Residual got me this time

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Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 1/23/2008 5:30 AM (GMT -6)   
I was "coming out"  of epidsode that had been very full of spasticity. As it eased and good days came, each night i was woken with spastic pain. It was in my elbows, all over really. Odd cuz during episode it left me alone at night  but the past 3 nites it comes without fail. Elbows may not sound like a spastic  area bu i know what im referring to and once awake from pain yes baclofen stops it..Shortening,,aching in different places its muslces for sure. Just hard to explain it.
 
I really never expected residual night time things unless id had nightime probs during epidsode. So no matter how great yesterday was i knew, or thought i did, that theyd come back last nite.
 
they did.
 
makes for not alot of sleep for shizzle!
 
 
thanks
 
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 1/23/2008 8:01 AM (GMT -6)   

Hey Kiera,

I am sorry to hear that.  That stinks for sure.  I have had some spasticity in and around my knee so I don't think joints are exempt from spasticity pain.  You could try taking your baclofen right before bed and see if that takes care of the problem before it starts.  Don't wait for it to wake you.  Once awake, are you able to get back to sleep??

Good luck.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 1/23/2008 8:23 AM (GMT -6)   
yes and no as far as sleep. Unfortunately me dream incorporates the pain and in dream im trying to stop whomever is hurting me,,therefore i fail to wake up long enuff to get the baclofen, In and out all night. Ur right as far as taking before bed. Have to check with doc as i also take anti anxiety before bed. I dont want a reaction of the two yanno?

Your so right, the spasticity squeezed around bones. Ive learned it fairly well, and its immediate response to baclofen proves it even further. I hope this leaves. Some residuals have after time, others have not. I pray this is one that goes.

Im also geting overdefined muscle in what i thought was osteo knee (doc had said that, but later exrays showed no real damage inside of knee) so the muscle is just there, overdefined. It leaves on occasion but no more pain with that one for now.

thanks for writing back

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/23/2008 9:17 AM (GMT -6)   
Spasticity can "travel" all over the body, unfortunately. I always have it in my legs, but also occasionally in my right shoulder and back, which can be real disconcerting in the middle of the night. I found that a memory foam mattress has made a tremendous difference in my night-time comfort. (I don't have that actual brand...WAY expensive!...but found a "knock-off" version on Overstock.com). I discovered how comfortable they were..and how much better I slept...when I happened to stay at a motel that had them (Courtyard by Marriot is one chain that seems to have them on their beds). So maybe a weekend "romantic get-away" -- it IS Valentine's Day soon! -- finding a motel that has them, is in order. Sort of "try it before you buy it". Maybe that'll help.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 1/23/2008 12:42 PM (GMT -6)   
Awesome idea! Thanks tons. I will also look them up at overstock as i do know they are or can be very expensive. Valentines day would be a great way to try them out.



thanks so much

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/23/2008 1:12 PM (GMT -6)   
There is also a foam "mattress topper" -- the really cheap ones are 2 inches thick; a more expensive one a bit thicker -- that are reasonable, and might be an alternative. You'd have to check to be sure your old sheets would fit over both your mattress and the "topper". But that might be something to try first, too.

I hope you find some comfort.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 1/23/2008 1:51 PM (GMT -6)   
wow thanks, my hubby said he saw those. Think ill give that a shot first which will also allow some time to see if indeed this remains forever or lifts up. Ive had some residuals go away for 6 months to return, ive had some stay the whole 9, and ive had some that i thought were residual (only symptom left behind extra)..but turn out in a few weeks vanished. I'm sure they visit again though.

I tend to think of MS as a stuck up *** lol, who brings friends for tea parties and drop's off her unwanted friends. She always says she will be back to pick them up but 9 months later the only thing that happens is she brings more guests.


The Tea Party (my and my ms) lol. Who knows a book might not be a bad idea. Though i lack the skills clerically.

One day i hope that they invent the truck to pick up the unwanted guests. Until then im not serving them nuttin haha.

Other than a shot or two of what they don't like.

Will be looking for the topper and sheets to fit if needed.

thanks alot

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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