The pain is around and in my eye,ear and down my face and on the side of my head towards the front i also very often get pain in my neck on the same side as the pain.It does not wake me up and when i get the pain it can last all day.I just want to bury my head and be on my own when i get the intense pain.My face on the side of the pain feels hot and my eyelid looks droopy.During the time i have a headache it is a burning pain but during this time i also get what i call peaks of pain that can last from about 10 minutes to a couple of hours,but there is allways pain there for hours and hours.I have had a headache for the last week not all day long and as the days go by it gets worse and worse.
I hope this helps you.I am in the Uk i will e mail you.I spoke to my GP about the imigran but he said that was all there was for me to take.
thankyou for your e mail.
I looked up Hemicrania Continua and it sounds exactly like it!!!
The hardest thing,i think,is getting the right diagnosis and understand how hard it must be for doctors as there are so many different types of headaches.
Am i correct in thinking that if Indomethacin works it is a confirmed diagnosis of Hemicrania Continua?
I am glad you have found something that works for you,i have had 15 years like this, cannot imagine what it must have been like for you to suffer for thirty years!.
Trust me if you had this kind of headache you would know the kind of pain that should never be dealt with even though some of us have miner pain from it, it can be a head banging experience non the less and Ann really know what she is talking about and thank you Ann for giving me the info on this as this is pure hell to deal with.
thank you Ann for giving me the info on this as this is pure hell to deal with.
My pleasure Freezing If you need anymore Info please do not hesitate to ask!
thankyou for all your replies.My doctor has diagnosed me with CH but the only reason i don't think i have them is because they last a long time and i don't get them in the middle of the night.
Thankyou for the tip on oxygen Ang i would rather have this instead of more pills i am on so much medication already for B12,folate and ferritin def.Injections for the B12 def.My GP had offered injections for the CH but i opted for the imigran tablets,but the side effects are horrible but i will mention the oxygen to him.
Post Edited (storm) : 12/1/2007 2:14:29 AM (GMT-7)
Post Edited (korbnep) : 12/2/2007 7:40:57 PM (GMT-7)
Hi Ann and Ben
Thankyou,I appreciate all your feedback.
My next step is to get a absolute correct diagnosis with someone who is a headache specialist not just my GP.Whether it be HC,CH or to do with my deficiencies or something else.
Yesterday was my first pain free day in 13 days yipee!!