Flu "like" symptoms

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mamana monster
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Date Joined May 2004
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   Posted 2/8/2008 11:49 AM (GMT -6)   
Hi all! I have a question, that most likely will differ for each of you, about the "flu like symptoms" you can get with Avonex treatments. I had my first injection yesterday at the doc's office (about 10:00AM) and about 4 1/2 hours later started with a fever of about 101 that later went up to 103 before I could get enough Advil in me to slow it down. Oh my gosh! Someone please tell me that this is just an isolated incident... I have never been a person that would run a high fever, not even as a child, never much over 100 so this was quite a shock to say the least. I took Claritin and Advil prior to the injection as my neurologist suggested but by 5:00PM I was a sick puppy, (also I've heard taking the injections at bedtime will be helpful). I ended up taking 6 Advil and 2 Tylenol before I could get it down to 101.4, which at that point felt good! Ha! I'm hoping that the first dose is the worst?? sad Or do ya'll think this is something I can expect once a week? Better this morning fever down to about 100...argh!
 
Thanks for your help and for letting me whine!
 

 

 

"Be yourself. An original is always worth more than a copy."


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/8/2008 1:00 PM (GMT -6)   
mamana monster said...
Hi all! I have a question, that most likely will differ for each of you, about the "flu like symptoms" you can get with Avonex treatments. I had my first injection yesterday at the doc's office (about 10:00AM) and about 4 1/2 hours later started with a fever of about 101 that later went up to 103 before I could get enough Advil in me to slow it down. Oh my gosh! Someone please tell me that this is just an isolated incident... I have never been a person that would run a high fever, not even as a child, never much over 100 so this was quite a shock to say the least. I took Claritin and Advil prior to the injection as my neurologist suggested but by 5:00PM I was a sick puppy, (also I've heard taking the injections at bedtime will be helpful). I ended up taking 6 Advil and 2 Tylenol before I could get it down to 101.4, which at that point felt good! Ha! I'm hoping that the first dose is the worst?? sad Or do ya'll think this is something I can expect once a week? Better this morning fever down to about 100...argh!
 
Thanks for your help and for letting me whine!
 

Unfortunately the "flu-like" symptoms you describe do come with each shot, at least for the first few months. It sounds like they were "right on time" -- about 4 hours after you injected.
 
I don't know what the Claritin was supposed to do, though.  I do know that doctors and the Avonex (and Betaseron) folks suggest taking Advil.  If that doesn't work for you, you might try ibuprofen, aspirin, exedrin, or some other fever reducer. Not all of them work well for everyone.
 
Yes, doing the injection right before you go to bed does help -- you'll generally sleep through the worst of the symptoms.
 
Here's what I did (and still do, 15 years later): Take two ibuprofen (I use generic over-the-counter pills) about a half hour before injecting. Then inject.  Put two and a glass of water by my bedside -- so that if I wake up in the middle of the night with fever and chills, I can take those without having to stumble out of bed.  Then two more in the morning upon waking  --
 
and generally I was OK.  Now, 15 years later I just take the two at night before injecting, and rarely any more either during the night or the next day (I've stopped bothering with the pills at my bedside...)
 
I found the symptoms were particularly onerous for the first 2-3 months, then lessened significantly.  Don't be surprised, though, if you find that when you get sick with a cold or the "real" flu that they'll come back and be troublesome again, for a shot or two.  Or if for some reason you stop taking the Avonex and then start up again, you'll go through this all over again.
 
I hope the side effects aren't SO bad that you stop using the drug, though!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Lil Kimmie
New Member


Date Joined Feb 2008
Total Posts : 5
   Posted 2/9/2008 12:08 AM (GMT -6)   

I am on Betaseron and it too has warnings about flu like symptoms. The only problem I had was getting a bit hot about 30 mins after my shot, then it would go away. I will count my blessings that I don't have it worse. One thing I wonder about is did you start out on a full injection? I know w/ my Betaseron, the doctor started me out on .25 and then gradually moved up. I think that is why I adjusted so well. Good luck with your meds!

 

Lil Kimmie :-)


mamana monster
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Date Joined May 2004
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   Posted 2/9/2008 9:27 AM (GMT -6)   
Cat - Thanks for the info...wow...I don't know how I feel about having a 103 fever every week. I woke this morning and don't have a fever, had a low grade one all day yesterday about 100, and I was still pretty stiff and sore in the old joints. Geez, it will take me two days to feel better? I seriously hope that it won't be that bad every time, even if it lets up after 2-3 months that's still a long time knowing you are going to be that sick every week.  
 
Lil Kimmie - I guess I don't know what a full dosage is, color me uninformed at this point, still trying to learn all the ins and outs. I did look up dosing when we decided on the medication and it stated that there is basically one standard dose for Avonex 30mcg. Do you know if that is a full dose? I need to ask my doctor that question, I feel kinda silly that I don't know that answer.
 
Honestly, If you guys on Betaseron get this sick every other day, you are far tougher than me right now. I guess I will get a bit tougher over the next few weeks, what doesn't kill you will make you stronger kinda attitude. Of course my son will inform me that's not really true! Ha! Always good to have moral support!! smurf
Blessings
 
 

 

 

"Be yourself. An original is always worth more than a copy."


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/9/2008 9:46 AM (GMT -6)   
While some doctors start with a low dose and "ramp up" over time, many just start with the regular full dose. I think you're on the standard Avonex dose.

As for the side effects, they DO lessen over time, generally. Based on my personal experience, I was quite willing to put up with the side effects for a couple of months if the drug did what it was supposed to do, in the long run -- lessen the severity of exacerbations, maybe reduce the number of exacerbations, etc. Which it seemed to do, in my case.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/9/2008 9:36 PM (GMT -6)   
Yes i do believe they usually do lower hun. My cousin is on avonex and at first thought that i would be, she warned me of the "first shot" that id feel like i was dying from pneumonia , so that's all she said about that (forrest gump lol), i imagine it is different for everyone , uppity's explanation probably fits the guidelines.

But usually avonex does taper down and my cousin is totally used to it without any problems from it now. Some may continually experience some mild temps , others more, some less. Id give it a few more tries for sure. I really think next time will be bothersome but a LOT less than this time.


Risk vs Benefit is the way to view this. Thankfully your on this 1 time a week , Im in no way suggesting they type of side effects you experienced is ok once a week (no thanks lol), but I am saying that it should ease some and ibuprofen seems to be the most helpful from the majority of whom ive spoken to. Try that and let us know how this next shot goes. Ms is a tough disease and it can let up but sometimes doesn't, this medicine deal more than likely will . I'll be thinking of you on shot day..i pray it goes much easier!

Everyone is so different its such a hard thing as you see from all of our comments to be concrete on. I think you will do much better with even the next shot and even better after that.


Risk vs Benefit and you do want to fight Ms back!!

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/9/2008 9:42 PM (GMT -6)   
Ok ms. uppity i have you cornered now (kidding), Im still wondering why im on copaxone. When i asked the doctors at the clinic they said we use it all the time! The trouble im having in understanding it is that they also say im r and r ms. Which when i read articles suggest that interfuron's are stronger? For lack of a better word?

I thought and have read that copaxone was for ppms and sec ms?...i didnt know it was for r and r , or are they bluffing me? lol

I guess im feeling bad for mamana and want some of that flu (giddy mood tonight). Seriously though, since my attacks seem to be so frequent should i bother asking my neuro or just keep with the copaxone. Its not broke its just not working? Or at least i cant tell any difference.


I did get the 4" bed topper (memory foam) and will try that out tonight.

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/10/2008 8:53 AM (GMT -6)   
Kiera said...
Ok ms. uppity i have you cornered now (kidding), Im still wondering why im on copaxone. When i asked the doctors at the clinic they said we use it all the time! The trouble im having in understanding it is that they also say im r and r ms. Which when i read articles suggest that interfuron's are stronger? For lack of a better word?

I thought and have read that copaxone was for ppms and sec ms?...i didnt know it was for r and r , or are they bluffing me? lol

I guess im feeling bad for mamana and want some of that flu (giddy mood tonight). Seriously though, since my attacks seem to be so frequent should i bother asking my neuro or just keep with the copaxone. Its not broke its just not working? Or at least i cant tell any difference.


I did get the 4" bed topper (memory foam) and will try that out tonight.

thanks

kiera

Put down that keyboard and step away from the corner!! We Cats get CRANKY when cornered!!! :)
 
Copaxone is a very good drug, and indeed is used for people labeled relapsing-remitting. And ALSO for people with secondary-progressive (as are some of the interferons..maybe all, but I know that Betaseron is).  I didn't know that it was being used for primary-progressive..I don't think any of the interferons are...but I don't know for sure.
 
Copaxone is the "newest kid on the block" and is different from Avonex, Betaseron and Rebif in that Copaxone is NOT an interferon.  The first three seem to differ from each other only in the means of "distribution" in the body...once a week, every other day, or (I think) daily...(I think Rebif is a daily injection, but don't hold me to that.)
 
My personal opinion --and it's only that, a personal opinion, based on the reading I'm doing -- is that of the interferons, Betaseron is stronger. Maybe that's what you'd heard about Betaseron.  But note: of the interferons, not of all the drugs in general.
 
When Copaxone came along, lots of people switched to it because they didn't want to continue dealing with the side effects. Lots of doctors prescribed it for their newly-diagnosed patients as being "better" because of the fewer side effects.  And some doctors believe it is the better option too, in large part because of the side effects.
 
I think doctors often prescribe any of these drugs not so much because one is "better" than another, but more often because the doctor is "used to" one over the other, and/or has more patients on one than another, so more often prescribes it.
 
Are you certain that you're "having more attacks"?  You do understand that many symptoms don't go away entirely...that some stuff like numbness, tingling, strange sensory stuff, difficulty walking, lots of things...don't "disappear" when the MS goes into remission?  That a new "attack" (or exacerbation) is characterized by clearly defined NEW symptoms, or severe increase of "old" symptoms, that lasts from days to weeks?  A lot of the residual stuff will always be with you, and might seem to flare up from time to time, sometimes during the course of the day..
 
like my burning and tingling feet seem more "pronounced" at the end of the day, and I'm much less able to transfer (my legs are significantly weaker) at night...but that doesn't "count" as an attack.
 
If indeed you ARE experiencing more attacks, you really do want to talk with your doctor. Not all the drugs work the same for everyone, and you might do better on one of the interferons.
 
But first you might want to get through the sleep study and see what comes of that, before adding on or switching meds.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
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Date Joined Jan 2007
Total Posts : 3539
   Posted 2/10/2008 9:47 AM (GMT -6)   

Cat,

You are a crack up.  Ok everyone no backing The Cat into a corner.  Hehe.

Ok this is my take on what I know about the ABC drugs.  I am by NO means an expert.  My neuro gave me a choice when I was offered my drugs.  She said she would do any of the drugs but that she was most experienced with Rebif and Copaxone.  It is my understanding that Avonex and Rebif are extremely similar.  They are both "beta interferon 1-a".  The difference between those two is the Avonex is injected once a week into the muscle.  It has the LONG needle that some are a bit frightened of.  Rebif is a very similar drug but it is injected three times a week sub-q.  Betaseron is a slightly different mix of that beta interferon.  It is called beta interferon 1-b.  It is also injected 3 times a week sub-Q.  All of the interferons work by lowering the bodies gamma interferon that is supposidly part of the MS disease mechanism.  It attempts to block the T-cells from attacking the myelin.  For some reason this creates an anti-inflammatory situation as well.  One if the draw backs of intereferon is that over time (several years) some people build anitbodies against the drug and they must switch to a different drug to keep the affectiveness going. 

Copaxone works differently. Copaxone is injected daily sup-q.  Although doctors don't really understand how any of these drugs really work on a cellular basis, they are sort of guessing.  They think that copaxone works by flooding the body with peptide strings that are very similar to myelin and that what you get is a decoy situation.  Your t-cells are so busy attacking the copaxone that your CNS is left alone (for the most part).  There is not an anti-inflammatory effect with copaxone but you don't get the build up of anti-bodies with copaxone.  If copaxone is working for you it probably will for the long run.  Also, copaxone is supposed to be the only one of the ABC drugs that is effective against the general brain atrophy that accompanies MS. 

I hope that I have given you an unbiased look.  I don't mean to advertise one over the others.  My understanding is the no one understands any of this real well.  What may work for one person may not be right for another.  It seems that the literature says to get on a therapy as soon as possible and to stay on it as long as you can.  None of these drugs is a true treatment.  MS will continue to progress in even the best case.  We have to just hope that in the near future more effective treatments become available to us. 

I know nothing about Tysbri other than it is once a month IV infusion from a hopital or clinic.  I have heard great anecdotals but I have not personally read anything about it. 

I hope this helped someone.  It seems long and boring to me.

Love and prayers,



Gretchen       co-moderator MS board       diagnosed with MS July 2006

Post Edited (Gretchen1) : 2/10/2008 8:54:49 AM (GMT-7)


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/10/2008 11:05 AM (GMT -6)   
I actually inject Betaseron every other day (not 3x week). Maybe the newer recommendation is 3X week? Anyway...otherwise what you posted, Gretchen, is how I understand that, too.

As for the antibodies and what they mean with the interferons..I think "the jury is still out" with that, too...meaning some docs seem convinced that if their patient develops the antibodies (which is discovered, I guess, through blood testing) that the patient needs to go off that drug. Others aren't so convinced there is a problem.

I guess that's why they call it "practicing" medicine. Maybe one of these days they'll get it right!! :)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/11/2008 6:34 AM (GMT -6)   
thank you both@ ill be careful next time i put a cat in a corner lol! Gretchen no yours was not boring.

Ms. uppity i really do keep mine (episodes) tracked on paper and can clearly see when its new symptoms or old ones in severity , the old ON wants to hop on board during these.

However, you are right, i need to do this sleep study and EEG they now have me scheduled for and probably wait the copaxone out antother 6 months and if i see no benefit then i'll speak up.

I have no side effects with it, its very mild and easy to do. Not even the warning symptoms, ive had none of them.

I keep residual as far as achey palms, numb feet off and on, more the right foot.........alot of little residual things that ive gotten kind of used to i guess. I used to think they hurt now i dont notice them unless i do enter a huge difference in severity or brand new symptoms like when the spasticity hit. That one was def huge. Even if spas. had been present and i had been unaware of it , it surely tripled itself easily along with even more fatigue and the ON . Looking back on that one I wish Id of done steroids and Im super careful about not doing those. That last one though really needed some intervention.


Thanks to you both

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 2/11/2008 2:34 PM (GMT -6)   
manama monster-
I'm sorry your first dose was a horrible experience for you. I have been on Avonex since September (or October- I can't remember) of 2006. I can tell you that from my experience, the very first dose was really, really bad. But it does get better. they other shots werent as bad as the first, it gradually gets better. some weeks, as long as i keep taking tylonol or advil(sometimes both) I hardly have any side effects and some weeks I have mild ones, mainly headaches and body aches. but nothing like the I did at the beginning. So hang in there.

mamana monster
Veteran Member


Date Joined May 2004
Total Posts : 2236
   Posted 2/13/2008 7:56 AM (GMT -6)   

Thanks everyone for the words of encouragement!! I will hang in there and hopefully this next dose won't be so bad. :-)

Blessings!


 

 

"Be yourself. An original is always worth more than a copy."


natabelaknits
New Member


Date Joined Feb 2008
Total Posts : 3
   Posted 2/28/2008 11:26 PM (GMT -6)   
Hi,

I'm brand new to the forum but have been on Avonex since November, after my diagnosis. My symptoms after the first injection were the same as yours and took 3 months to lessen. What made them more manageable was this:

2 ibuprofen prior to injection
2 more ibuprofen, 2 tylenol and 1 atarax one hour after injection and then 2 ibuprofen round the clock for 24 hours. The atarax is an antihistamine (you could use benadryl) which can help keep your body from reacting so much to the injection.

It sounds like a lot but it's the only thing that worked and it took weeks of trial and error. The tylenol was the only thing that would bring the fever down and the ibuprofen is the only thing that helps with the body pain. Also, I do my injection around 9 or 10 pm.

I had almost three months of being in bed the whole day after my shot but am so happy to be able to say that I can now get up and take care of my kids the morning after my injection!

I hope your body adjusts quickly to the avonex!

natabelaknits

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/4/2008 6:34 AM (GMT -6)   
Hello, I'm reading this post with fascination as the meds are something I expect I'm going to have to deal with soon. Can anyone recommend good reading on these? I want to know what I'm dealing with before I accept the dr's recommendation. I've heard conflicting reports from friends with a daughter with MS who say stay away from any interferon meds as long as possible, and then I think but if they're doing what you guys say they'll do it might be worth trying. However, doesn't Interferon mess with the liver alot? I'd just like a really good source for medication regimen's or to understand the different meds individually so I can apply them to myself individually when my dr and I have to come to that point.
 
Thank you all for sharing any tips and info. I suspect I have very little clue what I'm embarking on now.
 


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 3/4/2008 6:40 AM (GMT -6)   
D'awesome said...
Hello, I'm reading this post with fascination as the meds are something I expect I'm going to have to deal with soon. Can anyone recommend good reading on these? I want to know what I'm dealing with before I accept the dr's recommendation. I've heard conflicting reports from friends with a daughter with MS who say stay away from any interferon meds as long as possible, and then I think but if they're doing what you guys say they'll do it might be worth trying. However, doesn't Interferon mess with the liver alot? I'd just like a really good source for medication regimen's or to understand the different meds individually so I can apply them to myself individually when my dr and I have to come to that point.
 
Thank you all for sharing any tips and info. I suspect I have very little clue what I'm embarking on now.

The best place to start with any of the meds is at their website. Get the "story" about what THEY claim, then ask your doctor which HE recommends...then come back here (or to other MS sites) and ask this very question!
 
Avonex, Betaseron, and Rebif are interferons. And yes, they can affect your liver...but not necessarily! Generally your doctor will run blood tests every 3 months or so for the first couple of years to check..and if there isn't any damage indicated, then it's advised to run tests every year or so, at your annual physical.  I've been on Betaseron for more than 15 years, without any problems at all.
 
But now there IS a choice -- Copaxone is NOT an interferon, has minimal side effects, and might be a good option for you, too.  It's newer than the others, and has shown great promise.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/4/2008 10:43 AM (GMT -6)   
And that's what I'm looking for Cats, thanks!
 
I already get labs every 6mos for the thyroid (it quit about 10 yrs ago) and I've had to keep it monitored pretty close (I'm at 2G daily). On top of that my uric acid raises cain with me regularly so that's monitored and my liver acts up so when this came up that was my first concern about the meds.
 
I'll start reading up now. :-)
 


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/4/2008 3:09 PM (GMT -6)   
forgive me if I repeat anything...I don't have enough time to read all the responses!! I take avonex and yes the flu symptoms can be with every shot or you can eventually grow out of them. Most people have them for the first few shots and then they go away. Then there are people like me....2 years later I still get sick! Here are a few tips. Take the advil b4 the shot, like an hour. Take your shot right before bed so you sleep through the worst of it. Don't get the premixed stuff, get the other stuff they say it has less side effects. not for me..... but for some. good luck!

1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/4/2008 6:45 PM (GMT -6)   
Rebif v.s. Copaxone...My son made the switch (to Copaxone) only because the Rebif did not work for him.His antibodies were tested.They took his blood and sent it out of state to a special lab...it showed negative ..which means he did not build up antibods against the drug..(it just didn't work for him).After 2 years he had a bad relaspe.Copaxone after the first 6 months showed dramatic reduction in the lesions he had,old and new....no brain atropy.Next MRI in April.Anyways each person is different....As far as injection side effects hes had none..with either....When he had to switch they made him do both Rebif & Copaxone together  for the first 6 months..3xR..7xC..  now...we wait and see...Copaxone 11 months...But I can say when he started Rebif (interferon) they ramped him up to the full dosage..Just my thoughts.
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/4/2008 8:34 PM (GMT -6)   
Ok I just read everybody and i was totally repetitive. I guess I want to say- don't give up! It sucks but give it some time, it gets easier and you get better at dealing with it. I (secretly) look forward to shot night now b/c everyone uts me slack. My mom watches my daughter for the day, my husband caters to me and I get to watch a movie in bed! I'm always trying to find the upside ans this is definitely an upside!!!

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/4/2008 9:47 PM (GMT -6)   
Tkelly, I think that is the newest approach I'm learning most... the upside to it all! :) Thank you all for sharing the info... I've always been very tough about my pain and really have a very high pain threshold (I'm not bragging, it's fact, almost harmfully, which come to think of it might not be a threshold, but an actual affect, hmmm I'm typing out loud now)... but I tend to think of trying to avoid the drugs so I've got to figure out why I want to start the regimen to begin with and what it's going to do for me now... if I can hold out til I absolutely have to, is that better? Or is it better to begin now?

I know my dr will be advising alot of course but he's very attentive to my wishes and allows me my will as much as is practical... like my Topamax for the migraines. I get depressed and weepy on 100mg so I cut it back, he didn't think I should so I kicked it back up to 75mg daily, and got weepy again, so I cut back to 50mg and put my foot down with him and he said ok, so now we know. I appreciate that about him cos he recognizes that everyone is different and our bodies react differently to all different meds.

So everyone's input is wonderful, thank you all!
 


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/5/2008 5:38 AM (GMT -6)   
D'awesome said...
Tkelly, I think that is the newest approach I'm learning most... the upside to it all! :) Thank you all for sharing the info... I've always been very tough about my pain and really have a very high pain threshold (I'm not bragging, it's fact, almost harmfully, which come to think of it might not be a threshold, but an actual affect, hmmm I'm typing out loud now)... but I tend to think of trying to avoid the drugs so I've got to figure out why I want to start the regimen to begin with and what it's going to do for me now... if I can hold out til I absolutely have to, is that better? Or is it better to begin now?

I know my dr will be advising alot of course but he's very attentive to my wishes and allows me my will as much as is practical... like my Topamax for the migraines. I get depressed and weepy on 100mg so I cut it back, he didn't think I should so I kicked it back up to 75mg daily, and got weepy again, so I cut back to 50mg and put my foot down with him and he said ok, so now we know. I appreciate that about him cos he recognizes that everyone is different and our bodies react differently to all different meds.

So everyone's input is wonderful, thank you all!

With the MS disease-modifying drugs -- Avonex, Betaseron, Rebif, Copaxone -- it is NOT a good idea to "hold out til (you) absolutely have to". They are designed to slow the progression of the disease, maybe stop it....and MS continues to progress, often unseen, in your brain and nervous system.  Lesions can (and often do) form without creating any outward signs, until you suddenly enter into a large and potentially very debilitating exacerbation (or flare), which can leave you significantly impaired.
 
They'll not treat any current symptoms, to be sure...but maybe stop new symptoms from occurring..a VERY good thing.  But yes, there are individual differences, people find one drug more suitable than another, and maybe more effective...
 
but doctors also encourage people to stay on the drug they choose for at least 9 months to a year, before switching. It takes that long for there to be any pattern of events to tell whether the drug is effective or not.
 
The GOOD news is that you DO have a choice!  When I and some others here were diagnosed 25 years ago (or more!), there was NO choice, no drugs, and we had to endure increasing disability..never a good thing.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/5/2008 10:46 PM (GMT -6)   
Man, this is very hard for me to adjust to.  I am fighting myself on this cos I perceive my "endurance" like everyone else in that it's "not that bad" until suddenly it is... so what you're saying is the drugs slow down the progress and that's how I've got to start thinking about it. That's the kind of input I'm seeking and I appreciate. It'll help me know my dr's not just suggesting the next most popular drug (past GP's have been so quick to suggest antidepressants before I was dx'd hypothryoid just becos I seemed "down"!)
 
Thanks Cats, I do appreciate this... I've got a lot to think about and even more to listen to.
 

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