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anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 12/26/2007 7:03 AM (GMT -6)   
Hello to everyone and Merry Christmas,
Received a great christmas present - MRI results came back negative for lesions, therefore no MS! This is wonderful news although now I think it puts me in that "limbo" category as I still have very strong neuro-type symptoms. I wonder if someone could shed some light on a comment in my MRI findings - quote - "There are several small perivascular spaces in the basal ganglia but no white matter lesions worrying for demyelination shown". Are these perivascular spaces a cause for concern? Am I correct in thinking that if they were normal physiology they would not be commented on? Could these spaces be causing my symptoms? The dr did not remark on these - he also did not look at my films/CD, only read the MRI report and seemed to "shaft" me very quickly. I couldn't find anything on the net to help answer these questionsabout perivascular spaces. Also, what do I now do about these awful symptoms except continue to ignore them and just get on with life? This is largely what I have been doing for the last year anyway. My enquiring mind would simply like some answers. Thanks again to you all for your support.
Annie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/26/2007 9:53 AM (GMT -6)   

Hey Annie,

Well I am so glad to hear of your MRI having no lesions.  That is great news.  I am not happy that you have no answers.  I am sorry your doctor did not discuss your MRI in more detail.  I don't know what to tell you.  Are you able to get a second opinion?? 

It seems as if you don't have MS but you are most definitely in limbo.  I searched and searched the internet for stuff on your small spaces.  I found some references to Parkinsons and Hunters diseases but mostly I found that those spaces were "idiopathic" which means that they have and unknown cause. 

At this point you need to hold onto that MRI and continue to document your symptoms in the most clinical way possible.  Record what you are feeling and when it started and try to keep it factual.  Try to record it so as to leave out your own guesses as to the cause and leave out the emotions and mental frustration that most of us experience also. 

I am sure you are both frustrated and relieved.  I hope you will continue to post and ask questions.  I have become fond of you and want to know how you are.  We teachers need to stick together!  Please keep us posted.

Love and prayers,

 

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 12/26/2007 10:02 PM (GMT -6)   
Thanks Gretchen,
you've cheered me up already!
Annie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/26/2007 11:19 PM (GMT -6)   

Hey Annie,

You are very easy to cheer up! yeah   Your positive attitude will carry you far.  I hope you are feeling better soon, but if you don't, we are all here for you.

Love and prayers,


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


moschops
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/27/2007 2:14 PM (GMT -6)   
Hey Annie,

My name is K and I'm new here...first, just wanted to say I'm really glad for you that your MRI didn't show up any serious problems. I hope that it has given you some solace from the worrying :)

Second, you mentioned 'very strong neuro-type symptoms' and I wondered if you could shed some light on those? I too have some very peculiar symptoms which could be attributed to a neurological problem and I just can't believe they're not serious. I think to know of someone else suffering in a similar way to me would really help me.

Perhaps you could PM me rather than post your symptoms here if you'd prefer?

Me? I have very bad dizziness, bad shakes, mild disorientation, mild confusion, and a general feeling of not being with it. Also had some changes in sensation, as in less feeling in my face and hands than usual. This has been going on for some weeks and I am seeing a doctor about it. Blood tests have been normal except for a slightly raised haemoglobin level (doc said no cause for concern, but concern I certainly have!). I would expect a trip to the neurologist may be next, as the doc suggested if symptoms persist.

I may have a similar dilemma to you, though, I'm more concerned about the symptoms and how to make them go away because they're affecting my lifestyle, rather than needing to know what is wrong with me. So, yes, if it all comes back clear, I'm not sure how I am to rid myself of these symptoms, whether real or imagined!

*hmph*

Anyway, best wishes,

K

Post Edited (moschops) : 10/4/2011 11:44:44 AM (GMT-6)


anniebooboo
Regular Member


Date Joined Jun 2007
Total Posts : 53
   Posted 12/28/2007 6:24 AM (GMT -6)   
Dear Keir,
Happy to share my miserable details with you!
For about ten years I have had a large numb section on my right back (thoracic area) which does not extend past my spine. I recall that when it first started to affect me, it produced a burning and tingling sensation that nearly drove me mad. I did see a neurologist about it but no tests were done. I have felt fatigued for years but attributed this (and still do) to a busy lifestyle (3 kids, full time work, etc). about 15 months ago I began to feel that my right arm and leg had a heavy feel to them. In fact, these limbs become exhausted doing the same work as the other side of my body. This is not normal and plagues me still. For example, walking up stairs, only my right leg feels excessively tired, like it could collapse. My left leg feels fine. Same problem with the arm - I now brush my teeth/hair left handed. My lower extremities buzz at times. I don't know why. It just feels at times that my feet/lower legs (both) "purr" like a cat does. At times I was able to cause this sensation by bending my head and putting my chin on my chest. This symptom hasn't occurred for a couple of weeks and it never really bothered me particularly. After exercise, (not particularly excessive - ie walking fast for fitness) my muscles tingle for about an hour. It is a prickling, not unpleasant sensation. I know this is not normal. In my younger years I was a talented, quite fit sportsperson playing competitively (I'm also a PE teacher) and I have never experienced any post-exercise sensation like this before. If I exercise hard, my muscles shake and tremble uncontrollably. I have various sensations that travel over my back, on my lower legs like insects are crawling there. I have tingling down my right arm from the armpit to my little and ring fingers. In the last two months, my left hand index finger twitches uncontrollably on and off for minutes at a time. You can see the action start high up in the muscles/tendons of my wrist. lately I feel dizzy on and off and slightly disoriented.
A long list isn't it? I am not imagining any of this.
Yes, I believe in many ways I have become fixated on finding a "name" for what I have. The dr told me that I would just have to live with my symptoms, but to come back if I felt worse. From my limited knowledge of MS and its diagnosis there is nothing else that he can do, except probably a lumbar-puncture (not sure if this is correct). It would probably come up clean anyway. Because I am not suffering with any pain, I think I should just count my blessings and move on. Some symptoms are hard to live with, but hey, who hasn't got issues in their life? I don't want to seem like a dorky doctor-shopper or some kind of hyperchondriac and annoy any further doctors with my symptoms, but gee, I wish I had some answers.
Does any of this sound familiar to you?
Annie

moschops
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/28/2007 5:27 PM (GMT -6)   
Hi Annie,

I can relate to some of it, but not all. Thank you so much for sharing, though, I really appreciate it. I'm sorry to hear you're having such a tough time.

Anyway, I wish you well.

K

Post Edited (moschops) : 10/4/2011 11:45:14 AM (GMT-6)

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