Constant Headaches/migraine

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Tweedle
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/1/2007 5:26 PM (GMT -6)   
Hi, I’m a new member, I’ll just quickly introduce myself and my history with headaches and migraines (and hope that some one may have a different suggestion of what I can do) I am 24 and for as long as I can remember I have been suffering from headaches and migraines (so from about 3 years of age) I have tried all sorts from unconventual medicines to the most recent ones from the doctor - Zomig, Amitriptyline and Securon. Everything I seem to do does not shift of lift the headaches and migraines, I get them every single day and now am coming to my wits end about them. I have tried to find out if anything kicks them off but cannot find a trigger for them at all. Some times, as I have had headaches for so long, I can cope with the pain as I am used to it, other times the pain can be so much it can wake me up at night, or it just stops me from doing anything. I used to take pain killers every 4 hours in an attempt to stop the pain, but again this had little effect and as I had more and more pain killers they started to stop working, so now I do not take pain killers unless it is an extreme case of migraine.
Now my managers at work are becoming very annoyed with this as well as I seem to have far too many days off ill with it and the stress of the thought that I may loose my job does not help at all.
Can anyone please tell me an effective pain killer or maybe a different way of trying to releave my headaches and migraines because I do not know how much more I can handle sad

mamaz
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 11/2/2007 8:13 AM (GMT -6)   
Are you seeing a Neurologist? Have they tried any prophylactic meds? There are many different anti-seizure drugs out there that sometimes help, and are used off label by neurologists. O f course we all are different, so what works for me may not work for you. But I am now on Keppra 1000 mg BID, and of course my other abortive drugs etc, but the Keppra really seems to help as well as injections I just got in my neck. Hang in there and please seek out a specialist if you are not already seeing one.

Tweedle
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/2/2007 10:41 AM (GMT -6)   
Ive got an appointment to see a Neurologist in 4 weeks, hoping that he can sort some thing out for me.
Yeah im currently on prophylactic meds but they aint doing anything yet :(

mamaz
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 11/2/2007 8:27 PM (GMT -6)   
I am glad to hear you have an appointment, I hope they can come up with a plan that works for you. It may take a while to get the right combination, hang in there!

SILVER29
New Member


Date Joined Nov 2007
Total Posts : 1
   Posted 11/9/2007 7:36 PM (GMT -6)   
YES I HAVE HAD MIGRAINES FOR 4O YEARS. I WAS PUT THRU ALL KINDS OF THINGS TO TRY TO STOP THEM. BUT NOT ANYTHING DID ANY GOOD.. I WAS HAVING THEM 2 TIMES A WEEK. EACH ONE WOULD KEEP ME IN BED FOR 2 TO 3 DAYS.
THEN I STARTED WITH ERS. FOR PAIN SHOTS. BUT I DID NOT GO TILL I WAS AT A 10 WITH PAIN. SO I STILL WAS IN BED TO MUCH.
NOW MY DOC. GIVES ME DEMEROL SHOTS FOR HOME. NOW WHEN I GET ONE I TAKE THAT . SO I ONLY AM IN BED FOR A COUPLE HOURS.
I FEEL LIKE I HAVE MY LIFE BACK. SOME PEOPLE DO NOT THINK IT IS GOOD TO TAKE PAIN SHOTS.
BUT...I HAVE A LIFE NOW.
HOPE THIS HELPS SOME .
 
 
 
Hi Silver, I would respectfully ask you to turn of your caps lock next time you post, as this is considered shouting on the Forums - take care Ann

Post Edited By Moderator (Annuk) : 11/11/2007 1:25:48 AM (GMT-7)


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 11/11/2007 2:35 AM (GMT -6)   
Hi Tweedle,

Welcome to Healing Well. Sorry to hear that you are suffering so. Just a couple of questions - do you wake with your headache every morning, and is it continuous sort of back ground headache? Where abouts on your head is the pain? Sorry if these sound daft questions but I am trying to find out if there is a possibility of you having more than one headache condition. Is your pain just on one side or does it move? How long each day does the pain last for? Does it keep you awake at night or wake you in the night?

I must point out that I have no medical training and you should always check anything recommended here with your Neuro!

I have a rare Headache disorder that constitutes a continous headache with several exacerbations per day of varying degrees - it is called Hemicrania Continua! I have come a long way over the last 30 years with this and learnt a lot!! Thankfully there is treatment for this and my life is very different now to what it was even this time last year, as I was only finally diagnosed this last August!!!!

I would recommend that you avoid any meds with codeine(or any other narcotic) in as they can make your headache worse over time what ever your headache condition is!! Sadly most of the pain relief available has this in, please discuss with your Doc meds such as non-steroidal anti-inflammatorys as they can be very effective!!

I wish you all the best with your Neuro - please let me know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


Tweedle
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/11/2007 5:44 PM (GMT -6)   

Hi, yeah wake up every day with them, they can be very very painful to start with but generally get worse as the day goes on and the pain is worse at the front of my head however the pain is present throughout the head, and can end up keeping me awake or even waking me up. The answer to how long each day does the pain last, well its never really gone I feel constant pain, yes there has been a day or two when I had almost no pain at all (very rare), when these days occur I end up crying as no having little or pain at all in my head is my biggest wish and dream.

The doctor has recently prescribed me with a drug called Solpadol which are supposed to be very good pain killers and sadly these are not working for me. It could be possibly due to me taking pain killers since I was so young.

I will let you know what the outcome from the neurologist is - hopefully its good news (heres hoping)


Tweedle
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/25/2007 6:33 PM (GMT -6)   
Well seen my neurologist and he has prescribed me with 500mg of Naproxen, 120mg of Amitriptyline and has booked me in for a Scan. Those along with the Solpadol when the pain is very instense.
I have to try these for about 1 month and if there is no improvement I am to go back when they will then bring in a different neurologist to make a different diagnosis.
Well not there yet to finding a complete cure but its on its way :D, im just hoping that this Naproxen does something, I mean what more is there to try

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 11/26/2007 9:04 AM (GMT -6)   
Hi Tweedle,

I am glad you have seen the Neuro and it sounds to me as though he/she is on the right track. I really hope this works for you.

take care

Ann
Co-Moderator of the Migraine/Headache Forum


sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 12/6/2007 10:53 PM (GMT -6)   
Hi Tweedle,
 
Reading your first post it was if someone had written about my migraines.  I can relate to what you write, and have had the same experience of chronic migraines.  I was in bed for a year and a half from the pain of a never ending migraine at one point.  But, I'm writing to tell you there is hope.  I'm glad you went in to see a neurologist.  If you are comfortable with the neurologist, that is wonderful! I found general neurologists were not able to help me in the same way a neurologist who specialized in migraines did.  In my case, the neurologist specializing in migraines/headaches explained there are actually four stages to a migraine (which was news to me, I thought a migraine was just a migraine). During the first phase one experiences changes in appetite, mood changes, difficulty concentrating, fatigue, etc. The second phase is the "aura phase" in which visual disturbances, vertigo, loss of balance, or difficulty speaking occurs (happens about 20-30 minutes before the headache).  The third phase is the headache phase, and what most of us think of when we think of a migraine...the one-sided head pain, throbbing/pounding sensations, etc. The final phase I had always described to people as a "migraine hangover". My body usually feels very fatigued (and "worn out"), some people get stomach discomfort and have food intolerance.  So, you can kind of picture these phases as a bell curve, phase 1 at the bottom leading up to phase 3 (the actual headache pain), and the final phase the other bottom side of the bell curve.  For most people with migraines, these phases are grouped together into one migraine episode and distinctly separate from other migraine episodes.  They will be able to say my migraine pain started "here" and ended "here".  In my case (and perhaps yours, I don't know, but it is worth asking your doctor), the migraine episodes were overlapping each other.  So there was no "down time" in my brain.  I was having migraine episodes on top of each other, and that was why the migraine pain never seemed to stop.  The neurologist actually warned against taking too many painkillers because they can cause rebound headaches (which means the painkiller may stop the pain initially but will actually cause a headache shortly after). There are so many possible triggers, I kept a daily journal recording everything I ate and how I felt (great advice in a previous post!) as well as going on a very restrictive diet in an attempt to eliminate many possible triggers.  Having migraines can be very isolating, and having them constantly really can make you just want to pull your hair out and scream.  I'm glad you've come to the forum to seek help, and if nothing else just as a place to be heard by other people who understand where you're at.  I hope you have a peaceful day!
 

Tweedle
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 12/9/2007 10:41 AM (GMT -6)   
Thanks for that sarahswan, the naproxen doesnt seem to be doing much for me, though I'm gonna give it a few more weeks then I will request to see a neurologist whom specialises in migraines

headache ann
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 12/10/2007 7:52 PM (GMT -6)   
tried eveything....the tryptans work well but are expensive....this info will change your life if you suffer from horrible migraines.....go to amazon.com and order mygrex....not only does this work well, it is 35 dollars for 300 tablets!!! you will not be sorry....this medicine has changed my life and saved me hundreds! doesn't matter if you have migrains from injury or whatever.....i cannot stress this enough of how well it works on the worst migraine....wish i had discovered this sooner....accidentally found this drug at workplace pharmacy! you will be shocked at the results....

sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 12/18/2007 10:18 AM (GMT -6)   
Tweedle said...
Hi, I’m a new member, I’ll just quickly introduce myself and my history with headaches and migraines (and hope that some one may have a different suggestion of what I can do) I am 24 and for as long as I can remember I have been suffering from headaches and migraines (so from about 3 years of age) I have tried all sorts from unconventual medicines to the most recent ones from the doctor - Zomig, Amitriptyline and Securon. Everything I seem to do does not shift of lift the headaches and migraines, I get them every single day and now am coming to my wits end about them. I have tried to find out if anything kicks them off but cannot find a trigger for them at all. Some times, as I have had headaches for so long, I can cope with the pain as I am used to it, other times the pain can be so much it can wake me up at night, or it just stops me from doing anything. I used to take pain killers every 4 hours in an attempt to stop the pain, but again this had little effect and as I had more and more pain killers they started to stop working, so now I do not take pain killers unless it is an extreme case of migraine.
Now my managers at work are becoming very annoyed with this as well as I seem to have far too many days off ill with it and the stress of the thought that I may loose my job does not help at all.
Can anyone please tell me an effective pain killer or maybe a different way of trying to releave my headaches and migraines because I do not know how much more I can handle sad
I just ran across something last night, and thought of you because you said your migraines are affecting your work and your managers are becoming very annoyed.  Check out this website: http://www.migrainementors.com/atwork.asp They work with women with migraines to help them be able to get back to work, and work with employers to educate them about migraines.  I thought it was a very novel idea, and at least worth checking out :)
~Sarah 



http://www.myspace.com/nomoremigraine


mandy w
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 12/26/2007 8:23 PM (GMT -6)   

Hi there.  I'm new to this too.  I have been having migraines for over a year - but I'm a little more complicated.  I also have Lupus and degenerative disk disease.  The migraines are a very common part of lupus, but my migraines have become daily in the past three months and I'm just desperate.  Aside for the daily aches from the lupus and ddd, the migraines have completely taken me over the edge.  My neurologist has tried adjusting my neurontin, topomax, nortriptyline and increased my prednisone to 15 mgs. daily, but that dose is unacceptable to my rheumatologist.  I've tried imitrex (oral and injections), midrin, maxalt, and so many others I can't remember and none of them have worked at fighting the migraine once it starts.  I take percocet when the migraine is an 8 or more, only because I know I can't take it too often.  While my neuro is WONDERFUL and is trying her best to help, we just haven't been able to figure out why I keep getting them and how to keep them under control.  I am 31 and have been "sick" for six years, I feel like my life is spinning out of control.  I don't have the life I want because I'm constantly having to give in to these evil migraines.  My daughter (who is 8) is suffering terribly with anxiety because she sees how much pain I am in from all my ailments and I have to work so hard to not let her see me suffer, but I know she sees through it.  I work part time - though more recently, attend school part time, and spend every other moment I can caring for my family.  I've tried to figure out what is different now that would be causing these daily migraines but I am at a loss.  I know stress is a factor (duh!), but today, a day when I had nothing to do but spend the day with my daughter with nothing particular to do, I still ended up with a killer migraine. 

I guess I'm not really looking for any advice at this point, unless anyone has any, of course.  I just needed to vent to others who know my pain.  Thanks for listening!


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 12/30/2007 9:18 PM (GMT -6)   
 
 
   Hi Many, so sorry for your pain. I too have migraines. I usually have 3-4 a week sometimes daily.  The only thing I'm taking right now is midrin and fiorcet, but they aren't working for me.  I see my neuroloigist on Jan 7th so guess we will try to figure out if there is anything else I haven't tried.
 
   My husband order a herbal/vitamin pill that is suppose to cure migraines. I spoke with someone from the company they told me to take it for three months and I didn't have to pay a dime if it works then I pay $33.00 per month for the pills.  They seem to think it will definetly help me and I'm going to give it a try because I have nothing to loose. If it doesn't work I don't pay a thing.
 
   I've tried the topamax you probably have also. It has so many side effects that I gave it up. My hubby said it made me very irritable and we didn't need that, lol.
 
   I hope you find something for your pain, I'll let you know about the herbal remedy.
 
  God Bless,
 
   Mercyme  :-)

Liz
New Member


Date Joined Dec 2007
Total Posts : 1
   Posted 12/31/2007 10:32 AM (GMT -6)   
Hi I am a new member and also have tried everything under the sun for migrianes. I am far better then a year ago and my chiropractor helped with vitamans. He tested my organs which I had never had done before. He told me there was no reason he could not help me. I had to take a lot of different nutrients for almost a year. The last time I went everything tested good. I went from 2-3 headaches a week to 2-3 a month. Of course some are worse the others and I can stil get cought up in rebound headaches, but I have not had to go to the hospital for a long time to get a shot. I have been close but I have made it through. I go to a headache speacilist in Kansas City and have learned there are many medicines that cause rebound headaches incuding most pain killers, imitrex, zomig, and other migraine medicenes inculding over the conter drugs with ibuprofen. She told me to take aleve. Once you get it the cycle its hard to get them stopped. She put me on steriods to help me get out of my rebound cycle and on Fovar which is a slow working migraine medicine. I took the Fovar morning and night for 6 days. Since it starts slower it also quits working much slower then medicines like Imitrex you are less likely to have a rebound headace. But if I don't take something the minute I think I am getting a headache I know I will probably be down for a day or two. Now when i don't think one dose of medicne will work I follow it up with a Fovar and hope it works. My sister has had migraines since she was 3 and she had a hysterectomy 4 months ago and she has only had to take 3 Imitrex since her surgery. One of her triggers was hormones and once she got one she could not get them under control. It took her 5 years to convince the doctor to do that for her. I have been trying for 2 years and I go back in January and will ask again. I know that I am far better off then some you you with daily headaches.
Has anyone tried Migraine Defense. I found it on the internet and thought it sounded like it could be a hoax, but like everyone else I am welling to try anything. I have emailed Harvard to see if they did help develope this product, but have not heard anything back from them. I would really like to get off the migraine medicine. I can only imagine what it is doing to my insides.
I really recommend a chiropractor that test your body organs. It has help give me my life back.

Good Luck to you all.

Liz

mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 12/31/2007 12:11 PM (GMT -6)   
Thanks Liz, something to consider I guess. How does checking your organs help with the migraines?
I have hormonal issues also, I've thought about having an ablation thought it might help with the migraines.

I woke up with a migraine this morning, but I started so that explained that one. I'm glad to hear you are doing better. I know there is always hope so I'll keep searching for the right plan for me.

Happy New Year,

Mercyme

mother2
Regular Member


Date Joined Dec 2007
Total Posts : 21
   Posted 1/7/2008 10:43 AM (GMT -6)   
Annuk,
 
I was reading your questions earlier for Tweedle, and it sounded a little like me. I have the continual background headache that I pretty much wake up with. They don't wake me at night all the time, but they are definitely there in the middle of the night if I have to get up for any reason. They are at the front of my head, mostly, sometimes showing sinus headache conditions. I'm actually congested a lot. Like you said also, mine go up and down during the day in varying degrees. Sometimes one sided short spurts of higher pain, Sometimes, both sides. And the pain is definitely exagerated during times of stress. Like when my 3 year old colors on the wall :) Anyway, what is your treatment for your condition? Have you found some relief?
 
Mother2

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 1/7/2008 11:30 AM (GMT -6)   
Hi Mother2,

Yes I have found great relief with the Indomethacin. The pain (even background pain) of Hemicrania Continua is strictly unilateral (one sided), with the exacerbations on the top of that! You really need to see a Neurologist who is a Headache Specialist to have your headache defined and diagnosed!

Also with Hemicrania Continua come 'autonomic symptoms', the first being a droopy eye, blocked nose, and I have a bit of a watery eye on the affected side too! Indomethacin is the drug to treat HC, but is not ideal long term as it burns a hole in your stomach! A good Headache Specialist will find the best way forward for you maybe with other drugs - to that end I am to go into hospital in a couple of months time to be assessed for my long term treatment and to have the 'Indomethacin Test' to define the diagnosis, as this test is the diagnostic criteria for HC, according to my Headache Specialist.

I know this sounds nuts as I am already taking Indomethacin, but they have to take me off it for a short while and take me into hospital and during an attacks they inject Indo one day and a placebo another day, but you do not know which is which to see if you respond. If I respond to the injection of Indo that defines the diagnosis!

I also get some head pain despite the Indo which my Specialist believes to be migraine at the moment, but he will be investigatin further. I hope this helps.

take care

Ann
Co-Moderator of the Migraine/Headache Forum


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 1/7/2008 8:13 PM (GMT -6)   
 
 
  Hi, hope everyone had a good Monday. I went to see my neurologist this morning, and he has recommended for me to do botox injections in the front and temporal lobe areas to get some relief from these terrible migraines.  I had a bad migraine today  sad    I really didn't want to do the injections, but I'm desprate now I'll do anything to stop this pain.
 
   I'm having anywhere from 3-5 a week, sometimes daily.  I have started taking vitamins E, C, B1, magneisum. also started taking this herbal/vitamin which is called Headache stay gone, anyone heard of it?   Well I will contiue my fight with these migraines and hopefully I will win.   Have a great Tuesday and I pray it will be pain FREE.
 
   Many Blessings,
 
   Mercyme/Cindy  :-)
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