I suspect there is another issue here too -- the steroids can really "play" with your emotions, one of those negative side effects that aren't always mentioned. They can cause you to feel very weepy and emotional, and when you're already upset (understandably!), they can cause you to lose emotional stability.
And of course MS itself can cause emotional lability -- loss of emotional stability. So in combination, you can feel really "out of control of your emotions" until you stop the steroids.
I'm really sorry..but no, you can't control what is happening to you. If indeed you have MS, then the myelin is being destroyed, and it's destruction is what is leading to your disability -- the numbness, tingling, etc. The steroids (and other meds) will treat that..but not make it go away entirely, nor (of course) cure the MS.
Yes, the fatigue can knock you (and me) to the floor. Over time you'll learn how to balance that with what you need to do, and want to do, and it'll be easier. But it's very hard in the early stages to achieve that balance, I know.
I’m so sorry you’re going through this right now. As Uppity said above, steroids can really mess with your mood. Hang in there, and know that some of your upset could very well lessen once the steroids have gotten out of your system. I’ve only taken oral steroids, but they made me feel pretty out of control emotionally. I actually did have facial pain start a few days into the steroids…I’d totally forgotten about that until reading your post. My pain basically felt like the muscles in my face were tight to the point of turning into one long cramp, if that makes any sense.
Also, it’s very common to be scared and emotional during a flare. Please don’t be hard on yourself for having these feelings. Do you have someone who can go with you when you see your neuro? This kind of moral support might help keep you more calm and on track during your appointment.
Please let us know how your MRIs go, and you are doing.
Hi there - going crazy - I was thinking so for a very long time. Everytime that I went to see my doctor, his only response to me was that I was stressed out - and that was causing me the symptoms. I went and seen a neurologist, and he told me the same thing. I went and seen an ear specialist when I was having inner ear problems, and told the same thing. I went and seen an eye specialist, when my eye was acting up - and again, told the same thing. So after awhile, I started to believe that maybe all of my symptoms were anxiety related.
Did I eventually end up with lots of anxiety - I sure did - as I was not getting any answers, and was worried to death as to what was wrong with me.
I finally convinced my family doctor, that I get the symptoms, and then I would get anxious, not the other way around - which is how anxiety works. But when he agreed that this was the case, he just threw his arms up one day and told me - I don't know what is wrong with you. Even the eye specialist told me she did not know why I was not seeing properly, even after telling me the reason I was having double vision was due to a damaged nerve !!!!!!!!! Ya think!!!!!
So I understand the frustration of going in with the predispostion that there is something wrong pchyologically, and not medically. But after two years of not taking no for an answer, and thru the grace and understanding of the physical therapist I was seeing, finally got the dx everyone was overlooking - MS. It was actually a tremendous day to learn what was wrong - and then to have "them" take me serious now. My family doctor's approach to how he handles me has improved ten - fold.
Have a nice day - Gary