Anyone have this? head pressure, swooshing in ears,pain behind ear, stabbing pains?

Post Edited (Joan123) : 9/25/2007 12:53:38 AM (GMT-6)

Good Morning Joan.

First, I can't answer your question about what this might be but I can tell you a couple of things that I have experienced.  I have that swooshing sound in one ear occassionally and it seems to be getting more frequent.  I just had it night before last and it just about made me crazy.  I have no idea what it is but I am going to do some research and also talk to my neurologist about it.  I have wondered if it is my "aura".  I actually started getting a migraine several hours after the "swooshing".  Your son describes it very accurately - it sounds like your blood pumping and you can hear it in your ear - it makes me crazy!

Also, I have a friend who's 12 year old daughter has been suffering terribly with headaches for approximately 9 months.  She was originally diagnosed with the whol pseudo-tumor thing but no one pays much attention to the diagnosis.  The neuro-opthamologist says she doesn't have the "true" signs of the pseudo-tumor.  I believe the reason they diagnosed her with it is because one of her spinal taps (LP) came back with high pressure.  Anyway, I don't put a lot of credit into that diagnosis.  After having everything else ruled out, I truly believe she has migraines.  She has been seen here in Atlanta and also at the Diamond Headache Clinic in Chicago.  This is a child who was a competitive cheerleader, softball player, etc. before these headaches started.  She is now not even able to attend school.  It is so sad and nothing they try has worked.  I will keep you updated and maybe between the two kids, we can find something.  After reading about cluster migraines, (even though she doesn't fit the typical profile of being a 40 year old man), I believe her symptoms suggest that her headaches are cluster migraines.  She has them every day, does not have the nausea or vomiting and can't lie down or sit still when she gets them.  She wants to be sitting up and her legs move constantly.  Her parents called the doctor in Chicago and requested home oxygen therapy for her to see if it would help.  He prescribed it and they started it yesterday.  For part of the day yesterday, her headache decreased but then by last night, it was severe again.  So.....who knows if it will help.

Anyway, one thing you might consider if all of his tests come back normal, is trying to make your son an appointment with a Headache Clinic.  I don't feel that a regular peds neurologist will be much help, but maybe....

Please keep us updated and I will let you know if I come across any answers for the whooshing noise or anything related to peds headaches..

Hi Joan123,

I can only endorse what baseballmomof3 has said and get an appoinment at a Headache Clinic preferably to see a Headache Specialist.


baseballmomof3,

It could well be that your friends daughter has Clusterheadache - it certainly sounds like it from your description. If this is the case the O2 will help each attack, but with Clusterheadache a sufferer can have many attacks per day, thankfully with O2 you can have it many times per day!!!

How long do the attacks last? I know the typical stereotype is that Clusterheadache is for middleaged men but I do know of one 6year old with it and a teenager, both are male but I also know of many young women with it too!!!!

There is a skill to using the O2 correctly to abort attacks, if you want any further information please email me and I can give you some tips as how to get the best out of the O2! I use O2 as it can be helpful in other headaches too!!

take care

Ann

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Co-Moderator of the Migraine/Headache Forum

Well we got it narrowed down. My son saw an opthamologist yesterday and she saw papilledema in his eyes, with it being more severe in his left eye. She also saw a hemmorage next to his optic nerve. What she saw is seen in psuedotumor cerebri and cerebral veneous thrombosis. In the next couple of days, my son will have a MRA and a lumbar puncture to firm up the diagnosis.

Joan

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Mother of son diagnosed with Crohn's at 12 years old, Oct. '05.  Also has secondary adrenal  insufficiency and gastroparesis. Meds:Nexium(40mg/2xday);Cortef(2.5mg/evening); Prednisone(5mg/morning); Humira (40 m every 2 weeks); Dicyclomine  HCL(10mg/2xday);Reglan (10mg/4xday);Multi-Vitamin w/ Iron;Vitamin D; Tums;Probiotic; Zofran as needed. Hospitalizations:  Oct. '05-Kidney Stone; Nov. '05-Pancreatitis; Aug. '06-C Diff Colitis; Oct. '06-removal of gallbladder; July '07-Gastroparesis.

Hello Joan, I hope you get this message,  I have a child with many similarities and wanting to discuss,  What was the treatment for your son?  Has it helped?

Please- if you have any information, I would love to know.  My daughter has adrenal insufficiency and recurrent pancreatitis and gall bladder removal and much more.  She is in terrible pain regularly.

My daughter is suffering terribly and we are not getting any answers.

Thanks

Pamela

I have a 13 yr. old that just went through this for the past few months we have had 2 spinal taps within 2 weeks for pressures. We have been through tons of tests including Chrohn's disease Ms and lots of others. Friday they took a blood test for Myco Plasma. We will find out results Next week. His symptoms started in Set.07. The closest thing that we found that could be it is this MycoPlasma. It is a Bacteria infection and has a nickname of a shapeshifter bacteria. There is tests just for this and will not show up in any blood work. Only certain antibiotics will treat this problem. You can look this up and if you think it is something worth looking at talk to your Neurologist.
My heart is with you and your family I know what you are going through. My son will complain of headaches, Throwing up, has Memory loss, above right ear hurting. Headaches all over. They are also looking at Pseudo Tumor Cerebri. If you look up Mycoplasma it may surprise you as it did me that it has alot of traits that we are having. It is also common in kids but kids with immune problems can not beat it like healthy kids.
In Sept. we started losing mobility with sever tremors in left leg and all the other things you have had
Best of Luck.

Joan123 I was wanting to know how your son is doing and if they found anything.
Pamela 123 I seen your message. Have they checked for MycoPlasma? My post to joan 123 is above this one. Maybe this can help. It is a bacterial infection and has many symptoms.
My son has GERD, headaches,Migraines, anemia, pseudo tumor possible and as of last week we are showing eye problem on a field vision test.
I would like to hear from you and joan 123. My heart is with both of your families.

Hi.

Have you guys ever looked into the possibility of a csf leak. Wooshing sound is very suspicious. If you have headaches constantly see if there is a positional aspect. Is it better when you lie down or stand up or no difference?

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"God won't take me to what he can't take me through"

hi I was diagnos with pseudotumor cerebri 2 years ago I did had a csf leaf .I had a ringing buzz on my left, I was losing my vision where the papilamima was in a cronic stage, I would lose equilibrium, i was forgetting things and gaining weight. oh and severe headaches with palpitation on my temple. Lumbar punctions where done to release the pressure. Finally a shunt was put in for drainage from the head. I had to go on disability because even thou it has aliviate from some of the pain I still hear once in a while the buzziness and I still have the headache. The thing is once you have been diagnosis with this your symptons could stay in ressesion but i could come back

Hi there,

I definitely had the whooshing noise in my ear, which I self-diagnosed as tinnitus (http://www.dizziness-and-balance.com/disorders/hearing/tinnitus.htm)

Although I did not have any of the causes listed on the site, I was severely anemic. When I upped my iron intake, the pulsing, fatigue, and jaundiced appearance of my skin disappeared. Best of luck.

Hi pauly here,

Hi everyone,
I have had a constant head pressure and tight throat and chest since I could remember... at least 4 to 5 years. I am 23 now. It's there everyday along with the chest pressure and shallow breathing. My symptoms don't ever go away, but they never get any better or worse. They feel the same intensity all day everyday, but I still feel like I am going crazy all the time. Having no insurance and being in debt due to school has made getting help a daunting task. I don't know what to do for help. My head pressure and chest/throat tightness has an effect on my mind. I walk around all the time with a cringe on my face because it effects my mood and makes me miserable. I fight it when I am around the public but fighting it doesn't ever make it any better. I am hoping someone else has something like what I am describing and has had positive results with treatment. If anyone else does, please please help. Thank you.

Hello new member
I think what has helped clear my tight chest is peppermint oil from the health food store. You may have asamah or alergies a small bottle should cost about 9.00 , It is not the same as the stuff you buy for baking. I use it for the head aches, clearing my chest. use it on a cotton ball than inhale, just a little at a time it smells great and has many uses. If your tummy is upset put a drop or 2 on the palm of your hand and lick it. If you take to much you wont be able to catch your breath maybe for beginners put the drops in coffee or tea. It's also good for mild headaches just rub it on your tempels
Now the stabbing pain some times feels like stabbing sometimes as if someone is pulling at your hair in one spot. The swishing , bubble, bursting in the hopeyou go hjuneaj

i know you posted this in 07' (which is when i was diagnosed with intracranial hypertension) but i thought i still post about my experience because a lot of people go undiagnosed.

very much like your son i kept getting the run around saying it was just a migraine. i was 17 and it was the day after christmas when i fell ill. i suffered from migraines since i was 10 but that day after christmas things just fell apart. i woke up vomiting and it felt like an elephant was sitting on my brain. to top it off it also felt like someone was ripping veins out of my brain one by one. i was vomiting and shaking, it was ridiculous. i thought it was the flu and so did my parents. but after 3 days and only becoming worse we went to urgent care. they said i didnt have signs of mengitis, gave me a shot for pain relief put me on some migraine meds and sent me on my way. the shot nor the pills worked, not to mention the pills sped up my heart rate. two days after that (still puking and maybe an hour of sleep a day if i was luck) i woke up and my was seeing DOUBLE. when i looked in the mirror my left eye and turned inward. i woke up my parents who freaked out and rushed me to the emergency. they gave me a vision test (so stupid, of course if i cover one eye the other sees fine) they gave me an other shot, handed me some more meds and said it was just a terrible migraine.

now youre probably wondering "why didnt your parents take you to your pediatriction?" she was out of town until jan. 2nd. i dont know how but i held on and saw her. she was freaked out and upset the emergency room doctors didnt have a neurologist look at me. she sent me to her sons neurologist same day and he figured it out right away. he checked my eyes, ordered an mri and some blood tested and the next day i was in the hospital for a spinal tap. the relief i felt from that tap was awesome. it was instant relief and it helped that my neurologist is the nicest most gentle man in the world. when they measured my spinal fluid they said it shot out of the tube so it was hire than 60. i could have lost my vision and probably worse but thank god i had a doctor who knew his stuff.

since being diagnosed ive had 32 spinal taps and i'm now 21. the swooshing sound in my ears seems to never go away and it drives me nuts. today i called my neurologist and was like hey doc do you think you can see me friday for a spinal tap (we've become quite close after 32 taps) and now im awaiting my authorization call from the insurance. i haven't hadf a spinal tap in almost a year which is a vast improvement from every week or two. its tough and i could have gotten a shunt but that only causes more problems.

if you or your kid suffers from these symptoms dont listen to your doctors when they say its bad migraines. so many people go undiagnosed with IH and its not fair. ask to see a neurologist and get a second opinion. your brain and eyes will thank you later.

i know this is an old threat but if the noise/swooshing/headaches/nausea is still an issue don't rule out Superior Canal Dehiscence Syndrome. thought i would share, just in case!

check out hyperacusis.net for info on sound senstivity

check out hyperacusis.net for info on sound senstivity

This sounds just like me (I actually have a few more symptoms). I was diagnosed with psuedotumor cerebri 3 months ago.

i have a pain in the right top side of my head, my eye on the same side hurts alot and this may become more difficult when im exposed to the sun. i have a feeling in my ears like something is rushing through or in it . this has been a problem for a few weeks now and im only 17 yrs old. i am terrified and scared that i have a brain tumor. i think i have dry eyes an wonder if it is causing the pain in my head. plzzz plzz helppp ! im scared. and also i soemtimes experience shocking veins ( i think) in my hand or legs.

i have a pain in the right top side of my head, my eye on the same side hurts alot and this may become more difficult when im exposed to the sun. i have a feeling in my ears like something is rushing through or in it . this has been a problem for a few weeks now and im only 17 yrs old. i am terrified and scared that i have a brain tumor. i think i have dry eyes an wonder if it is causing the pain in my head. plzzz plzz helppp ! im scared. and also i soemtimes experience shocking veins ( i think) in my hand or legs.

Hi and excuse my bad english!i have all these symptoms for many years ,at least six,(i am 30)and was trying to figure out what causes it.atm i'm experiencing a big pressure on my forehead,back of the head and behing ears and can hear my inside from my ears.especially my left ear.anyway..as i was saying i was trying to figure out what causes that and noticed one thing ,that this happens when i change my sleeping routine,meaning that if i usually wake up at 9 o'clock if i wake up at 12 ,it will happen and will last for 1-5 days..i also experience something else when i feel this pressure on my head also,when it's time to sleep and i almost half asleep i suddenty wake up feeling an extreme pressure on my head but can't move my body(this is somehow called,don't know it in english)and this only happens when i sleep supinely(i hope thats the right word)and i guess it has do do with the blood going even more back of the head(im not a doctor,just guessing!)..i'm sure it's not something serious but it's very annoying..have never gone to a doctor cause it comes and goes..i guess i'll live with it for the rest of my life!

Pauli have you found anything out ? I am having the same problems you are describing.