I was married for 13 years when I got my diagnosis. We'll be celebrating our 40th anniversary in June.
While indeed divorce can be high when one of the partners develops a chronic disease like MS, I personally suspect that there were other problems in the marriage prior to a diagnosis, and the MS is the "straw that breaks the camel's back", as the expression goes.
Certainly not everyone who gets MS gets so severely impaired that they become a major burden on their spouse or family. MS is not a terminal illness, and many folks continue to go about their lives for a very long time with minimal or manageable disability. I've had MS for 25 years, yet live in my own home, cook, clean, do the laundry, take care of my husband's needs, travel, shop -- from a wheelchair, to be sure, but otherwise I live a reasonably normal life. I'm very sorry you've had to quit your job. Have you applied for SSDI?
Hi Shrek ......I read your posts, and the one thing that I did not see - were MRIs....have you had any done. It took three MRIs before it became conclusive that I had MS. the first two did not show any, but then I went during times when I was feeling good, and the bod had a chance to repair the myelin - and with that did not show any lesions.
When I went for the last MRI, my hands were numb and tingling, and was experiencing the electric shock feeling when I bent my head forward. this time lesions did show up, it was quite plain and clear that I had MS...
I know what you are talking about when you say confusion, that brain fog feeling, extreme fatigue - etc....now that I look back I have had this for quite awhile, and I remember asking myself once - why am I so tired all of the time. When I get really tired, it feels like my whole body is shutting down - my head gets foggy, cant think straight, loose my cognitive skills, and my fingers seem to tingle more than ever.
I am fortunate enough that I can take breaks at work, and when i feel myself shutting down, I just close the office door, and close my eyes for awhile, sometime even nap!!!!! I nap instead of going for coffee in the morning and afternoon. this seems to eliminate that crushing - I can't think straight anymore" symptom. Fortunately for me, my job is very supportive, and allows me to have some down time - which is sooo great..
Hi there, thanks for the post, and I am glad that your symptoms are fading away. But with relapsing - remitting MS (if in fact this is what you have) this is exactly what happens - which on the flip side is good, as again if you were to have MS, it is in the early stages.
I had three MRI, it was only the last one that showed the lesions on my spinal cord and brain stem. The other two times that I had them, I was actually feeling pretty good, which now in retrospect, tells me I was in remission, and when in remission, this allows time for the myelin sheathing around the spinal cord to repair, and hence, no lesions would be present.
When I had my last MRI, I was (and still am) having an MS attack, making my hands and toes goe tingly and numb. This time, because the MS is active, the lesion were present.
I would not only press to have another MRI when you are feeling symptoms again, but this time not only the head, but down the spinal cord as well.
It is my understanding that most people who have MS, have lesions that show up on an MRI consistantly. While there may be some repair or re-myelination during remission, usually damage caused by MS is permanent as far as an MRI is concerned. My lesions show up whether or not I am flaring. If I am flaring the contrast dye reveals them as very bright spots. If I am not flaring then those spots are still there but not as bright. Indeed, sclerosis means scar.
The sheath is a fatty covering of neurons. location of lesions is considered important in diagnosing MS. Neurons that are damaged by MS are usually in the white matter of the brain or spinal cord and not normally in the gray matter. The white matter neurons are responsible for sending messages to and between gray matter portions of the brain and spinal cord.
Love and prayers,
Good morning and wow, Gretchen.... you certainly are a wealth of information.
Have a nice day
Good morning, again, I must add that I had a total of three MRIs, it was not until the last one that any lesions showed up.
My neurologist advised me that this was common, especially if it has been a long time in between relapses, as during this time, the body has time to repair the damage that has happened to the myelin sheating.
When I went for the last MRI, I was feeling not so good, tingly, numb, etc, and this time, and the first time, lesions showed up - 10 of thm to be exact. A year before, there were none.
Have a nice day,
Hi there, nd good morning - and as per above, that is why I think it is important to persue yet another MRI down the road, to see if anything does develope.
I am like you, I had the symptoms way before anything showed up on the MRI - and then all of a sudden, there were the lesions.
so just because your MRI was clear the last time, does not mean that it will be clear the next time.
Have a great day
I've said this in another thread, but it probably bears repeating here:
Indeed, MRI's are only a tool. I've seen very often (and it's happened to folks here) that ONE doctor looks at an MRI and sees nothing; another doctor looks at the same MRI and sees lesions. Or one doctor sees "something" and calls it "inconsequential"; another sees the same "something" and decides it needs further investigation.
Because MS is still a "diagnosis of exclusion" - meaning they have to rule out so many other things before deciding on it as a diagnosis, and because there are so many other disorders and diseases that mimic MS...
a doctor has to take the results of the MRI and combine that with what he knows about the patient, about clinical signs the patient has, about symptoms the patient has reported, combine all that with other test results (like spinal taps), to come to a diagnosis. Which is why it is indeed, sometimes, a long process, and a lot of "wait and see what develops", before a doctor will put a label on it.
Hi there, in my case, the MRI's are all viewed and then findings reported by the MRI Techs, and then the images and the written report is sent to the Doctor. In my case, all three MRIs were view by the same doctor - and the last MRI - lesions were detected.
It was also the same doctor (my neurologist) who suggested that this is not uncommon, as if the MRI is taken during a long period of recession, there can be enough repair done to the mylein sheathing that any damage that was there is now not detectable.
Annie, in my view there is a huge difference between being a hypochondriac and pursuing answers to health questions You should always feel comfortable questioning your doctor about decisions made on your behalf...nor decisions not being made. You should always ask for clarification, and if you don't understand, ask again. And if you don't feel the doctor is listening to you, or answering your question such that you understand, then it might be time to seek a second (or third or subsequent) opinion.
And you should be sure you understand what the doctor means when he says something. Like folks will often feel like they're being ignored or "brushed off" if the doctor says something, "watch and wait and see me in 6 months" -- when in fact the doctor is expecting indeed to see the patient at least at the 6 months time, but sooner if there is something wrong.
And sometimes doctors don't have the answer immediately, and do need to see a patient over time, before enough signs and symptoms occur to be able to figure out what's going on.
And of course people want doctors to fix whatever is ailing them. And the hard reality is, there are diseases and disorders that cannot be fixed. MS, and many other neurological problems, aren't fixable.