Inspirational Stories: My Thoughts

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Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/15/2008 9:58 AM (GMT -6)   
Good morning to all. Ive gone into overtime since being dx to learn as much as I can, about this mysterious disease, etc - and I really have learned that everyone is so much different - by ways of symptoms, and the degree by which it alters one's physical abilities.
 
Ive also learned not to take to heart what every one says until you know the entire story - again, it depends on the individual person, and with that, just because one person has this or that, or gets this or that, does not mean that you will follow the same trail.
 
I am on copaxone, and I have heard everything to very good things coming out of it - to not very good things at all.  So I have learned not to ask people "so how is Copaxone working for you" as again, this is an invalid question as what might be working excellently with them may not be the same for me.  I have to guage my own journey, and celebrate any achievements that I might ahcieve as an individual person.
 
Because Alberta, Canada has been deemed the No. 1 location in the world where the chances of getting MS is 1:300 - this does sit one down to think what the heck is going on here - and why. One of the local radio stations had a 2 hour special last week - called the Alberta Disadvantage - and it covered all aspects of the disease, research being done in the province, and personal stories as to how this disease has or has not effected them.
 
Yes, of course there were inspirational stories, and then some doom and gloom - well I know in my own mine what can happen - and how it can entirely set life upside down - but listening to this over and over again - really does make it hard to keep our head up - and strive to put your best foot forward each day - it was almost listening to a story that told you that you were defeated before you even started.
 
On the inspirational side of things - the stories gave you a view of hope, a dispositon of wanting to put your best foot forward, and strive to achieve the best results in life that you are able to achieve - without the false promise of cures, or misappropriate successes with various drug therapies...
 
So I am all for the inspirational stories - it make me feel good - and when I feel good, I have a stronger foot hold on life, and a greater disposition on liife in general. I end up saying things to myself as - yes I have MS - but I could have .........Thank god I got it at 53 not 23..... thank God I am in the R/R stage, etc etc..... thats what inspirational stories do for me - I tend to think more postively about myself, the disease and the world around me .....
 
There is my two bits......Inspirational storys reminds me that I have MS, but MS does not have me.........  Gary
 
(Mod. Note: I added a subject to ur thread.)

Post Edited By Moderator (rhondab) : 1/15/2008 2:32:33 PM (GMT-7)


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/15/2008 10:10 AM (GMT -6)   

I wanted to add this post th Kiera's thread - her first inpirational story - however it ended up here.

I donot know how to move it over to that thread - help!!!

Thanks, Gary

 

 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 1/15/2008 11:24 AM (GMT -6)   
Tuesday noon
 
Hello Gary:
 
We are a bunch of really nice folks here...right everyone?
 
Now I live in a suburb of Detroit MI...and MI has a huge MS population....and as such, many top flight neuros who know the full deal about MS.
 
My neuro....a REALLY, REALLY big time neuro in the MS world, has said that Copaxone is the best drug.
 
When I was dx'ed in 1987, there were NO MS drugs.
 
Now, there are at least 4 to chose from.
 
Great Luck.  John
 
PS-are you anywhere near Edmunton...home of multi- Stanley Cup winning Oilers?

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/15/2008 12:29 PM (GMT -6)   

Hi John.....thanks for the post - and I have been told the same thing about Copanxone. Im licky where by the dx only took two years, and then was put on copaxone immediately. Only time will tell, but I must say that after a month of being on this - my fingers and the electric shock thing seems to be better - dont know if it is just in my head (positive thinking) or that I am starting to feel the effects of the treatment.  It really does not matter which is true - Im feeling better.

Edmonton Oilers, yes I live in the heart of Edmonton. I just went to a game on January 7th - where Edmonton beat New Yrok Islanders 4 - 0. If there as a game to go to - I guess that was the one.

Take care,

Gary

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