LIFE EXPECTANCY WITH MS

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pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/25/2008 10:48 AM (GMT -6)   
Hello all, wow as what I would call myself an MS veteran. A question was asked to me the other day...does MS shorten ones life? I answered I would think how bad you have it and which form if you are relapse remitting one day it could slow you down more..Chronic progressive could lead to other complication tho I am sure. My question  is MS is not a teminal disease it is chronic.so does the age at which you were dxed does that play a role? Ihave been going around with it for 24 yrs. and yes it has slowed me down but i dont feel it is going to cut my life span.So any feed back from you will help me answer my friends question. i know there are ppl out there with a better answer. Thanks........ Barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/25/2008 11:19 AM (GMT -6)   
Hey Barb

No, MS as a disease does not shorten u'r life span. It CAN slow u down and lend it'self to other complications which, in turn, can lead to shorter life span. There is something to the age at which u were diagnosed related to the possible severity of the disease. I THINK the younger u are at diagnosis the more severe they expect the disease course to run, but either way, it's no pic nic as u know better than i. I hope this helps. I'm sure others will be along soon to either correct me or give further details. Good question!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/25/2008 11:31 AM (GMT -6)   

Generally a "rule of thumb" is that MS *may* (operative word, there, "may") shorten your life span by 6-7 years.  (joke to follow): So if, before your diagnosis, you've figured out just how long you're going to live, back that up by 6-7 years, and you'll be on target.

In other words...maybe shorten your life, some. And as you identified, folks with more severe MS, with chronic-progressive or progressive MS, aren't as fortunate..their lives will indeed be shortened. 

I think these days with the disease-modifying drugs, those estimates should change, as many of us "old timers" (I've had MS for 25 years myself), even starting late on the drugs (I started 15 years ago), are doing better than before those drugs were available.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/25/2008 1:08 PM (GMT -6)   
Thanks uppity....i appreciate the feedback..an rhonda i didnt think it shortened it but it got me thinking when i was asked. Like I said I hve been on this ride for 24 yrs, now..I was young when it all started...And I do believe in our lifetimes they will find the answers....Thanks again both of you....barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 1/25/2008 7:31 PM (GMT -6)   
Has anyone seen the MS magazine that comes out I think every other month, but I have one that has a story about Promise 2010. There is a group of doctors and researchers that are promising to have a cure by 2010.

I will read it again and update you guys when I do.

I agree with Rhonda, I think that having such a low immune system and who knows what else, that something that can kill you quicker will be easier to affect us than others. Like that ugly "C" word that has been dropping people.

We all just have to stay strong and stick together.

-Tertle
-Tertle


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/25/2008 11:22 PM (GMT -6)   
I saw that promise 2010 too but if you find it please share..thank you for responding. barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/26/2008 12:18 AM (GMT -6)   
Here's a link to some information posted on the National MS Society's site.
 
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/26/2008 6:32 AM (GMT -6)   
Tertle said...
Has anyone seen the MS magazine that comes out I think every other month, but I have one that has a story about Promise 2010. There is a group of doctors and researchers that are promising to have a cure by 2010.

I will read it again and update you guys when I do.

I agree with Rhonda, I think that having such a low immune system and who knows what else, that something that can kill you quicker will be easier to affect us than others. Like that ugly "C" word that has been dropping people.

We all just have to stay strong and stick together.

-Tertle

Two comments:
Promise 2010 is nothing more than an ad-agency slogan for a fund raising campaign for the National MS Society.  It would be great if a "cure was found by 2010"...but you all REALIZE that is just **2 years away***.  Unless something dramatic is in the pipeline, has undergone YEARS of testing and is ready to be released, a "cure" ain't gonna happen.
 
Having MS **does not "low(er) your immune system**.  It does **alter** the immune system. If anything, our immune system is OVERactive -- the immune system is SO active it is destroying the our own myelin, "thinking" the myelin is a "foreign invader".  The disease-MODIFYING drugs try to dampen that response, but don't LOWER our immune system.  So long as we otherwise take care of ourselves, through the usual health maintenance, diet, exercise, suggested for ALL people, we aren't at any greater risk of disease than other folks.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 1/26/2008 11:37 AM (GMT -6)   
I agree with Uppity. So many times people are misled by even simple ads on television for a medicine that an attorney says you can get money, if youve been on this med and experienced ..yadda yadda....so and so things. I asked my doctor about that and he said it's purely advertisement for attorney's and presribed one of the very meds they were pasting on tv. With no fear, i might add.

When an uncle of mine was dying from alzheimers, as you all probably know theyve announced over and over they have a cure, or on the very verge...so I asked my aunt who sat around the clock with him. She said, their doctor told her that every 7 yrs they come up for funding. So every seven years you will hear there is a cure. Purely for funding. I suppose in their world (research) it doesn't make them feel badly because this funding is what they want/need to try to find the cure. Nevertheless it misleads many.

On a happy note, I do totally believe that within the next 3 yrs , there will be alot of breaththroughs on MS. I do not think there will be a cure. Just as the Clinic I attended told me, they had found out a wealth during this past year. That included the vitamin D. They didn't tell me all they'd learned but they were very firm is saying it had surprised them with what all they'd found in 2007. I can look back at 2007 and see for myself that just the vit d alone was a great breakthrough for many. So i wonder what else they've found?

I think they are making alot faster progress now on MS than ever before (invention of disease modifyers was huge), I think this next year to 3 will reveal things that will "control", "lessen', "correct" certain ways of approaching the management of this disease. Uppity is right that it has to come through many tests/trials, even double blind studies before it can even be used. That being said, the reason i feel things are going to pick up speed is that there have been some very big trials and tests that have shown them alot in 2007, now they have to work on getting appoval. (the reason i said 3yrs also).

I think we are on the horizon. Not for a cure yet, although it maybe possible in our liftetime, i dont think it will be anytime soon. I also have my own opinion about if it will be in our lifetime, but thats just my opinion, ill keep that one to myself.
The horizon that im speaking of is new medicines, a new approach for treating what might possibly need antiviral type of meds. You will hear more about it as it gets closer to approval. Also the other things they hinted at, but unfortunately didnt't tell me. They are going for approval on those now, i simply dont know what they are though. The doctor's seemed more excited when talking about their progress as of late, that you could really tell it was hard for them not to blurt it out.

That excited me in turn. We will just have to remain proactive. Keep ourselves educated and also as healthy as we can.
Praying that new things for symptoms, disease altering things, increase in function inventions will all come very soon. I truly feel that they will.

The magazine is what it is. A magazine, and we all know that all magazine's hold ad's. Advertisements for alot of various things. They also are good though for their stories, some updates and overall keeping up with whats in the control trials right now.

Have a good day

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/26/2008 7:08 PM (GMT -6)   
Wow Kiera, good response......If you (some of us can) look back 20 years ago the abcr drugs were unheard of an yes we have progressed.tysbari has been re-introduced to us.Oh i dont dispute for a minute that a "cure" will be found in two years but like you said and we all agree on we are moving in the right direction..As for the cure in our lifetime I think maybe they will at least find out what causes it..It in my opinion will happen in our lifetime.....whether we benefit from it is another story but we have hope that the next generation of MSer's wont have to go through all that we did.Hopefully.As uppity said and what I went through 24 years ago without the MRI and modifying drugs we came along way.Uppitty knows how it was back in the day. barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 

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