Question about numbness?.....parathesis or circulation

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Kiera
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Date Joined Dec 2007
Total Posts : 364
   Posted 2/12/2008 2:07 PM (GMT -6)   
I have had constant bouts of things falling asleep when not altered/pressed on or whatever.
 
such as both legs being asleep from hips down upon waking. Hands falling asleep off and on multiple times a day.
 
The one that I wonder about now is one that is a little bit more obvious to the reason.....i dont really know if im asking even a valid question.
 
But if i cross my foot my right one will go to sleep..everytime. To the point of nonmovement until i get circulation back into it. Of course we all have had things in life , we cut off the blood and it will go to sleep.
 
But before i had more in that foot of it going numb when it wanted to.
 
I'm curious as to the severity of the numbness when crossed only for a few minutes.
 
I guess what im saying/asking is, isn't this more of a circulation thing, or this common with MS people?
 
 
thanks
 
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/12/2008 4:05 PM (GMT -6)   

I can't answer your question.  I can only describe the numbness/tingling I have in my feet and legs -- moving them does not change the sensation. Changing position  does not help to increase or decrease the numbness/tingling.  There is nothing I can do to "improve circulation" that will change the numbness/tingling sensation.

I DO occasionally not realize that I'm pressing on a nerve or compromising circulation in my feet (primarily for me it occurs in my feet)...and while the sensations are similar, there is enough difference that I notice, move my foot, and when the circulation returns to normal, there is a different sensation. Still numbness/tingling, but "different". (I know, that's not real helpful!)


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
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Date Joined Jan 2007
Total Posts : 3032
   Posted 2/12/2008 5:17 PM (GMT -6)   

I pretty much have the same as Uppitycats.  I have numbness that is ever present.  My feet are pretty much totally numb on a shallow skin basis.  (it was loads of fun to get that tattoo - no pain at all).  I have time where the numbness or sensory stuff is worse.  It gets icy-hot like bengay cream.  But my feet are always numb.  Nothing I do makes it better. 

For me, anyway, it is not circulation related.  It is just evidence of damage to the central nervous center.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/12/2008 9:31 PM (GMT -6)   
I thank you both for responding. Ive also talked to ms people who dont have it constant but come and go. This one seems very circulation related though and that throws me off...and so easily to be done. Meaning im constantly finding myself doing it and it becomes to where i cant move it for awhile til circulation is back in. Other things fall asleep without impingement..
feet..hips....face....hands...u name it but it returns off and on, off and on. They said this was from the Ms.

I can imagine that some would have it to where it does remain constant. That is sad. Mine does not thankfully but its a who knows whats falling asleep this time thing. Might be right hand, might be left leg...etc.

So, i guess when this right foot became very apparent that it was happening from lack of circulation it just brings that Cic thing back to my mind.

The horrible part it those tests all came back good. I say horrible because it seems to always avoid something you can pin down.

I have the dx.......but i just seem to have (well ill say something in next para also) things that dont add up.

then again, as i said i have friends in real life with it that have this off and on thing. And if i look it up i can find where it will happen and it does indeed come back. Sometimes within 24-48hrs. But mine is more places /more often but for less time.

Im not sure though from reading all the posts i've answered myself that it's ever in a neat gift box that always fits each person the same. For instance, right now my entire left thigh is quivering.


I guess i just go with the flow. I also have alot of pain that i do not see people mentioning much of. But then again i visited with a highshool chum who has MS and has had it for years and he's in constant pain.

It just doesn't always seem to add up.....

Kind of like the vibration thing when you ask some, they've had it. Other's never.


thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/12/2008 9:37 PM (GMT -6)   
Oh also as far as pain. I have a ton of uncomfotable and downright painful sensations daily. Like my ribs are broken but hey arent. Or aching in my muscles to a degree of feeling like ive been beaten with a fist. I can look around on this forum for different ailments and they all discuss pain.

I dont see that here.

I'm not sure if it's because i have it and other's do not or if it's because this is a board that tries harder at support and emotional upflifting.

I just dont know. I have days that the pain (global and intermittent and migratory) makes me think i cant hold on.

Then it may dissipate. The guy from highschool that i visited definitely spoke of this same thing but again,
on this board i see no mention of it.

Maybe im a wimp but ive always endured alot and never thought that i was.


The mattress cover I got ms. uppity is great, ty!



kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3032
   Posted 2/13/2008 8:36 AM (GMT -6)   

Hey Kiera,

I have had some pain but for the most part (thank goodness) I am usually pain free.  I know of some with MS that do have pain.  MS pain can be quite severe.  MS pain seems to come from two different things and is treated two different ways.  There is pain from spasticity and that is treated with muscle relaxers like baclofen.  There is also nerve pain, I am not sure of all the treatments for that.  I know that some use neurontin.  Because that pain is associated with the CNS, some doctors will write scripts for antidepressents.  Anitdepressents work on the CNS and can decrease nerve pain.  That is why for some cymbalta works.  Others, if the pain is mild, will have success with over the counter drugs like ibuprofen. 

I have had pain from spasticity and I have had just a bit of nerve pain.  None if it is fun.  It can be difficult to find something that really works.  Chronic pain can be debilitating.  It can just suck the life out of you. 

You seem a bit frustrated with your pain.  That certainly understandable.  You also seem to be questioning your diagnosis a bit.  Are you ok with your MS diagnosis?? I know that can be a really difficult thing for some.  It was for me.  You said that "those tests all came back good."  What tests would that be?  I also know that you are looking into other health issues.  Good luck with that.  I hope you are finding the support you need here.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/13/2008 8:50 AM (GMT -6)   

I think people experience pain in very different ways.  It's not a matter of "being a wimp"..its likely more a matter of what one gets used to.

For example, I have severe spasticity in my legs, such that I am not able to walk. Painful? Indeed. Like having continuous "charlie horses".  My big toes on both feet are constantly curled upward, making it difficult to find comfortable shoes.  They are always feeling like they are cramping (although there is no discernable movement; the doctor says the tendon is just stretched to its maximum).  I have lots of sensory stuff -- the constant numbness and tingling from torso to toes, an area on my back that constantly itches...  But I don't take meds for it, as they didn't seem to help much (I acknowledge here that I haven't really talked about it with doctors over the last 10 years...so many some of the new meds would help), and I don't like to take more meds than I think I "need".

I've had most of this for 25 years now.  I've gotten used to it.  It's just "there", part of my new reality, and so I don't always think about it, or feel a need to talk much about it.  But if someone asks, I'll tell them. 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/13/2008 10:23 AM (GMT -6)   
Hey Kiera

I don't have ms (in limbo) but i DO have pain. My legs are my worst prob. They hurt very often and i take neurontin for that. I also have that infamous eye pain now dx'd as ON. I get pains in my arms as well, but nothing to compare to the intensity in my legs. I guess this isn't really a good answer since i don't have ms, but given that i'm still in limbo this may lend to u'r feelings that u'r pains are part of u'r ms. MS and pain CAN/DO go hand in hand many times! If u'r not sure of u'r dx, get a second, but if u are u need to address all this with u'r doc at u'r next appt. U shouldn't have to live with pain daily. There are meds avail to either relieve completely or partially u'r pain. It may be a matter of adjusting the dosages or of finding the right med, but u should be looking at this with u'r doc until u'r satisfied u have this under control. Take care and don't sit on this.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/13/2008 11:16 AM (GMT -6)   
Let me kind of take this in order please.

Gretchen thank you. I suppose at times i question it. Although to be very honest it's become so obvious in the spasticity part that it really makes total sense that MS is the answer. Ive had 2 top hospitals say so. I guess when local docs questioned it at the beginning it really was just limbo even with a diagnosis i wasnt so sure they were right. As it progressed the obvious ON with the jabs (nerve pain) and then the ankles etc...that i can speak about and others have. I guess i know i def have it. It's just that last doctor putting a question to it all and suggesting i had something that was fooling the neuro's and implying it was Cic. Although all those tests came back fine. The renal part is very odd. I have the blood and protein, but my creatine and bun (kidney funtion) comes back fine. I guess ive had all the opinions i really can get. They all conclude MS....but then theres these other docs that throw a question mark and i begin to wonder. I think its part of emotional acceptance?.......

Also i appreciate your input Rhonda hun. I have that ON and i know how the eyes can be so troublesome. Just wish you could yank them out, rinse them off and put them back in..after stopping the ache of course. I'm sorry your going through the limbo. I think when its a solid dx after alot of limbo ....sometimes the person takes a little bit of time trying to get all of that limbo junk out of their minds.


Ms. Uppity i most certainly appreciate your honesty of your pain. You've had this so long and have obviously came to acceptance of so many hard things. I admire you and i sympathize with you also. I think possibly your statements are what im saying. Im just newer and more scared and not totally yet giving up that "fight of wishing it wasnt"....

I hope more than anything that soon...very soon i can simply adjust. I know its day by day and for me as well as alot of you, hour by hour, minute by minute. and Ms. Uppity you've been through all of these things and more. I can totally see your reluctance to alot of meds. there are so many side effects and that confuses me more. I can find relief. I'm scared that ill end up taking pain pills and i dont want an addiction. Although the spinal rehab center they sent me too feels i have to. They list me as Chronic and Severe, due to spinal changes and severe encroachment of the neural foramen (root nerve). They want me to take 2 oxycontin a day! I cant. Im too scared to. They say its not addiction when you need it. I soooo dont want to rely on that but my quality of life is floating right now. Either i will be able to adjust like you and accept...or ill have to come to terms with pain medicines.

Very hard choices when its your body and you are not a drug seeker.


I appreciate all of you for not minimizing me. I really do know the MS is it. I just dont know if there is a second issue....because of that last doctor. Ive got to reach a place of accepting those tests were normal so he was wrong...or going back to the clinic of Rheumatology at the larger hospital to really be sure. I'm so sick of doctors , I feel that depression is setting in.

I dont mean to bring the board down in spirit or in being encouraging. I really DO wish the best for all of you and when i reach where i need to be with acceptance and decisions on this pain, Ill do my best to support you all as well.

thanks so much


kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/13/2008 3:18 PM (GMT -6)   

Taking pain medication when you obviously need pain medication...even oxycontin...will not cause you to be addicted to pain medication.

I know 2-3 weeks is a long time to have to suffer...but you might want to get through the sleep study before you add on or change medication, as that might show something treatable (with meds) and all those meds would need to be adjusted and maybe changed to accommodate each other.

I do hope you've talked with the clinic where the sleep study is being done to ask some very basic questions, like:

1. What do I need to bring with me to be comfortable through this? (will they allow you to wear your own sleep garments, for example, and not that silly hospital robe thing?).

2. What do I need to do if I wake up in the middle of the night and need to use the bathroom? Who will help me? What will that entail?

3. Should I stop taking in liquids 2-3 hours before the study is done? (which will maybe help you not have to go through the bathroom routine)

4. Should I take my regular meds that day, at the usual times?

Good luck with that. I hope all this comes together soon with some concrete answers for you.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/13/2008 4:06 PM (GMT -6)   
Whether you think so or not ms. uppity you are a God send.

The sleep place called me and we discussed the bathroom issue and they told me to arrive at 8 at night. Then i would have my hubby follow me in so that id have a car there the next day to get home while hes working.

The liquid part wasn't discussed but whew im glad you said it! I surely know i do not want to be up all night with those wires on me and im also sure it wouldnt be great for the study.

I do have to stay half of the next day for naps in front of them. Past few days ive been awake with Zero naps so it really seems like seizures might be what is happening..the naps i think are done for narcolepsy which also needs looked at.

I do wake up every morning with film in my mouth (mouth hung open id guess) they thought that was significant (apnea possibly..i dont really know).

The med thing ill take them in and let them decide if i take lunesta or i take nothing. Ill give them a call about the other daytime meds ....i can probably not take any , most are prn.

As far as what i wear again ill just take something in case..but if im not allowed ill be ok for that.


I hope it reveals something concrete as well, thank you very much. Concrete certainly is the opposite of limbo huh? lol.

I guess i sincerely have to accept that i know im in this pain and not to keep guessing myself.

When i was at that Rheumy's office (dont know if i told you people, it made me ashamed almost)

after the 30 minute chat about not taking neurontin he then said "you also need to get off ((your)) gutteral medicine.

I asked, excuse me ? Gutteral and he said yes.

I had it there in the bag i carry to show him and had listed it but wasnt taking it. If he'd of cared to of been polite i would of admitted my fears, but when he said that at the end of all the rest , i wanted to throw it at him and ask how i could be gutteral when it wasnt in me!!!

of course i didnt do that.......i just went into a huge flare as you know...

That on top of my own hesitation of the pain meds makes me feel like im dirty if i take them or something.

My Gp is very sweet and a very qualified doctor and sent me to the spinal rehab place that put me on these meds.
My neuro also is very aware of it.

To have a doctor refer to you ..or your meds as gutteral really didnt help our doctor/patient feelings toward one another.

So sad to be judged and suffer. Then suffer to keep from being judged.

I appreciate your typing this back to me, more than you will ever know. I'm going to print this out for when i feel badly about this issue.

I wont add anything prior to the study. I agree that i want to know a "clean and sure" answer without a medicine mixup on this sleep center.

thanks again,

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/13/2008 4:14 PM (GMT -6)   
What on earth did he mean by "gutteral medicine"??? Boy, I'd sure cross HIM off my list of doctors to pay attention to!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/13/2008 4:41 PM (GMT -6)   
omg..i was so scared to even tell you people.I thought youd also say it. Im crying again (gonna need to invest in kleenex lol)...

he meant i was a drug user i guess, what he didnt know was i couldnt get myself to take them. I coudlnt at that point say anything for fear of exploding. I was gaining symptoms by the minutes as he snickered and would scare me then minimize it..back and forth...

after having arrived at like 2 and seeing him at...7 when he finally peeked in the room. Omg was i hurting when i left there.............

I guess there is so much abuse of things that he felt the right to judge it. He swung his own arm around to show me just how well he is from "his excerises".
I did call the next day to tell his nurse id not ever be his patient...(fired him so to speak).


thanks

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/16/2008 10:50 PM (GMT -6)   
Hi, i'm new to your chat room,I will tell you that my son has been dealing with the pins and needles and numbness in his hands and feet for a year,he's still trying to recover from a relaspe of a year ago...It may sound funny but his chriopractor ajusted him a few times a week and it helped alot he can feel his hands now(pretty good), and the numbness is gone.We try everything available to help him.Every day is a new day..best to you!!!!!!

unwillinghostess
Regular Member


Date Joined Jan 2008
Total Posts : 63
   Posted 2/19/2008 2:33 AM (GMT -6)   
Keira,
    I've been having problems also with limbs easily falling asleep dozens of times throughout the day. It usually goes away when I move them and get the blood recirculating but sometimes the pins and needles will last for hours. I also have numbness that comes and goes. It will show up anywhere from just a toe to my lips and teeth and may last days to months. The docs thought I had MS but nothing was showing up on the MRI's. I switched doctors and have recently tested positive for Lyme disease. Many Lyme symptoms closely mimic MS. Axonal peripheral neuropathy, problems with the eyes, spine, and bladder. It might be worth looking into if you haven't already. Take care.

1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/19/2008 4:04 AM (GMT -6)   
dear un:Does Lyme disease stay forever? I have no clue on this disease.
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/19/2008 9:07 AM (GMT -6)   
1mom said...
dear un:Does Lyme disease stay forever? I have no clue on this disease.

If Lyme disease is caught and treated very early it'll go away. But of course you can get Lyme again if you are bitten by a lyme-bearing tick.  But if it is NOT caught very early, then it becomes systemic and can damage your nervous system and other internal organs, and become chronic, or "stay forever".
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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