Questions I have About Prior Your DX of MS???????

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texasmommy
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 12/24/2007 10:45 AM (GMT -6)   
So here I sit, on Christmas Eve with my face tingling and numb and my left arm in pain.

I am waiting...waiting...waiting for the doctor to call me about when my MRI is scheduled. I have not been diagnosed yet. But MS is the suspicion. Here's what's been going on:

about 7 years ago I complained to my former doctor about memory issues. Simple things are just gone. It's more than the normal walking into a room and forgetting what you were looking for kind of memory issues. Whole parts of my memory bank are just blank.

about 4 years ago I started to experience tingling in my face and pain in my left arm along with dizziness/lightheadedness and fatigue. I told the doctor (different doctor) about it but she blew it off as my being pregnant and have pre-eclampsia. I still suffer with those daily.

Most recently the following things have happened which most have rapidly been increasing in intensity:

I can't follow things. I have difficulty finding words. Sometimes I have the hardest time trying to remember the simplest of words, like "dog" and will search and search and search my memory bank for the right word and it eludes me. This is so frustrating for me. I feel stupid. I am an intelligent woman and it is so aggravating. I can't remember names or faces. Last night I saw someone that I see twice a week and didn't recognize them at all. So embarassing. I also have difficult following directions. My mind kind of wanders without really wandering (I'm sorry, I can't think of another way to describe it) kind of like 'checking out' for awhile. I also can't follow directions well because if you give me 3 steps to follow I forget step 2 & 3 before I've even started Step 1.

My left arm gets this sharp, shooting pain that runs from the shoulder down to the finger tips. Sometimes there is a constant ache but mostly it's a frequently but fleeting sharp, stabbing, shooting pain (I don't have a better way to describe it).

Now my left leg has started to experience the fleeting sharp, stabbing, shooting pain. and occasionally my right arm.

I seem to have confused bowels because I'm always either constipated or the opposite. I have frequent UTI's.

The left side of my face is frequently numb or is tingling or both.

The thing that brought me into the doctor was some visual issues. I've always had poor eyesight so I never thought anything about it when my eyes kept getting worse and worse and even when I'm wearing my contacts it's difficult to see sometimes. The other day I was in the store and I experienced a disturbing visual issue where I saw a bright light in the focal point and then distorted vision on the left. I ate something & it went away but it really freaked me out. So, when I went into my doctor for a cold he suggested that it was an occular migraine without the headache (which he still thinks is what happened to me in the store) but then started asking questions about tingling and such and it just so happens that at the time my face was tingling and my arm hurt. This is when the discussion got deeper and he brought up MS as a strong possibility. I had never considered MS before. I just thought I had a ton of things wrong with me and was afraid to mention them to the doctor because of being 'brushed aside' in the past by previous doctors.

So, here I wait. Anxious. It's Christmas Eve and I just want to know. Are the things I described what others have gone thru before diagnosis? I just wish I knew what was going on. I've known for years that 'something' was wrong but kept getting brushed aside by doctors and didn't want to come across as a hypochondriac so I just wouldn't mention a lot of these things.

Thank you. and Merry Christmas!!!
****HI there....
I added a title to your post this way maybe you will get more answers as well ..it makes it easier when we know what the question(s) is or thread is about.if this is not how YOU would want the thread titled then please by all means change it to your way ...Just a thought k
I hope you find out soon what is going on with you ..........Thoughts and Prayers are with you ......LYN 

Post Edited By Moderator (Howlyncat) : 12/29/2007 10:20:39 AM (GMT-7)


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/24/2007 1:27 PM (GMT -6)   
Many folks here have gone for years with various things wrong and without a diagnosis. It's important though that first you find a doctor that you really do trust, and then tell him EVERYTHING that is going on, or has gone on (even if it isn't happening at the moment you're in his office.) Folks often will keep a diary, or log, of symptoms, noting if there is any kind relation between the symptom and something external, like "I really get weak when I'm overheated". And it's important to keep seeing the SAME doctor over time, so he can track when symptoms come up. Over time patterns can develop that can lead him to a diagnosis.

So if you haven't already, you might spend some time plotting when these things started to occur, and what symptoms you've experienced and when, and then share that with the doctor the next time you talk.

Unfortunately there are lots of things that could cause your symptoms, including MS, stroke, migraines, and a host of other things. The doctor has to rule out everything before settling on a diagnosis of MS, so it may be that you'll go through a series of tests, including the MRI, before he'll be able to tell you definitively what is going on.

I'm sorry this stuff is going on around the holiday. I hope you have some family or friends you can spend some time with, so you're not having to dwell on the uncertainty of this disease, or uncertainty of your diagnosis! Take care.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 12/24/2007 3:10 PM (GMT -6)   
Christmas eve
 
Hello Texas Lady:
 
Are you experiencingany of the other MS symptoms that most of live with?
 
#1  Fatigue
 
#2  Fatigue
 
#3  Fatigue
 
#4  Sensitivity to hot and humid weather.
 
 
#5  Did I say...fatigue?
 
Great luck and Happy Holidays.  I can sympathize about not knowing...John
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 12/24/2007 3:38 PM (GMT -6)   

Hey Texasmommy,

I am sorry this is on your mind on this Christmas Eve.  Welcome to the board.  It can be a long and drawn out process to get a diagnosis.  We can stay with you here and support you on your way.  I hope you post often and ask as many questions as you would like. 

 
love and prayers,
 
Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


texasmommy
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 12/27/2007 9:52 AM (GMT -6)   
Thank you all for your warm words.

Yes! I am constantly exhausted. It is very annoying. I am only 40 and should not be tired like this all the time. Still waiting for the doctor to call so I'm going to call this morning.

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/3/2008 11:43 AM (GMT -6)   
Hi there Texasmommy - did you get your MRI yet...or at least an appointment date.
I know you are worried, and I know that you are worrying about having MS, but beleive me, the best thing that happened to me was get the dx, it came as a big relief to finally know - and once you have the dx, if in fact this is what it is - there are drugs out ther now that will help you manage and control the symptoms. 
So there really are silver linings in black clouds....
 
I hope the best for you....and one of the "best" is knowing. 
 
Gary

texasmommy
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 1/3/2008 6:03 PM (GMT -6)   
Thank you.

I had my MRI this afternoon. They said my doc should have the results by tomorrow morning.

Shrek
New Member


Date Joined Dec 2007
Total Posts : 15
   Posted 1/4/2008 8:00 PM (GMT -6)   
Greetings, I haven't been diagnosed either but the symtoms you have experienced and the ones I have experienced are pretty close. I really started noticing them about a year and a half ago, balance/dizziness ultimately falling a few times for no good reason.
Fatigue started and increased with time, along with this came the memory problems, cognitive thinking etc. The fatigue became so bad that I had to quite my job back in June 2006, I would come home and go straight to bed and collapse and wonder how I ws going to get up the next morning and contiune. Most outsiders don't understand the type of fatigue, we have experienced.
I experienced pretty good chest pressure/pains also, but according to the doctors it wasn't my heart or anxiety. I had an enzyme in my blood that is related, so I'm told, to heart trouble or something like MS, that was elevated.
I have ringing in my right ear constantly, sometimes it gets louder and crosses over to my left ear. I have those aggrevating transient pin stick-electric shocks all over my body, randomly. My muscles are sometimes sore and stiff like I had exercised like crazy the day before and I had not.
Just recently, within the past two months my eyes have developed a problem whereas they don't track properly. They jump or I have double vision etc.
My arms and legs have tingled, burned and gone completely numb from time to time and sometimes had sharp shooting pains.
It seems as though I am on a quest especially since the majority of doctors are more concerned with cash flow than people. But really and truly the hardest thing for me has been when people say you look alright or things of that nature. I may not have MS but I know we're not crazy and we're not making these things up.

Keep the faith.

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/7/2008 9:42 AM (GMT -6)   

Good morning Shrek, you hang in there - and keep them working for you to get a diagnosis. Many if not all of the things that you spoke of, the eyes, the ears, etc, etc....have all come,and they have all gone, at one point or another.

Make sure you keep a written record of all of these activities, so that when you have another opportunity to explain these things, you will not forget any.

And yes, the biggest hurdle that I had to jump over was to convince people tht I was not imagining all of this stuff, and that the sympotms were not due to stress and anxiety.  Eventually after quite a long time, I was finally able to convince them that the symptoms came first, then the stress, not the other way around..

Keep pounding away

Gary


texasmommy
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 1/11/2008 7:30 PM (GMT -6)   
The doctor just talked to me about the results of the MRI. I have 9 non-specific lesions and am being referred to a neurologist for further testing. Thank you everyone for your kind words and positive thoughts. Y'all are great.
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