset me.
 
I'll see if I can find one so you can watch it if you want. smhair   http://www.youtube.com/watch?v=gV_37cao38U
 
Here an eye doctor explains what is happening: http://www.youtube.com/watch?v=6Ldl4I4uiJw&feature=fvwrel

Post Edited (Glacier) : 3/6/2011 8:11:01 PM (GMT-7)


Glacier
Regular Member


Date Joined Mar 2011
Total Posts : 31
   Posted 3/6/2011 9:19 PM (GMT -6)   
ladyelaine said...
I have these silent migraines too and am glad to find other people sharing their symptoms. I am 60 and have had episodes for 20 years now, had all kinds of tests, been to many doctors. Either they don't care or no one really knows. Here are my symptoms:
• become suddenly so sleepy it literally feels like I am going to pass out, so I have to be careful driving.
• become so lethargic I can barely perform even the smallest of chores.
• thinking is not at its best
• dizzy, but not to the point of losing balance.
• Most migraines occur over the weekend when I am more relaxed, but lately have been getting some during the week
• body feels heavier and joints hurt
• cannot tolerate bright lights or intense noises
• they last from 1 hour up to 4 days, having to use vacation time for days off (migraines are only reason I miss work)
• gained weight over years due to craving of sweets and food (my body offsetting lethargy I suppose)
• loss of participation in fun activities, being with friends and family

My life is literally in the hands of my migraines. I cannot plan anything on the weekends, or if I do, I must warn the other parties that I could have to cancel. When I am not having the migraines my energy level is not up to the level it should be.  If there is anyone who would like to share any insights please contact me.Some days when I am in the middle of an episode, I really think about ending my life. Oh, I would never do it, but it just crosses my mind that this is just too hard to do anymore, I feel desperate, especially when I am in the middle of an episode.
 
[Quote]Some days when I am in the middle of an episode, I really think about ending my life. Oh, I would never do it, but it just crosses my mind that this is just too hard to do anymore, I feel desperate, especially when I am in the middle of an episode.[/quote]
 
You know, I also absolutely PANIC about halfway through too. Never thought about killing myself, just panic thinking it's never going to stop BUT it always does stop. That's why I time them.

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 3/7/2011 12:10 PM (GMT -6)   
My migraines (eventually diagnosed with basilar migraines) started in 1980 and for the first 25 years I did not have pain though for the past few years occiptial neuralgia type pain sometimes go hand in hand with the aura symptoms. My aura symptoms include facial numbness that can travel down my throat, confusion, sensitivity to light and sound, inability to talk and also a lowered level consciousness that forces me to lay down and fade out for anywhere from 20 minutes to an hour. The most frustrating aspect for me is the fading out.............for part of that time even though I can't open my eyes and I am unresponsive I am still aware of what is going on around me but then I finally do fade completely out and when I come back I am so exhausted I need to lay down for another couple of hours. Since November of 2008 they have occurred daily.

It is so difficult to learn to take 1 day at a time and make room for the migraines in our lives but sometimes we have no choice. Forums like this 1 are wonderful ways for us to share our stories and not feel so alone. It is important to try and figure out what our triggers are and minimize them as much as we possibly can since there seem to be very few preventatives that focus on trying to eliminate the aura symptoms. Also, please remember that a migraine is a major brain event and not "just a headache" that we need to push through. Be kind to yourself and remember that when we take good care of ourselves and make that a priority that the people in our lives will receive the best of us rather than what is left of us.

Glacier
Regular Member


Date Joined Mar 2011
Total Posts : 31
   Posted 3/8/2011 9:15 PM (GMT -6)   
 
That's a brave attitude jm but I don't think our attitude has much to do with these horrible incidents. Mine just come and go too. I can't control them and can't figure out what triggers them. Maybe there is no trigger it's just cyclic.
 
Just out of the blue there is the blindspot then I know it's time for sunglasses and bed for at least an hour. I hate those days. I can't go anywhere or do anything, not even talk on the phone. shocked
 
With all the c rap life hands us anyway this is just one more piece of c rap to throw on the pile. eyes
 
One good reason to be nice to people. You never know what kind of personal hell they are going through. I hate to think I have added more misery to an already miserable person's life. That's just ruthless. nono

raleigh
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/16/2012 3:47 AM (GMT -6)   
I did a Google search on how long silent migraines lasted because I am at the end of my rope. I have an appointment with a neurologist tomorrow. I haven't been to one since high school. I've had migraines since I was in 2nd grade; I am not 23 years old. I can still remember my first one. Up until this past year the migraines only involved mild auras and severe pain never any of the symptoms I'm currently experiencing. The first time it happened I thought I was having a panic attack. I was driving to work and out of no where I started to feel faint, my vision was blurry, my peripheral vision was gone, my mind felt foggy, my words were coming out jumbled, and I felt like I was going to faint. I didn't understand what was happening so my reaction was to panic. I had to turn around and go to the hospital because I was in such a state of shock. They diagnosed me with a panic attack but in hindsight I now know it wasn't because it happened again and I handled it better, and again but this last time I didn't panic. The first episode was intense, it lasted a few hours and subsided but I could feel the effects for days after. So I went to urgent care because I didn't understand why I still felt like I did. I didn't have a primary care physician at the time but the one I saw there has taken me into his practice thankfully. The second one lasted a week and I went back to the doctor because at this point I was losing it. I was out to lunch with my sister and again, out of no where I felt like I was going to pass out, my arms, legs and face were numb, I couldn't think, I could barely see, I felt nauseous. And the last episode I had occurred a few days before Christmas and lasted a solid 2 weeks. When the symptoms are at their worst all I can do is sleep because it's excruciating to be awake. I can't think, I can't speak, I can't see, all of the sensation in my extremities and face are dulled, I can't eat... it's terrible. I am still feeling the effects. I have had anticipatory anxiety since I can remember. So, I have considered the thought this was anxiety related but this feels completely different and separate from my anxiety. When the episodes started occurring I was not stressed, if anything I was finally in a place in my life where I had a very low level of stress and anxiety. This has been very disheartening for me because it's caused me to not be able to live my life the way I want to. The pressure in my head comes and goes. I've even experienced a tingling sensation on the top of my head. I can recall one time when I had that same sensation. It was after taking an Imetrex my doctor at the time prescribed for my migraine pain. My head felt like it was on fire and I had a crawling feeling on my scalp. I never took it again. After the neurological symptoms subsided (finally) on this last attack that's when I had mild headache pain. I wouldn't consider them migraines only because I consider them migraines when they're debilitating. I get painful migraines for weeks at a time. That hasn't happened in months though only the painless ones. Honestly, I'd settle for the painful migraines. I've had those since I can remember and I know how to cope with those. The silent ones however have taken a toll on me and I'm at a loss. I'm living in fear that I'll have another one and that's no way to live. If in fact this neurologist doesn't think silent migraine's is what I'm suffering from I'm not entirely sure how I'll feel. I've done a lot of research and this is the ONLY thing that seems to make a remote amount of sense. Since my first episode I've had countless blood work done and a CT scan. They all came back normal. My physician referred me to this neurologist so I have my fingers crossed.

jconRN
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/13/2012 1:57 PM (GMT -6)   
Raleigh...your story sounds so similar to mine. Ive always had terrible headaches even as a kid but wasn't diagnosed with migraines until I was 24 (im 27 now). My migraines have always come in spells that would last a week or so with debilitating migraines with subtle auras or no aura at all. Id also get frequent mild to moderate headaches but have always been reluctant to call them migraines, though my doctor says those are still migraines too. about a month ago I had a week long spell of terrible migraines, only this time my auras were way more pronounced... complete with partial vision loss and zig zag lines. I subsequently developed these weird spells of numbness in my right arm and right leg, which sometimes spreads into my lips and tongue. Over the last 2-3 weeks, my headaches have improved but the numbness spells have continued. They come on randomly, and I usually get an odd feeling come over me along with nausea and/or a. Gurgly stomach. Sometimes I also get a flushed feeling and pressure in my head, but not always. The spells may only last for a few minutes but the numbness usually stays for hours. I have no other neuro changes (weakness, slurred speech. Difficulty talking, etc). I have so much anxiety from this because of course im thinking the wrosrt... could it be ms, tias, some sort of neuro condition? The anxiety and stress has literally been taking over my life and is affecting my relationship with my husband. I ended up in the ER because I was at my wits end... they did a head CT and lab work which were all normal but refused to do an MRI. My family doctor at this point refuses to do anything further. I am due to see a neurologist tomorrow, so Im praying for some answers.

Sevres
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/17/2012 7:27 AM (GMT -6)   
Hello,
I have painless migraine auras when I drink large quantities of tea! Does anyone else have this? Thanks.

ravenschild54
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 8/7/2012 10:05 AM (GMT -6)   
I am now going through my worst ever attack ,in my 4th week and have extra bonus symptoms of aching joints and heavy arm on one side, although it alternates throughout the day, i am getting so fed up of it all and cant seem to get the right medication. i have just started taking Gabapentin from yesterday, not noticed anything yet but i am hoping it doesn't go on for much longer it is really getting me down. Does anyone else have aching muscles and joints, it lasts the same length of time as the parethesia and alternates with it too so i know it is migraine related. When will it stop !!!

JordieB
New Member


Date Joined Aug 2012
Total Posts : 1
   Posted 8/13/2012 10:32 AM (GMT -6)   
This message board is such a gift and relief to me. I have been suffering for years with Acephalgic Migraines but only got an actual diagnosis a little over a week ago. I am currently having a 4 week episode that is being slowly worked out with 25mg Amitriptyline. They said this treatment could take a couple weeks and sure enough it will be two weeks Thursday and I'm just starting to feel a little relief. The worst part is people not believing you because after awhile you start thinking you are crazy!! Finally I was smart enough to ask for a referral to a neurologist who is also a headache specialist. I really wish I could have gotten some faster relief but if this treatment keeps symptoms at bay, I will do it. I've been lucky enough to only have the episodes every few years but it seems like the older I get, the longer they last. Thank you so much for posting your experiences, it's so nice to know you aren't going through it alone.

raerae1234
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/25/2013 4:51 PM (GMT -6)   
I am 15 and recently got over a 8 week migraine aura. I have had migraine auras for years but never more then one day. This all started with a beer goggles activity in health class. When I had the migraine I had a moderate headache but with an extreme aura. My aura me so tired I can't even function. My speech gets slurred I feel tingling get sensitve to light sound and smells and worst of all is the confusion that comes with it. Its hard to describe but I just get things mixed up and I don't even realize it. For example I went to the nurse one day and a sub was their and she asked me to spell my name and I totally messed it up. She just looked at me weird and sent me back to class because I think since she didn't know me she thought I was another faker. We have had a lot of problems with the pe teachers at school because I think a lot of people just don't understand migranes. They think I am milking this and don't understand how participating in their class makes it harder to well then it already is in the classes I have after that. Originally when this started my neurologist gave me steroids and thought that would fix it. While it did help some it did not nearly go away. She tripled my topamax dosage which brought along all of the side affects. She wanted to just keep raising that untill my mom said no so she gave me immitrix and after taking that a few times it was enough to break the cycle. I feel a lot better now (its been about 2 weeks since it ended) but I am still exhausted and I used to be very active and now a brisk walk about kills me. I just hope that the world can come to understand this disease better because some people think I am milking a headace and I just want to say ,"their are days when I literally can barely move and saying s sentence takes all of my energy!"
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