I went to my appointment after my neuro ran all the tests that a Reumatologist had listed. He combined the larger hospitals list of things they suspected might be a second condition with MS, and put them with the Rheumy's list of labs that he said was what was wrong. He had said I did not have MS but a rare atoimmune def syndrome (not acquired), that has all the neuro's fooled.
It was very scary and stressful. Then I got the call from neuro's office that my primary care physician would be faxed the results and go over them with me.
Yesteday she (shes a sweetheart) went over all the results and this is what followed:
(on hospitals concerns)
I'm def in Vitamin D. I asked her my level as Id done some looking around and <8 is extemely low, can clinically present with hip pain and deep bone pain. I asked her my level and she said it was 8.3! I told her that the hospital had told me that it could decrease MS symptoms and asked her if instead of osteo this could be what is causing my deep bone pain (hips have hurt for about 3 months). She said Abolutely!
She put me on supplements of calcium and vitamin D. the D is 800IU. Your not supposed to ever go that high without a doctor as it can be toxic.
Next thing was: Vitamin B12 was too high. She said that was fine. It was showing too high because i get the shots. She still wants me on them and says it would only of been a worry if theyd not be giving me the shots and Id shown too high.
Next was: Methylmalonic Acid, She said Totally Normal (and I praised God)
Next was: Homocysteine serum: She said this was hard to explain but that i was deficient and it was what needed to be normal in the body for prevention of blood clots. Folic Acid is what it boils down to. I had been on it and then had been taken off of it. She says I definitely need it now.
Next was: C-Reactive protein (also on Rheumy's list)-Totally Normal (again I praised)
Then she came to his list (Rheumy's)
Ana: Normal (praise)
Anca: Normal (praise)
Complements 3, 4: Normal (praise)
Esr (sed rate): Normal (praise)
however, she noted that they'd left off the circulating immune complexes lab. She rewrote the script for that and said, If this comes back normal also, he's not even in your world, and your certainly not in his!
Ive been bleeding so i stopped by gyn's after a fast phone call , they are putting me on meds to stop or slow the bleeding x 3 mnths. If it continues then they will use a newer procedure of removing the endometrial lining (instead of a hysterectomy).
I'm so very thankful to God that the hospital even mentioned Vit D to me. Id of never known otherwise of how deficient I truly am. Vitamin D isn't as easy to get in your diet. You can get it through some orange juices, cereal fortified with it (not always consitent with their labels), some yogurts fortified with it, Oily fish such as sardines or codliveroil pillsk, eggyolk, and Of course Milk. The main thing is sunshine. Since MS patients tend to run heat sensitive this is becoming more and more of something all researchers are looking at. I had been eatinig sardines (yuck) , eggs, orange juice w/D and taking a vitamin D supplement at time of testing. So I was very low and unable to raise it with my diet.
I'm hopeful for less bone pain now. Especially with Esr being normal.
After this last test of Cic , this suspicion will be laid to rest. I do ask that all who pray , say a prayer that this checks normal also.
Every day brings us closer to what we reach for .........in all things.