Basilar Migraines - Anyone diagnosed with them?

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Cheryl1018
Regular Member


Date Joined Jun 2003
Total Posts : 267
   Posted 7/17/2007 1:35 PM (GMT -6)   
I have been dealing with migraines (bad ones) since I was in my teens and have had all sorts of hormone issues due to birth control pills, then infertility meds, miscarriage and then a complete hyster fairly young.
 
Anyway...I was just recently researching basilar migraines and was wondering how commonly they are diagnosed.   My main symptoms are:
 
- severe pain left side of my head
- severe pain lower neck
- aura / flashing lights / vision loss
- nausea
- loss of balance
- speech problems
 
Anyone else??
 
Thank you.
 
smurf
Complete Hysterectomy 1991 due to Endo
Fibro/IBD
Migraines - bad ones!! Ow.
Save a life - adopt a shelter dog!!
 


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 7/17/2007 2:28 PM (GMT -6)   
Hi Cheryl,

Sorry to hear you are suffering with this. Basilar Artery Migraines are really quite rare, and if this is indeed what you have it is important that you have this checked out by a Doctor and a formal diagnosis made!!!

How long have you been experience these symptoms? Have you spoken to your Doctor about them before, if so what have they said?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


Cheryl1018
Regular Member


Date Joined Jun 2003
Total Posts : 267
   Posted 7/17/2007 6:02 PM (GMT -6)   
I have a call in to my neuro's office to make an appt. I have always had migraines back to when I was a teen (I am 43 now) but this particular migraine type is fairly recent and increasing.

I know that I have very messed up hormones and am wondering if that can contribute.

Never mentioned it to a doctor yet because I just recently came across some info after doing research, and that's what made me wonder.
Complete Hysterectomy 1991 due to Endo
Fibro/IBD
Migraines - bad ones!! Ow.
Save a life - adopt a shelter dog!!
 


Jana042
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 7/17/2007 6:33 PM (GMT -6)   
Hi Cheryl,

My migraines are basilar as well. I have all the symptoms that you mention as well as tinnitus - although I get bouts of that without any other symptoms and have done my entire life. The vision loss is always in my right eye as is the head pain - always the lower right base of my neck area spreading to behind the right eye. I also get classic migraines as well, although not as often as I once did.

It seems that as I get older, the other symptoms (besides the pain) have become more pronounced. I have shooting pains down my right arm before some of the attacks.

Have you tried Verapamil as a preventative. I believe it's supposed to work pretty well for a good number of people with these kinds of migraines although I had no success with it at all. On the plus side, I didn't have a bad experience with it either.

You mentioned hormone problems due to birth control pills. I don't think people with basilar migraines are supposed to take the pill. I tried a couple different kinds before a diagnosis as a preventative and the attacks were made so severe that I suffered a TIA. Ever since the pills though, my migraines have been just a little bit worse. I don't know if the same is true for you or not.

Good luck and as Ann said, these migraines are really pretty rare and you need a doctor, preferably a good neuro experienced in headaches/migraines to provide you the best care.

Cheryl1018
Regular Member


Date Joined Jun 2003
Total Posts : 267
   Posted 7/18/2007 7:51 AM (GMT -6)   
Thanks Jana. I am not on birth control anymore. I was on it about 20+ years ago, but then was on infertility meds, endometriosis meds, and then had a miscarriage followed by a complete hyster. That's why I have messed up hormones.

I am gathering info now so I can be informed when I meet with my neuro soon.
Complete Hysterectomy 1991 due to Endo
Fibro/IBD
Migraines - bad ones!! Ow.
Save a life - adopt a shelter dog!!
 


ladedax8
New Member


Date Joined May 2011
Total Posts : 8
   Posted 5/3/2011 10:53 AM (GMT -6)   
I am 15 years old and was just recently diagnosed with basilar artery migraines. I'm not certain this is what I have because I've been misleaded many times by neurologists who really didn't know what they were doing. I have a lot of stroke-like symptoms, see colors, double vision, nausea, pain in neck and right and left side of the head, and numbness. When it's really bad I will get slurred speech. I'm going to get an MRA to just make sure it's not anything yet, I suggest you do the same as a precautionary measure.

jewishmother
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 5/7/2011 10:27 AM (GMT -6)   
My basilar migraines started when I was 20 - took 12 years to diagnose............the aura symptoms can be very unnerving - it is a good idea for you to get the MRA just in case. Am curious if your doc has given you any preventative meds to try?
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