New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/28/2008 4:34 PM (GMT -6)   
Hello again all was just wondering as we experience falls with ms.Which way do you fall? I have had 3 falls in the last week 2on the same day..I have a tendency to fall backwards..Twist my knees when I am able to get up my knees buckle.Just wondered if we all go backward or some go forward or if it is just a fluke? Good thing my head is hard......But truthfully I am getting tired of it all.If I could get either of my doctors I think I am going to ask for therapy. I need something I am tired of being on the floor. sad   Although I know it could always be worse...And I am thankful i still "walk".  barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 1/28/2008 5:45 PM (GMT -6)   
Hey Barb,
I am a knee buckler. I fall forward. It hasn't happen ed in a while, thank god, but when i was in the "big diagnoses" flair, i fell 3 times like this. I know which muscles are weak now so i really work on trying to strengthen them. You should go to PT, they will help you with that. Take care.
Love,
Lynn
Dx Dec 06, Rebif, 44 mcgs 3 x wk, Baclofen, Cymbalta


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/28/2008 6:50 PM (GMT -6)   
Thanks Lynn I really am going to try for therapy..Strange thing is i rode a stationary bike my legs locked....Overworked the muscles I would do what ever they tell me tho.It would be so nice to be able to just walk across the floor instead of laying on it....I am looking into a stairlift they are coming to measure tomorrow.You take care too....babr
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/28/2008 7:41 PM (GMT -6)   
If you are falling regularly, it really is time to think about using a cane, or for best stability, a forearm crutch. Falling is very dangerous..broken bones and other injuries are never a good thing.

I generally always fell forward on my knees...broke both of them, broke an elbow, finally broke my leg in three places, all with falls. And that was even with a cane and/or crutches...so you really should consider one of those.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/28/2008 10:22 PM (GMT -6)   
Uppity i have a rollater walker and a regular walker I have been lucky this far as for the bones..Although I do think I am getting worse physically....No new active lesions but my body I cant do half as much as I used too and it seems like it happened all at once.I am a little worried maybe i passed from rr to cp i dont know..But something isnt right.......And I do have a cane too. But I just dont have balance..Thanks for responding and thanks for letting me vent...barb.....wow i spelled it right this time haha
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 1/29/2008 10:04 AM (GMT -6)   
Tuesday
 
Hello everyone:
 
I am also a crumbler.  And each time I would go down, I remember thinking in my mind:
 
"...This is going to hurt...."
 
Thankfully have always fell on carpeting.
 
Am in the process of getting powere wheelchair.
 
John

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/29/2008 11:49 AM (GMT -6)   
Pokey, I'm really sorry.  Sounds like you maybe need to start thinking about a wheelchair, manual or power.  That opens up a whole new "can of worms", of course...but if you're unsteady like that even with the walker...the really safest next step is a chair.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/29/2008 1:11 PM (GMT -6)   
MY ultimate fear uppity..I just want to know if it has turned to cpor not...getting my stairlift thursday.....is a little hard on the pride but ya got to do what you can I guess.....barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/29/2008 2:33 PM (GMT -6)   
pokey79 said...
MY ultimate fear uppity..I just want to know if it has turned to cpor not...getting my stairlift thursday.....is a little hard on the pride but ya got to do what you can I guess.....barb

Why does it matter whether it is now considered "cp"?  Actually, it's much more likely that it's secondary-progressive, not "chronic-progressive". Those are different, and the latter is much more serious.
 
I've been labeled "secondary-progressive" for years now...at least a dozen, maybe longer. Hasn't affected my life much..I'm still living in my own home, I do use a wheelchair full time, I have an elevator to the basement where I do laundry, and a ramp to the front door..
 
but otherwise lead a reasonably normal life. Just different.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/29/2008 10:33 PM (GMT -6)   
Thanks uppity is just hard to swallow but i will get through it...I dont see the neuro til june so we will see but i feel myself failing an I always say who knows your body better than you.I was mistaken chronic progessive is worse..I knew that..Cant give up after all this time fighting....But this past week with the falls put me back a lil.......But as they say and I myself I will survive.. barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/1/2008 8:29 AM (GMT -6)   
Pokey,

Keep in mind that Ms is so unpredictable in so many ways . Sometimes attacks will appear that I'm losing so much ground, only to loan it back to me for awhile. However, i have to agree with Ms. Uppity. You most certanly do not need a broken hip on top of this. Could you imagine the rehab for that , if at all possible? I know its a hard thing, but maybe if you take it in a proactive sense, you'll feel more in control of the use of assistance. Ive just posted the question myself.

I fall backward (only twice) and wasn't hurt either time, space and time between were so long that I'm not as concerened about it. however when in attack i continuously find myself asleep (fatigued) and hanging toward the right. My husband found me ( dont ask me how ) hanging over the right side of my recliner. I dont know how i got over the arms even. But when i go to fall or become offbalance i tend to go to the right. I have had a few falls toward the knees but again, not many.

I really am amazed at how well a peson adjusts to a wheelchair. It looks more difficult to me than it appears to them. (not emotionally) but physically , i mean. I really dont think a cane is best for me as i do fall toward the right. I think the walker would help me hold the left side more balanced. Of course these are mere guesses. As of right now im only needing partial assistance, during flare and during mornings. Im not sure why but something about laying down seems to limit my spine ( a doctor explained this) and upon rising i begin to have numbess in legs. They are useless without the walls, which to me indicates a need for assistance.

does the neuro decide? How do you know which is best for your situation?...

I had always wondered about ms. uppity and secondary , given how long she's had MS, but as you can see Pokey, she's not noticed a world of difference. You maybe going through a big change or attack of sorts right now. It may subside, but I also doubt that its cps. I can remember experiencing vibrations in my spine that were daily and dramatic for over 6 months in exac or not. I no longer have those. They may come back but my point being nothing ever stays the same.

So lets hope that some of this resolves as your body attempts to repair and adjust! Please do ty to be safee and I think after the initial use of your new "friend" the shock of it all will leave. Most seem to do quite well with the use of chairs etc.

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/1/2008 8:33 AM (GMT -6)   
Hey Barb

YES...u WILL survive this!!! Hang in there sweet friend and don't let this keep u down! U are strong and capable and u will do great! Lean on us here too friend...this is what we're here for.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3524
   Posted 2/1/2008 5:20 PM (GMT -6)   

Hey Barb,

I am sorry you are experiencing this.  I get the knees buckling thing but I usually can catch myself before I am down.  I does sound like you need to get into your doctor.  Hang in there, girl.  Let us know how things are going.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 2/3/2008 10:20 PM (GMT -6)   
Thank you all so much..A cane isnt that much help to me as i tilt to one side I go the cane goes.I have just had a lot on my plate lately.Hopefully it will calm down and so will I.and hopefullyI will stay up-right. I have a dr. appt. with the family dr. this week I hope she will order me some therapy I need a lil more strength..I have a call into the neuro's office too I just have to wait and see if I hear anything back...I swallowed my pride and got the stairglide saves me soooo much energy.If I can get things settled things should calm down...Thanks again......I am so glad I found this site.....barb

diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/4/2008 9:44 AM (GMT -6)   
Hey Barb

If u'r doc doesn't order the pt...ask for it! If u feel u need some help in this area then u have to tell her. She doesn't know u as well as u do and she can only guess for the most part by what u tell her. Take care of u in every way...u just have to ask for and demand what u need sometimes.

I agree with Uppity on the chair thing. U may not need it full time (esp after the pt) but at least have one so when u do need it..there it is. I can't blame u for not wanting it, but ultimately u have to consider what may be practical for u'rself and u'r situation at hand. Take really good care and let us know how those appts go. I will keep u in my prayers.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 8:36 PM (GMT -6)
There are a total of 2,858,680 posts in 313,674 threads.
View Active Threads


Who's Online
This forum has 155261 registered members. Please welcome our newest member, uniqueme.
729 Guest(s), 8 Registered Member(s) are currently online.  Details
Tim G, Hateanxiety, Girlie, uniqueme, at wit's end, FLBeachgal, Poppie, WV Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer