Newbie with magraines

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jacslilsquirrel
Regular Member


Date Joined Jul 2007
Total Posts : 34
   Posted 8/17/2007 10:52 AM (GMT -6)   
skull  I was just diagnosed with magraines after already being diagnosed with lyme disease. UMM what actually can I expect with magraines?  I am living a really stressful life right now and my family and I are really concerned with what this is going to do to me with having lyme.  I get headaches from lyme too.  My boyfriend and I really could use some strong support from people who really do care.  We are in a real bad situation right now that I can not discuss right now.  If anyone has some advice we would really love it .   Thanks! 

baseballmomof3
Regular Member


Date Joined Apr 2007
Total Posts : 189
   Posted 8/17/2007 11:21 AM (GMT -6)   

Welcome.  My best advice to you would be to schedule an appointment with a neurolgoist - preferrably one that is a headache specialist.  My neurologist has told me that many doctors do not like to treat patients with migraines because they are very time-consuming and also very frustrating.  Each migraine patient is different.  All of us respond to every drug differently and if that isn't bad enough, most all of us have found meds that work but then they only seem to work for awhile.  It takes a lot of persistence and patience on your part and on your doctor's part to find a solution to help you live with your migraines.  There are many meds and other treatments available - you and your doctor just have to find a starting place and slowly find what works for you.  The Lyme's Dx adds a whole other dimension - that is something that your neurologist will consider and hopefully, maybe even work in conjunction with whatever doctor is treating your Lyme's Dx.

Best wishes to you.  You will find so much support and advice on here.  Only someone that suffers with  migraines can truly understand what you are going through.  For years, when someone told me they had a migraine, I would think - so take an Advil and get back to what you were doing.  HA!  Last June, I had my very first migraine, and they have consumed my life since then.  I would give a million dollars if I could "just take an Advil and get over it"!  So, don't let others upset or frustrate you.  It truly is very difficult to understand what you are going through for anyone else unless they, too, suffer with migraines.


DX:  Migraines since June, 2006, kidney stones
 
RX:  Daily - Verapamil, Trileptal
PRN:  Relpax, Prednisone, Dilaudid, Lortab, Lidocaine Nasal Spray


jacslilsquirrel
Regular Member


Date Joined Jul 2007
Total Posts : 34
   Posted 8/18/2007 7:02 AM (GMT -6)   
tongue  Thank you for the advice.  I am having so much trouble trying to find a lyme doctor and the stress is making my headaches so bad.  I go Monday to my NP so she can discuss the magraines.  I have not even been started on any type of meds for the magraines.  I will keep you posted.  Thanks again.

~Liz
Regular Member


Date Joined Oct 2007
Total Posts : 120
   Posted 10/21/2007 1:32 AM (GMT -6)   
Lyme disease can actually be the cause of your migraines.  I've seen several neurologists for my migraines and one of them asked me if I had ever been tested for lyme disease.  I asked him "what on earth does lyme disease have to do with my migraines?" He told me that a less common symptom of lyme disease can be severe migraines.  Maybe you should try asking your doctor if lyme could be the cause of your migraines...

Post Edited (Liz-hopeless) : 10/24/2007 11:39:48 PM (GMT-6)


mistyblu
Regular Member


Date Joined Oct 2007
Total Posts : 22
   Posted 10/26/2007 10:52 PM (GMT -6)   
I am 27yrs old and have been dealing with this for a while. It started off with chest pain and then that feeling of something being stuck in my throat. I'm tired and feel like my head is in a cload, that spacey feeling. I don't have this symptoms all the time they come and go. I had this feeling in my throat all day long some days. Eating never had anything to do with it. It would come even on an empty stomach. I have had Drs. tell me it is acid relux. I seen a GI Dr. and he did a EGD with a bravo placement to check my bodys PH level. Like I already knew I didn't have acid reflux. I didn't think I had all the symptoms. I didn't have the burning feeling in my chest and the acid taste in my mouth. My Dr. sent me in to have an MRI done. To make sure everything was ok in that area. I seen a Neurologist to get the results and found out that I have Chiari Malformation Type 1. Only an MRI can tell f you have this. Not an X-ray or Ct scan Basically Chiari Malformation is where your brain is to big for your skull or your skull is miss shaped and it pushes you brain back. It causes the brain tonsils in the back of your head to be pushed out of the bottom of your skull. Causing a hernia. They call it herniated tonsils. It restrict the spinal fluid to your brain. It can cause alot of problems.

mistyblu
Regular Member


Date Joined Oct 2007
Total Posts : 22
   Posted 10/26/2007 10:58 PM (GMT -6)   
Really bad headaches are another symptom!

Sugar9486
Regular Member


Date Joined Aug 2007
Total Posts : 31
   Posted 10/27/2007 9:58 PM (GMT -6)   
My best advice for you would be to try to eliminate some of the stress in your life in whatever way that you can. I know that although stress isn't an actual reason I get migraines, when I am stressed I am much more likely to get them. Good luck and keep us posted!
Diagnosis-- Chronic Severe Migraine with daily headache usually caused by tension
Medications-- Daily: Topamax 100mg & Welbutrin 100mg
                    PRN: D.H.E. 45 Injection or Migranol, Phenergan, Ultram, Fioricet 

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