When assistance in walking maybe needed , but am not sure

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Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/1/2008 8:11 AM (GMT -6)   
Ok, i think most of us know about the spasticity issues id been having. That eopide has ended or slowed. Nevertheless, residual nighttime spasticity remains and some day time fatigue. For example i slept form 9 am (this is after becoming fully awake)  until 3 that afternoon. Wow provigil surely didnt help that time.
Anyway the more questionable thing is, when im having these spastic attacks i cant walk. Sometimes its the turning of the ankle, the feet being dead asleep or the legs refusing to work. Now, im not saying that normal function doesnt come back, only that im finding there are times when its just not safe. Such as when its time to get my little son off to school and my legs aren't cooperating. Or getting my husband up for work.
 
I know i dont need a wheelchair, but when would a person know it would be a good time to get a small walker with seat attatched? A cane doesnt seem it would be worth it as its always in both legs at same time.
 
I cant believe how little movement i had during this past attack, but dont wish to rely on anything too soon.
 
Ive read that a primary goal is to PREVENT FALLS, ,if thats true, should i mention this to my  neuro. I def. wouldnt need it 24.7 but during spastic attacks and for residual (mainly mornings).
 
thanks,
 
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/1/2008 8:53 AM (GMT -6)   
Kiera said...
Ok, i think most of us know about the spasticity issues id been having. That eopide has ended or slowed. Nevertheless, residual nighttime spasticity remains and some day time fatigue. For example i slept form 9 am (this is after becoming fully awake)  until 3 that afternoon. Wow provigil surely didnt help that time.
Anyway the more questionable thing is, when im having these spastic attacks i cant walk. Sometimes its the turning of the ankle, the feet being dead asleep or the legs refusing to work. Now, im not saying that normal function doesnt come back, only that im finding there are times when its just not safe. Such as when its time to get my little son off to school and my legs aren't cooperating. Or getting my husband up for work.
 
I know i dont need a wheelchair, but when would a person know it would be a good time to get a small walker with seat attatched? A cane doesnt seem it would be worth it as its always in both legs at same time.
 
I cant believe how little movement i had during this past attack, but dont wish to rely on anything too soon.
 
Ive read that a primary goal is to PREVENT FALLS, ,if thats true, should i mention this to my  neuro. I def. wouldnt need it 24.7 but during spastic attacks and for residual (mainly mornings).
 
thanks,
 
kiera

You should indeed tell your doctor.  And describe it to him just as you have here.  Mobility AIDS are just that -- AIDS.  There is no "rule" that, once you start using a cane, or walker, or even wheelchair, for that matter, that you have to ALWAYS use it..just when your situation warrants it.
How do you know? You tell your doctor, and then get referred to a physical (or sometimes occupational) therapist, who will evaluate your walking, and advise you (and your doctor) about what AIDS might be best for you.
People think, for example, "a cane is a cane is a cane. I'll just go to Walgreens and buy one of those off the shelf." NOT a good idea.  Seeing a physical therapist can accomplish a lot: you'd know what is going on with your walking, which AID or TOOL would be most beneficial, you would be properly fitted for that AID (height, weight, strength of arms measured to decide which kind of cane or crutches or walker would be best). You'd learn how to navigate stairs, open doors (with a cane or crutches in hand), maneuver ramps, all that.
I went for a long time with what I called my "mobility closet". In there were canes (a couple of different kinds), forearm crutches, a walker, and a wheelchair.  When I got up in the morning I'd do an "inventory": What was I going to do today, how was I feeling, how did I feel just getting across the bedroom and into the bathroom (weak legged, stiff, unsteady, whatever), and then I'd pull out of the closet what I thought I might need.
Some days it was nothing. Other days it was just a cane. Sometimes it was one forearm crutch, sometimes both.  Sometimes it would be the cane, and the forearm crutches (which provide greater stability) would be tossed in the trunk "just in case". Sometimes it was crutches and the wheelchair would hit the trunk.  And so on.
A general rule of thumb: If you start thinking that "maybe I need some assistance with my mobility"..you're probably LONG past due for a physical therapy appointment, and indeed GETTING that assistance.  So call your doctor, talk with him, and see what might work best for you. (Insurance generally by the way will pay for these things, at least in part, if they are prescribed by your doctor, and not just "bought off the shelf".)

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/1/2008 4:02 PM (GMT -6)   
Amazing way that you have of explaingin things! Yes, i fit the general rule of thumb. The day i was confined to the recliner (literally) i thought of calling my neuro but then thought, what if it let's up suddenly? However, you've also covered this. It is needed for safety in the mornings. I'm not sure why but each morning i awake I get out of bed to discover my legs are numb from the hip down. I refer to this as "wall walking" as i have to hold the walls until i get sensation back. It doesn't last a long time---altho it feels like it does.

The longer time frame is during the spastic attack, that seems to be off and on all day if not all day on the most severe one.

I imagine I could prevent falls from ocurring if I take this advice and begin now. At first as i stated, i didn't want to "too soon"..after reading what you've typed (and thank you) it makes me understand why it's more important to prevent than to wish I would of later.

I guess its that stereotypical fear of , when I show up to his office ill be looking normal and he will look like "your crazy", ive got to learn to get past that for sure. I think this will be a good starting place. A needed one at that!

For the longest time laying on a couch would bring on symptoms even if I were not in episode. I was told that it maybe that my spine is being impinged upon , which also is causing this morning problem of mine. Either way I will say the best investment was a recliner for day time naps. I mean a real God send! No more symptoms in it , can you imagine with the fatigue we have that this is the first time in 3 yrs I am able to TAKE a nap? Before , id fight it or fall over trying to. So, i do go to the bed at night as i'm given something, lunesta? (sp) to help me sleep. I also plan on getting a top cover we discussed this very weekend. Little thing's mean alot, mean alot more NOW to me, haha.

I will speak with my doctor about some assistance to have on hand in these situations. My son sleeps upstairs and i simply won't go up there, but he'd old enough to answer and get himself down the stairs.

I appreciate the time you take and in case you didn't know it, you have a gift of explanation that alot don't have. You tell what might be needed , but go further into explaining why and what options are there. I find this very helpful.

Immitrex was given for Migraine and it also seems to help. I am relying more on ibuprophen lately and the vitamin D than most of the other's I began with.

Heres an odd quesiton for you. I, like all of us have had many sensations in our bodies. Ive felt fire in my feet, ive felt them turn extemely cold. Ive had the ankles twist etc...on and on, but as of late i have this pinch? Its a feeling in the top middle of your foot that feels as if a toddler with awesome strength and long fingernails just pinches the (((out of you lol.

I guess im asking out of sheer curiosity. Ive never felt anything on the very top of the feet and its on both feet at different times, but same place.

I'm a right faller, I'm not sure why that is. If im tired for example and am sitting too late at my laptop the next thing i knwo im waking up and pulling myself from the right side of the floor. I've found that I have more memory of waking than i do of going to sleep!!. I am on 100 provigil and to be honest I did ask the pharmacist and yes that can be raised. I really hate (most of us probably do) taking many meds. However i see that this type of fatigue im dealing with can also be very dangerous. I have no warning, no drowsy...i just go out. It's been reported many times but always labled as "profound ms fatigue".

Anyway, thank you again for your help and if you or anyone on this board has had this type of fatigue please share as it is a bit scary. Id much rather think fatigue than coma, but when all you remember is waking up ..its a bit frightening.

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/1/2008 4:48 PM (GMT -6)   

Other than the ibuprofen you mention, which I use to combat side effects of Betaseron, I'm not on any other meds...so can't specifically be helpful. But here are some general comments.  I'm always wary of taking drugs to help me sleep (like Lunesta), and then needing a drug to help me stay away (provigil).  And falling asleep without being aware of it is scary.  Mix in the migraine medicine...and I wonder if there isn't some medicine mixing there that isn't helpful?

Have you ever had a sleep study done?  There are lots of sleep disorders, and MS can cause some of them. And of course they (sleep disorders) in themselves can cause  drowsiness during the day.  The suddenly falling asleep without being aware of it isn't in my MS-fatigue related experience.  For me, the MS fatigue can come on suddenly -- I'll be fine, rocking along, doing something...and then realize that if I don't go lie down NOW I'm going to be REALLY cranky, I'm REALLY tired, and the only thing I can do is go lie down. I'll get shaky, fretful, even teary..and the only "solution" is to stop what I'm doing and go lie down.  Not a "passing out" (that's not a coma, by the way..but could be a seizure disorder, or narcolepsy -- both of which would become apparent in a sleep study) but just an awareness that I'm WAY tired.

I do lie down during the day -- usually a half-hour or 45 minutes in the mid afternoon. I get up early -- around 5:30 or 6 a.m., then there's that 45 minute nap (I don't always fall asleep, more just "zone out" with CNN droning in the background), then I climb in bed around 7 p.m., watch a couple hours of tv..sometimes til 10 p.m, then go to sleep.  When I DO go to sleep..I am out. I don't even move in bed (and so I do wake up stiff and clumsy, as I've been in EXACTLY the same position all night, or at least for however many hours I've been sleeping..usually at least 4, and then occasionally waken for a bathroom break). Then back to bed and again, won't move until I wake up in the morning.  So sleeping isn't a problem for me.. :)

The foot..just sounds like another way spasticity is rearing it's ugly  head...  It can occur in any muscles, and you do have muscles on top of your foot.

I gotta go for now..heading out for the evening. I'll check back in later.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 2/1/2008 9:04 PM (GMT -6)   
If I have fatigue problems, they are that I feel tired, run down, or sleepy.  I don't just conk out like that.  That is pretty scary really. You need to let your doctor know.
 
I do sleep really hard though.  I sleep like the dead.  I go to sleep around 9 and get up just before 5.  I also don't move a lot once I am asleep.  I fall asleep on my left side and usually wake up on my left side.  I have found myself in other positions but for the most part I don't move too much.  That is a new sleep pattern for me.  I have never slept as soundly as I do now.  I do not usually need to rest during the day but it is very important that I respect my 9 o'clock bedtime.  When that time rolls around I am really tired.  I go to bed at the same time as my children.  I don't get any grown-up time lol.  I am ok with that.  I need my sleep. 
 
Good luck in your search for mobility aids.  I hope you find some relief from your fatigue soon. 
 
Love and prayers,
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/2/2008 9:37 AM (GMT -6)   
Ms. Uppity? Have you ever watched the show house? If you have , let me say you'd be given alot of points for piecing some obvious but usually overlooked things together. However, its not the mix of those meds, but your extemely on top of realizing that those are bad combo's , to take one to stay awaks , one to go to sleep and one for the migraines too.

Please allow me to explain further so that it might clear a little of this up...

about two yrs ago (all of my life as insomia type person) i began sleep walking. This is when Lunesta was given to me. It did the trick and in the morning I really never felt any "left over feeling".

I did complete a sleep study because of the film found in my mouth in morning and some snorting awake at night. Unfortunately i was never given the results. I did obtain the paperwork myself which said i aroused 19 times in the first hour ( i have no clue what normal is). At this time my psychiatrist was telling me he wanted to send me for a more indepth test but i settled for the local sleep test that never was brought up again. The reason he wanted to was that he said in my area , apnea was something they could uncover but other things such as sleepwalking and other sleep disorders :no. (please keep in mind i wasnt conking out in the day time).

Later as time passed i began to be sitting, speaking with a friend and suddenly my eyes begin to close, id protest and try to tell her i didnt want to go OUT but neverthesless i would. Frightening to say the least. I called an ambulance once and i hate to give bad info that happened to me, but they thinking i was OD'ing because i couldnt respsond, therefore burnt me with narcon. A med designed to burn any narcotiic or really any med out of your bloodstream. This wouldnt of been so bad but i had all my meds with me, and i was the one who called for help. So there thinking of OD was i suppose making sure. Either way in the end they gave me amatamadine. For fatigue, my blood came back fine. I was mad of course as all id succeeded in doing was getting myself burned lol.

Anyway this continued of me knowing i was "going out" without permisson of self for about 5 months. I told every doctor i saw. Always was told MS fatigue. At that time when id "conk" i could hear everything around me, but be unable to react..not even move a finger...or say a word. It was a very very scary time.

Latley its changed some . Now its i wake up and find that ive conked. Seems that could get pretty dangerous if we consider driving and the fact of no warning of it coming on. Not to mention head knots i obtain all the time.

I willllllllll make certain that one of my two doctors sends me to a sleep clinic to find out what this is.

I have never taken provigil but 2 times. The immitrex relieved migrained twice but not taken on the days of the provigil either. So really as which came first the chicken or the egg...it would of been the lunesta? Or a sleep disorder.
I wasnt aware that MS caused sleep disorders other than insomnia.

I dont seem to need the lunesta now. I find myself sleepy at bedtime and will make sure with the doctor and see about discontinuing it. Any medicine thats based on a hypnotic makes me wonder if it indeed could cause some odd things.

thanks for all your support

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 2/2/2008 9:46 AM (GMT -6)   

Wow that is truly frightening.  I hope you are no longer driving or at least no driving until you figure this all out.  Keep in mind the safety of that precious little child you have.  Good luck with finding answers on this and some resolution.  I cannot imagine that your conking out is considered a normal form of MS fatigue.  Be assertive until you get those answers.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 2/2/2008 9:49 AM (GMT -6)   
Sometimes its the turning of the ankle, the feet being dead asleep or the legs refusing to work. Now, im not saying that normal function doesnt come back, only that im finding there are times when its just not safe.


ah, yes! the old turning of ankle just when you think you're walking a straight line! i now have braces on both legs. they're plastic things that go up from back of plastic foot and attach by velcro. have found they really help me walking, although they limit footwear. suggest you ask neuro about it. also, you should be fitted properly for a cane or it won't help much. keep in mind that canes do not have to be metal and ugly. i think the site i used was something like fashion canes. to start out i had a metal quad cane that tripped me up more than not. as far as walkers goes, there is a website called freecycle.org where prople post things they want to give away or get for free. good luck! it can be done. linda
 
 
 
I activated your link.

Post Edited By Moderator (Gretchen1) : 2/2/2008 8:59:20 AM (GMT-7)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 2/2/2008 10:01 AM (GMT -6)   
Hey here is that site for canes. I know that they will cut the cane to fit you as long as you know what size you need.

http://www.fashionablecanes.com/


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/2/2008 10:05 AM (GMT -6)   

Hi Kiera,

 

Have your docs ever considered narcolepsy as a possible source of your sleep issues?

 

Here is some info on it:

 

http://www.ninds.nih.gov/disorders/narcolepsy/detail_narcolepsy.htm

 

Sunny


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 2/2/2008 10:07 AM (GMT -6)   
YES! that is the site. once i knew my size cane i went a little nutz there. got a transparent lucite cane that is always a fashion statement! if you can't have fun with being differently-abled, what good is it?! linda

Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/2/2008 11:38 AM (GMT -6)   
Well frankly i am very scared. I did look up the site of narcolepsy and have to admit that i have almost wrecked (alone thank God) several times As the site points out, the patient is confused as to what they are experiencing therefore it delays the dx.

I have def mentioned this to all of my doctors but maybe not well enough? My last appt they had to wake me from my chair to tell me it was time to see the doctor.

It is scary as its another disabling condition As if Ms weren't enough. I dont see direct correlation but then again the brain being involved who knows? It may be that there is a connection. I feel (my husband is totally against this idea) that this is what it is. It describes me to a T. Even the conking out with being able to hear all that goes on around me, without the ability to open my eyes or raise a finger.

I guess pity party right now for me, as i feel overwhelmed that there is another thing involved. It does explain some of my temp paralysis too. It is also totally different than my ON or my spasticity , in other words it is not like the Narcolepsy will take the place of my MS dx.

I guess these things are for a reason. I wont drive anymore as its more apparent to me now. I had blamed it on the sunlight sensitivity and tried different glasses (shades) thankfully ive gotten only drowsy and had not yet fallen asleep while driving.

I will be persistant on gettng an answer to this as one of you pointed out...my child's in danger if this is left untreated.

thanks for all of your input,

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/2/2008 11:38 AM (GMT -6)   
Kiera, all that you've related about your "history" of sleep problems...please do be clear with the doctor about this. Tell him all that you've related here...and get another sleep study done. Indeed what you describe is scary -- you could hurt yourself (and others!) and that really needs attention.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/2/2008 5:57 PM (GMT -6)   
Oh i definitely will. I will probably almost have to remind them of some liability of their own if i report it and they don't help. The reason i say this is as i told everyone above, ive told every single doctor. I'll make fresh notes about the sleep thing only and go over them with neuro and psych who wanted sleep study before for the walking at night.

I'll then apply pressure due to the lack of being able to drive to any appointments until the issue is resolved in some manner. Through medication or even if it means hiring a driver.

I'm gong to be ok , i just feel like i cant get a week or month in that something else doesn't seem to spring up.

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/3/2008 5:53 AM (GMT -6)   
Kiera said...
Oh i definitely will. I will probably almost have to remind them of some liability of their own if i report it and they don't help. The reason i say this is as i told everyone above, ive told every single doctor. I'll make fresh notes about the sleep thing only and go over them with neuro and psych who wanted sleep study before for the walking at night.

I'll then apply pressure due to the lack of being able to drive to any appointments until the issue is resolved in some manner. Through medication or even if it means hiring a driver.

I'm gong to be ok , i just feel like i cant get a week or month in that something else doesn't seem to spring up.

thanks

kiera

Here's a suggestion that might work: Don't talk to them about "sleep problems". Knowing you have MS, they'll do what they've already done...assume you're talking about "MS related fatigue issues" and ignore it, or try to increase the provigil or something.
 
Instead, talk to them about "momentary loss of consciousness",  and "being aware of people around me but not being able to respond", and "being aware that I'm about to lose consciousness and not being able to control it", or "becoming aware that I've fallen, having to get up off the floor, with no sense that I was about to fall, or pass out" -- because that really is what you are describing, not "sleep problems".
 
Now, that might indeed be related to the sleep issues. It is not usual to be aroused 19 times in the first hour (or however your sleep study states that). That's why that is IN the report -- it is UNusual, and should have been followed up on!  And of course you know the sleep walking that you did earlier isn't usual, either.
 
I really hope you do follow up on this, and press the doctor for a follow up study.  I'm glad you're not driving til you get this resolved.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/3/2008 10:27 AM (GMT -6)   

Hi Kiera,

 

I didn’t mean to scare you with that link on narcolepsy, and I’m sorry if that was the case. It really does sound like there is something going on that needs to be addressed though (not necessarily narcolepsy), so hopefully that information helped clarify some of what’s been happening to you. I’m really glad you are going to pursue this…with proper treatment you could very well see an improvement in your quality of life! Best of luck with this, and let us know how it goes.

 

Sunny


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/3/2008 12:19 PM (GMT -6)   
I thank you all. I guess I felt "overwhelmed" again and a bit scared of being minimized by a doctor on this issue. I'm so glad though that my psych had intially wanted to do a sleep study and warned me that this area is good for apnea only and that he felt i needed to be "sent" somewhere. He will help even if the neruo fails. I will however approach my family doctor and Ms. uppity again i thank you, my hubby is printing out what you wrote so that i will remember to not say MS and have them simply take the easier way out..blame it on the MS.

Amazing but its really the exact reason , I see this now, that all my attempts (trust me theyve been numerous , to include ambulance to be burnt with narcon ..gee that was fun)....but i do now see that ms was always brought up and therefore it was much easier to say MS than to investigate...for them.

The sad part of the sleep study i did was i only read the first line. That indicated 19 arousals from sleep in the first hour. I didnt even read the rest and ill share with you why. It was a local clinic (i should of listened to my psych) but when i arrived there the lady seemed irritable and like she really didnt want to be there. I was given no cover to sleep with and i was released at 2 in the morning..as she became flustered at having to help me to the bathroom. Although some sleep studies dont last All night, most do not stop at 2 a.m. It also was never read to me by my "then" family doc. I found it when acquiring records.

I thank you both so much as it really did scare me. However, both of your posts have helped empower me in the sense that I will (and i will) bring this to the attention of my family doctor and if she should try to bring MS into it I will tell her that it is Not related as its not fatigue at all but rather a passing out of sorts. An inability to respond but still being able to hear. I will tell her of my past failed study and the dire need to have it repeated. I also will ask her if she feels comfortable with my psych doing the referral. The reason for this is he Knows of a place that he wanted to send me to before, that specializes in all forms of sleep problems. Considering I had the history of walking at night prior to this it may or may not be connected but from what he described its a clinic for sleep that looks for every possible disorder.

I dont feel so bad now. At least i have a game plan. Trust me girls, your time wasn't wasted on this one as i was getting terrified of driving but not knowing what to do. I had so many appts and i made sure my son would be at a sitters but we all know that wouldnt save my life or anothers!

I think sometimes i second guess myself and when they kept calling it profound ms fatigue i believed them. Then i took a chance. I knew that if i posted this here that one of you would relate IF it were Ms fatigue. So this was the answer i needed. I knew it was too strange. Its too scary and its not anything you can know is coming on. It also at times feels (feels, not saying it is) like im slipping...into a coma state. It's very odd. I dont have sugar or anything else that i can make sense out of this with.

Sunny, pls do not feel bad. I honestly had typed in my symptoms months ago and narcolepsy had popped up..however that site listed the ages of young people. You didnt scare me. I was already scared. You supported me and so did Ms. Uppity and so now....i will keep you updated as I will NOT risk anyones life and Time is of the essence considering we really dont know whats causing this.

thanks again and i appreciate the total honesty. Ms. upppity wise advice about not allowing them to dismiss or blame on MS fatigue. I most surely will not THIS TIME.


thanks
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/3/2008 2:40 PM (GMT -6)   
Have the sleep study done for sure...and mention to them "petit mal seizures"...which also can be found in MRI's, and noted in sleep studies.

I had a friend who dealt with those *for years*..was always told as a child that she was "inattentive", "didn't respond when someone calls her name", thought to be "mentally ill" (these days probably would be considered ADHD, or something related). Went to a psychiatrist for years, being "treated" for "mental illness".

An apartment neighbor found her one night, literally running up and down the apartment hallway. She was asleep...sleepwalking...walked her back to her apartment. Some nights later found her "jogging in place" in the laundry room.

After a LOT of testing..sleep studies, some sort of device with electrodes strapped to her brain that she walked around with for several days, etc.....it was discovered that she had a form of epilepsy -- seizure disorder -- that was causing her problems..**and likely was the cause of her problems since childhood** (She was in her late 20's when all this transpired). She got on seizure medication, and other than a few adjustments in meds over the years, has been fine. She is my age now..59-60...

Don't hesitate to mention that your psch is willing to refer you to a sleep clinic. Lots of doctors aren't as well-versed on those as those in psychology and psychiatry are, and your family doctor may well be glad for the information.

and of course let us know how it goes!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/3/2008 5:16 PM (GMT -6)   
thanks...sounds alot alike some things ive been found doing. sleep eating, , removing items from a shelf that wasnt there and continued out of the house, place at nurses staion and had to repeat my social lbefore theyd believe i was awake, odd thing if i could do SOME concious things such as have an entire goodbye honey love you walk to the door that i swore never happened but my husband said did. During that time i found to be doing many things at night. I thank you tremendously for this and again will have hubby print this. I will have those or it ruled in or out and make certain of what this is.

An elder from church was the first to mention seizure.......i knew in a way in made sense but still it was baffling.

Either way we shall know soon!

Ill post as soon as i hear when study /mri or whatever is scheduled.

again thanks , u took the fear out of this,


kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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