Just to up-date, I had my third caffeine infusion on Monday. Whilst I was having it done my CDH reached a 7 on my pain scale but by late evening, when I returned home it reduced to a 2. For me this is rather remarkable. Yesterday the pain remained at a 2 for most of the day except for two ocassions when it increased to 3.
Unfortunately this morning I woke with a migraine, although only mild I took 800mg Ibuprofen and thankfully that has kept it at bay, although I am feeling very tired. I just hope that this doesn't cause my CDHs to return to their normal range (varying from 6 to 8).
Just as a follow up to my last caffeine infusion, my CDHs remained relatively low in severity for about 10 days, with two migraines in the middle.
I have today received information from my doctor that he would like to investigate to see why I have low spinal fluid pressure. Due to the benefits I receive from the caffeine infusion being rather limited he thinks that I may have a leak and has asked me to consider having a test to determine this.
If the benefits I received from the caffeine infusion lasted for a several months he wouldn't normally bother, but as mine only last for a matter of days he would like to try and determine the cause of my CDHs.
I am waiting for a consultation date, which should be in January, so thankfully it isn't too long to wait for me to discuss this with him.