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scaredkid
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/1/2008 9:40 PM (GMT -6)   
My mom returned from an MRI after experiancing issues with her hands. The doctor believes it could be MS. She goes back next month for a spinal tap. I feel so helpless. She has always been so strong when we needed her and I have no idea how to be there for her. She hasn't told my youngest sister yet. Everytime I see my sister's name on the caller id I am afriad to answer it and at the same time relieved because I may not have to hide it from her anymore. Please help. I don't want anyone in my family dealing with this by themselves.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/1/2008 10:56 PM (GMT -6)   
Hey Scared

I"m so sorry! My heart breaks for u! If u don't mind my asking, what are u and u'r siblings ages?? Try not to be too afraid. I know this seems like such a big and scary thing, but it doesn't have to be. Don't sit and dwell on it and if u can help it. This diagnosis process can take a long time. Hold tight to each other and u'r mom and just do all u can to pull together. She will need that from u all now. Take care and lean on us here too. We know where u are and we will be here for u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


scaredkid
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/1/2008 11:51 PM (GMT -6)   
Thanks for the support. My sister is 25, I am 27 and we have an older sister that is 29. My mom has always tried to protect us from things. She hates to see us upset or worring about things. It is hard to tell how she is really feeling because one minute she is making a joke about it telling me not to worry and the next minute saying that it was not the right time to tell my sister. Thanks for the advise and I will keep you posted.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/2/2008 9:21 AM (GMT -6)   
scaredkid said...
Thanks for the support. My sister is 25, I am 27 and we have an older sister that is 29. My mom has always tried to protect us from things. She hates to see us upset or worring about things. It is hard to tell how she is really feeling because one minute she is making a joke about it telling me not to worry and the next minute saying that it was not the right time to tell my sister. Thanks for the advise and I will keep you posted.


So none of you really are "kids", but young adults?  You have to listen to your mother -- and let HER disclose what is going on with her, when she is ready to do that.  Some people are real comfortable with being open from the start, others aren't, and want to just tell bits and pieces as they know more.  SHE has to figure that out, not you.  She knows you all maybe better than you think, and she' has to feel comfortable with telling your sister when SHE thinks it's time.

In the meantime, you and your siblings (that know) can go to the National MS Society web page -- www.nmss.org and start doing some reading about what MS is, and what your mother is experiencing.  It's not a terminal illness, but is a long-term chronic disease, so it's not like you (or your mother) have to make any quick or hurried decisions about anything. Your mother is going to be there for a long time, you are adults with your own lives...you'll all just go on with your lives, but continuing to support each other as you can.  And when your mother is ready to talk, you all can be there, ready to listen. Give her time.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3517
   Posted 2/2/2008 9:39 AM (GMT -6)   

Hello there,

You have gotten some good advice here.  I just wanted to come and show my support too.  You will get through this.  And again it can be a long process.  My boys were old enough to understand the seriousness of the disease but young enough to count on the fact the mom would still be mom even with MS.  Interestingly, it was much harder on my own mother.  She had a real tough time dealing with the fact that her baby ( at 43 years old) had been diagnosed with MS. 

Families can be an amazing source of comfort and support.  Take real good care of yourself then you will be able to support and love your family in this time.  Good luck and let us know how you are doing.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006

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