shocks/ vitamin d deficency

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gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 2/10/2008 10:25 AM (GMT -6)   
I pray someone out there is having the same symptoms as i.  I have recently had my thyroid removed.  I was hopeing after that my shocking symptoms would be resolved.  Unfortunatly, they are still here.   I was started on vitamin d.  I thought oboy 3 days and counting and no shocking!  Man was i upset when they came back today.   I have no idea what this is .   I had an mra done. thinking I had multiple sclerosis.   It came up normal.  I was put on vitamin D by a cardiologist, not that i don't need it.  But he thought it would resolve the shocking feelings.. after 3 days i am now starting the sensations again.  
   If there is anyone experiencing this strange sensation,  it seems to be mostly in my hands head and occasionally into my legs and toes.   but mostly it stays up on the uppper portions of my anatomy.  my eyes are also involved.  split second shocks!!!! over and over again.
   Please respond,  i need all the help i can get. I just want to know the cause!!!!!
 
 
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 2/10/2008 10:48 AM (GMT -6)   

Hey gonuts,

I am very sorry for your weird symptoms.  You seem very upset.  I am so sorry but I am afraid that no one will be willing to diagnose here.  We are forum of support.  You are going to need to keep at those doctors for real answers. 

We can offer you support and encouragment while you work on the diagnostic process.  I see that you have posted two nearly identical threads.  You may want to either delete one so you get all your responses in one place or you may want to rename the subject on one. 

There are some here with the diagnosis of MS and others like yourself with no answers.  I am sure others will be along shortly to respond to you. 

I have not experienced random shock sensations that you have described here.  I have had Lehrmittes sign.  That is when you bend your neck so that your chin touches your chest and you get a buzz or shock sensation.  You could google that and see if it describes what you have.  My Lehrmittes was during one of my MS flares.  It can be a symptom of MS but it can also be caused by other spinal issues. 

MS can be difficult to diagnose.  There are many, many other diseases and health issues that can mimic MS.  Good luck in your search for answers.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/10/2008 11:11 AM (GMT -6)   
gonuts said...
I pray someone out there is having the same symptoms as i.  I have recently had my thyroid removed.  I was hopeing after that my shocking symptoms would be resolved.  Unfortunatly, they are still here.   I was started on vitamin d.  I thought oboy 3 days and counting and no shocking!  Man was i upset when they came back today.   I have no idea what this is .   I had an mra done. thinking I had multiple sclerosis.   It came up normal.  I was put on vitamin D by a cardiologist, not that i don't need it.  But he thought it would resolve the shocking feelings.. after 3 days i am now starting the sensations again.  
   If there is anyone experiencing this strange sensation,  it seems to be mostly in my hands head and occasionally into my legs and toes.   but mostly it stays up on the uppper portions of my anatomy.  my eyes are also involved.  split second shocks!!!! over and over again.
   Please respond,  i need all the help i can get. I just want to know the cause!!!!!
 
 
 
As has already been noted, we can't diagnose here.  Here are some random thoughts, which you need to take to your doctor and ask about:
 
1. Thyroid problems can cause a lot of issues to go wrong in your body. Are you on thyroid replacement medications?
 
2. I don't know that vitamin D -- a shortage of it or taking it -- will make a great deal of difference, particularly that quickly (you keep mentioning "3 days"). Lots of medications take awhile to build up in the body, and 3 days isn't enough time for almost ANYTHING to be significant enough to make a difference.
 
3. MRA's are NOT used as a diagnostic tool in MS.  MRI's are.  Are you sure you had an MRA -- Magnetic Resonance Angiography, or did you have an MRI -- Magnetic Resonance Imaging?  They sound alike, and in many ways are alike, but an MRA looks for different issues than an MRI.
 
4. You need to talk again to the cardiologist and see why he thinks taking Vitamin D will help reduce the shocking sensation.  It doesn't sound a lot like the shocking sensation that people with MS have -- L'Hermittes -- but then,
 
no one here is a doctor, and we obviously can't begin to tell you what might be going on. It does sound quite uncomfortable. A call to your doctor(s) tomorrow is probably in order.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/10/2008 12:12 PM (GMT -6)   
I just spent some time searching for any sort of link between vitamin D deficiency and shocking sensations..and can't find anything. That's not to say there isn't a link...I just couldn't find it.

Thyroid problems and a problem with vitamin D deficiency do occur ..at least, that's what I found this morning. So clearly there is a link there. The MRA is used to determine vascular problems. You mentioned that you're seeing a cardiologist, so it seems that he would be the one who you might ask all these questions to, and see if you can get some answers.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/10/2008 12:29 PM (GMT -6)   
I'm a bit confused as to how you went from thyroid to cardio doctor. At any rate i do have shocking sensations that are in the spine and neck. It is termed as uppity mentioned. Mine however isn't brought on by my own tilting of my neck or at least i cant simply bend my head down and make it happen. It may be slightly bent when it occurs. Either way yours in in several areas and even though it largely stays in upper its also went to lower part of your body if I read you correctly.


I am vitamin D deficient. Moderately so..borderline severe. It can take up to 7 months for a person to notice any difference. This all depends upon how severe and how aggressively its treated along with how early its detected.

I do not wish to mislead you, i have never heard of it having anything to do with shocking sensations at all!
Bone pain? yes, some say it helps sleep . Some doctors feel that it mimmicks fibro (muscle twitches and pain)...
Shocking sensations that come and go? no.

I would contact my GP who should have your entire history to include thyroid/surgery/medicine/results of mri<lets hope, and your cardiolgists report. Let your Gp explain to you what they feel they are dealing with. If they dont know as it appears might be the case then you might wish to allow your Gp to run some blood tests to rule out some things (there are a vast amount of contions that can cause all kinds of odd sensations) and your gp might discover it or through speaking with your other doctors' might better understand what the problem is.

If your bloodwork comes back ok, and they feel your thyroid is in no way causing this, then you as a patient do what a patient does. Go back to your Gp and have him/her refer you for further testing that might reveal the problem. That might include Mri/evoked potentials/lumbar puncture.

Take comfort in this: I feel vibrations, yes they are very scary. The pain isnt the problem but the unreal feeling that we as humans don't expect to feel is frightening. I'm sure there is an explanation for whats causing yours and perhaps there is something about vitamin D type of things i havent been told?


Either way it can take up to 7 months of vitamin d to see results in some. Some feel them alot sooner.

Call your General Practitioner and ask what to do from here, as they've all stated above we can't diagnose you and I'm not at all certain your doctors are sure where the shocks are coming from. They will find out. Just be persistent and proactive about your body. Your not alone..others feel shocking sensations too.


thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/10/2008 12:30 PM (GMT -6)   
Oh please ask your Gp if what you describe as split second shocks could be neuropathic in nature, it might help guide you to the correct doctor.
Every day brings us closer to what we reach for .........in all things.
 
Kiera


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 2/10/2008 4:08 PM (GMT -6)   
thank you for your response. I just had my thyroid out last week and the cardiologist was in the hospital due to the fact i had some chest discomfort and he brought up the vit d for the shocks.? He really seemed as though he believed in this. I am taking 2000 iu's a day. I am so glad you said it takes that long, because now i still have some hope to look forward to . thank you again!!!! gonuts

Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/11/2008 6:08 AM (GMT -6)   
Well i am not saying it helps shocks. Im not saying it doesn't , ive just never heard of that.

However i will tell you that one way to diagnose (a doctor does this) vitamin d deficiency is to firmly press into the sternum, it will be tender/swollen, etc....mine was also found by a cardiologist but he only told me to take liquid motrin to bring swelling down for chostachondritis (swelling of cartlidge/ribs, sternum) but later i did find that vitamin D is a big culprit for that and i really dont know why he didnt test for it.


Either way you indeed have time as far as seeing results with vitamin D. Who know's.....

All i know is Vitamin D deficiency can present with bone pain/symptoms that mimmick fibro/ muscle twitches and aches in them....and colon problems.

So id stay on the vitamin d. Ive had my thyroid checked 3 times and my gp said it was fine, the spinal specialist said it was low so i went back to GP who tested again and said it was perfect. So im clueless as to why the spinal specialist thinks im low. I fit the overactive symptoms anyway.


Best of wishes to you. The vit D will take some time but in the meantime document when these sensations happen, if anything relieves them, and keep this dated (it may come in handy) and keep a constant update with your GP, allowing them to know what your experiencing.

thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 2/11/2008 8:32 AM (GMT -6)   
wanting you to know how wonderful you are.  Also, i want you to know my thyroid levels were always in the norm range.  If I hadn't had a cervical spine injury the only way i would have know was to wait longer for the nodules to grow more.  that could have taken some time.   I also hope you find your answers as well.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/11/2008 10:40 AM (GMT -6)   
gonuts said...
wanting you to know how wonderful you are.  Also, i want you to know my thyroid levels were always in the norm range.  If I hadn't had a cervical spine injury the only way i would have know was to wait longer for the nodules to grow more.  that could have taken some time.   I also hope you find your answers as well.
You say you had a cervical spine injury?  Could that be causing the shocking sensations you have ...a damaged nerve (or nerves) somewhere there?  I'll assume you've had your ortho check that out...but if not, that would be a good place to start!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 2/11/2008 5:06 PM (GMT -6)   
hi uppitycats,
 yes that is the one reason that i had the thyroid taken out.  they saw it in my mri.  my neuroligist is aware of the shocking and he wanted me to have the mri to see how the cerivical looked since my surgery 4 yrs ago.  he couldn't see anything but had to deal with the thyroid first.   i am in the healing stage of that surgery now.  Only a week and a half into recovery.  So after that, I am suppose to have a ct scan done to be sure my neurologist didn't miss anything from the mri. Also, my gp and endrocronologist is following up with everything else (vit d and calcium supplememt and my lovothyroxine supplement) 
  it is just so bad sometimes the shocks i feel, like my head is weak and i seem to get nausia from it.   it is somewhat like a hangover, if you have ever had one.  That is the only way to describe the sick feeling part of it.   the rest is just the imbalance of it and the steam sound it makes in my head for that second at a time.
   Thanks for your imput.  Your are all wonderful....gonuts
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