Look at the blue, horizontal bars near the top of the page. The second one down on the right - you will see the word "chat". Click on it. When it opens you will see a drag down bar and a sign box. We have our scheduled chats every Monday(6 pm central). You could try it out if you see others on. Just choose the "room" they are in and go and say hi. Try it and let me know if you have any trouble.
Love and prayers,
I am so sorry you are going through this right now, and truly hope that your tests do not show anything serious. I was thrown back into limbo after 9 months on Copaxone. I found it very hard to have my “answer” taken away. Like you, I certainly do not want to have MS, but going back to that unknown has been difficult.
I am very fortunate not to have such serious conditions as possible alternate diagnoses, and can only imagine how much added stress that must be causing you. I can definitely relate to dealing with docs with poor bedside manner and too many patients though. The neuro who questioned my ms is the very same one who told me my cis had moved into ms, and pushed me to start copaxone…go figure. He was quite rude about the whole thing, and I was devastated when I left his office. Luckily, he did refer me to an ms specialist who seems to be a lot more knowledgeable and compassionate.
I am so glad you will return to the larger hospital for a second opinion. Hang in there, and try and take your mind off of this as much as possible. I know that is much easier said than done, but as Shar mentioned above, the stress of worrying will only make you feel worse. My strategy for waiting on pending doc appts, test results etc, is support (communicate with people who understand and support you) and distract, distract, distract. While this is certainly not always effective, I do find it that it helps in my ability to deal with the unknowns and what ifs.
I hope to see you in chat sometime.
Good for you for taking control of your worry...that is such a great attitude to have! I’m so glad you have such a supportive friend too. Please do continue to post here, and we will try and offer you as much support as possible. I’ve met some really great people on this site, and don’t know how I would have gotten this far without them.
Yep, you are right, I was the one who posted the new info on Copaxone and CIS. I’ve been off Copaxone and symptom meds since August; sorry that wasn’t clear in the CIS post. What I meant by my comment was that I’m happy I was on Copaxone for some of the time I’ve been sick, as it does look like at a minimum I do have CIS. As for what happened to me, my continuing issues, etc…at this point it’s so long and complicated I don’t know where to begin, lol. Below are the posts I made about what’s happening…feel free to read any or all of them.
I don’t know how helpful this information will be, and as you know this stuff is hard to explain. My leg symptoms began with severe pins and needles in my left foot. My ankle felt weak, and began buckling when I would initially put weight on it. The pins and needles then turned into hypersensitivity to the point where I couldn’t stand my foot touching the sheets night.
I would also get these abrupt shocking sensations that made my foot contract…these happened many times a day and night. The extreme hypersensitivity stayed below my knee, but I had “altered sensation” into my thigh. While I still have some issues with that leg/foot (slight weakness in ankle, tight feeling, pins and needles, spasms, etc), it’s nothing like before. Weird stuff, huh.
You also asked about my experience with clonus on another thread: When the neuro pushed my left foot down, I remember thinking whoa, what in the heck was that? Apparently, it was 3-4 seconds of clonus (per my medical records). It’s very hard to explain how it felt, but I would say it’s kind of a twangy bouncy sensation. Maybe someone else will have a better description?
Hang in there and let us know you are doing J