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petpuppy
New Member


Date Joined Jan 2008
Total Posts : 7
   Posted 1/10/2008 7:35 AM (GMT -6)   
Hello all,
My primary doctor suggested this site. I was dx with MS in '99. I've been to many neurologists. My current neuro does not seem to understand the severity of my condition. Basically I feel until I am in a wheelchair he will keep saying 'you look good'.
I am trying to find a top neurologist in Philadelphia and would appreciate any assistance with this.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/10/2008 11:04 AM (GMT -6)   
Hey Petpuppy!

Welcome to the board! Wow..u'r doc suggeste this site? That's really great to hear! I"m so sorry to hear u'r current doc isn't fulfilling u'r needs tho...sometimes i think they give u a dx and then get complacent. I"m sorry, i'm not able to offer any help in the form of a doc suggestion, but i wanted to come welcome u to the site and let u know we're glad u'r here! Tell us a little about u'rself. What med's are u currently using? We look forward to getting to know u!

We have live chats on Monday's at 6:00pm (cst) each week. I hope u'll be able to join us sometime. We have a lot of fun while at the same time getting to some helpful info for all our members. Take good care of urself and let us know how u are. Again, welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 1/10/2008 11:28 AM (GMT -6)   

Hi Petpuppy,

 

Welcome to the board. Have you tried contacting the National MS Society? I think they have a list of “suggested” clinics/neuros, so they might be able to give you some names.

 

Best of luck in your search! I hope you are able to find a more responsive and knowledgeable neuro…there are good ones out there, but sometimes they are hard to find.

 

Sunny


petpuppy
New Member


Date Joined Jan 2008
Total Posts : 7
   Posted 1/10/2008 2:12 PM (GMT -6)   
Thank you for the welcome. I am 44 years old and still work full-time. A few years back I did change jobs to work closer to home. Since they its been a struggle and I'm not sure how much longer I'll be doing this because it takes 100% of my energy since my ms is progressing.
The medications I have tried are Avonex; however, it caused liver damage which took over 2 years to heal. It also damaged my thyroid and now I have to take synthryoid.
Copaxone- after 2 shots caused an allergic reaction and I ended up in the ER to get the swelling of my eyes down along with hives.
Currently I take prednisone for flares; however, I am getting them approx every 3 months. I had heard from another neurologist that a lady who kept getting flares everytime she tapered from prednisone tried Cellcept and it was working for her. I suggested this to my neurologist and I have the prescription but scared to take it. I spoke with my primary doctor last night who is concerned about the side effect of cancer of the lymph nodes.
For now at least I have prednisone and I know its helped so I may stick with that.
I have been to the MS center in Philadelphia but found the doctor pretty much talking to herself b/c she didn't seem to hear my complaints and concerns.
Thank God for my primary doctor. If not for his support I would be crushed.

Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 1/10/2008 6:29 PM (GMT -6)   
HI Petpuppy,
Wow that stinks that your neurologist isn't taking your complaints seriously. Nobody knows how we feel, except another with ms. I am in PA also and i went for a second opinion to the Hershey Medical Center. The Neurologist i saw was fabulous, His name was Dr. Tenser. You can locate the info on the Hershey Medical Center website, or just search his name, it comes up. I really liked him, however to have him as my neuro the trip to Hershey is a little too far to travel every 3 months. I do like my neuro, and he actually did his residency w/ Dr Tenser, so i feel confident when he (Tenser) said i am in good hands with my neuro. Check it out, i dont know how far from hershey you are, but its worth a shot. Also i was referred to Lehigh VallEY Hospital to their MS center, however couldn't get an appt at the time. It's supposed to be real great there too. Well, good luck with everything.
Take care,
Lynn
Dx Dec 06, Rebif, 44 mcgs 3 x wk, Baclofen, Cymbalta


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 1/11/2008 10:13 AM (GMT -6)   
i have seen dr. g. tatarian at jefferson for a few years. he is most responsive and explains things well.

dr. gabriel tatarian, do, llc
suite 821
1015 chestnut street
philly 19107
215-922-1801
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