LOOKING FOR HELP

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adjsmomma
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/21/2008 12:56 PM (GMT -6)   
I am looking for some info.  Over 10 years ago I had lots of problems with my arms and hands, they would get numb and my hands would feel like cement blocks upon waking in the morning.  This continued for months - at the time I had emgs, mri's, spinal taps, etc.  to rule out cancer, ms, etc.  Everything was negative.  It has occurred here and there over the last decade, never requiring medical care. 
 
A few months ago I was hospitalized for numbing of the face, drooping of the right side of the face, dizzy, disoriented, numbing in left arm..  they did CT's, mri's and blood work to rule out stroke, ms.  Everything was negative and they said it was a vestibular disorder - inner ear causing all of the symptoms.  Ok- I went to vestibular theraphy and felt good after several weeks. 
 
Now, late week it all started again.  Face numbing on the one side, dizzy, disoriented, feel like hearing is off and my body is actually feeling very strange.  My legs get like jello sometimes, my arms get weak and tingly, my neck is just weird feeling, not very painful but extremely weird.  It is so hard to describe.  Anyway, today and yesterday I woke up with the numbness in my arm and hand feeling like a cement block.  I can actually hit my hand on the wall or table and not feel it, it even feels hard to me.  After moving around it goes away.
 
Anyway, I now am jobless and causing problems for my family due to this.  My doctor told me (last week) it could be early MS, but that it is too soon to decide.  This is affecting my life so bad, I have two small children and it is not easy!
 
Has anyone had these symptoms that led to a diagnosis of MS and how did you go about getting diagnosed?  I just don;t feel well and it so hard to describe - forget about being exhausted, I barely have energy to do the day to day chores around the house.
 
Please help, I go back to doctor tomorrow and I am not sure how to press the issue that I need to find out what is wrong, I can only sit and wait for so long without trying to get tests done or something.
 
Thanks.
 
A

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/21/2008 1:14 PM (GMT -6)   

I'm sorry you're struggling with these health issues!

You say you are going to a doctor tomorrow. Here's what might be helpful:

Make a list of symptoms, going back as far as you can remember.  Try to list them in order of "importance" -- how they affected (or now affect) your ability to go about your daily business. List the most troublesome first. Also try to see if there is any connection between your symptoms and something external...like, "heat and humidity are very hard on me; I can't be outside for more than a half hour without feeling very weak and disoriented."

Make a list of doctors you've seen in the past for these similar symptoms..and what they've done to try to help you (list the various tests, MRI's.) Include the doctors names and addresses so your current doctor can follow  up and get those test results, if they feel they need them.  It sounds like many of your tests are old...even MRI's done just a few months ago can be "old" as stuff can happen pretty quickly in the body. 

Give your doctor copies of both lists.  That way, if you're not able to talk through the list yourself (doctor visits are short, these days!) he'll at least have it in your file to read some other time.

It's pretty common for doctors to want to "watch and wait" to see what develops in a patient over time.  It's important for you to be sure to be in touch with the doctor regularly if new symptoms come up, or old symptoms worsen dramatically.

One test you didn't mention which might be helpful is a spinal tap, or lumbar puncture.  While it is helpful to diagnose MS, it can also point to other problems that could lead to other diagnoses.

I hope you get some answers soon!


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 1/21/2008 3:58 PM (GMT -6)   

Welcome Adjsmomma,

 

It sounds like you have a lot going on, and it’s great you’re going to see your doc again tomorrow. I know it can be really hard to wait and wonder when symptoms are affecting your ability to function.

 

Have you considered asking your doc if another round of vestibular therapy would be helpful, since it resolved your symptoms before? I know that isn’t an “answer,” but maybe it could give you a little symptom relief while your doc continues to investigate. Also, if your doc is concerned about ms, he/she can refer you to an ms specialist who can evaluate you further.

 

Hang in there, and let us know how your appt goes.

 

Sunny

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