I can't answer your question. I can only describe the numbness/tingling I have in my feet and legs -- moving them does not change the sensation. Changing position does not help to increase or decrease the numbness/tingling. There is nothing I can do to "improve circulation" that will change the numbness/tingling sensation.
I DO occasionally not realize that I'm pressing on a nerve or compromising circulation in my feet (primarily for me it occurs in my feet)...and while the sensations are similar, there is enough difference that I notice, move my foot, and when the circulation returns to normal, there is a different sensation. Still numbness/tingling, but "different". (I know, that's not real helpful!)
I pretty much have the same as Uppitycats. I have numbness that is ever present. My feet are pretty much totally numb on a shallow skin basis. (it was loads of fun to get that tattoo - no pain at all). I have time where the numbness or sensory stuff is worse. It gets icy-hot like bengay cream. But my feet are always numb. Nothing I do makes it better.
For me, anyway, it is not circulation related. It is just evidence of damage to the central nervous center.
Love and prayers,
I have had some pain but for the most part (thank goodness) I am usually pain free. I know of some with MS that do have pain. MS pain can be quite severe. MS pain seems to come from two different things and is treated two different ways. There is pain from spasticity and that is treated with muscle relaxers like baclofen. There is also nerve pain, I am not sure of all the treatments for that. I know that some use neurontin. Because that pain is associated with the CNS, some doctors will write scripts for antidepressents. Anitdepressents work on the CNS and can decrease nerve pain. That is why for some cymbalta works. Others, if the pain is mild, will have success with over the counter drugs like ibuprofen.
I have had pain from spasticity and I have had just a bit of nerve pain. None if it is fun. It can be difficult to find something that really works. Chronic pain can be debilitating. It can just suck the life out of you.
You seem a bit frustrated with your pain. That certainly understandable. You also seem to be questioning your diagnosis a bit. Are you ok with your MS diagnosis?? I know that can be a really difficult thing for some. It was for me. You said that "those tests all came back good." What tests would that be? I also know that you are looking into other health issues. Good luck with that. I hope you are finding the support you need here.
I think people experience pain in very different ways. It's not a matter of "being a wimp"..its likely more a matter of what one gets used to.
For example, I have severe spasticity in my legs, such that I am not able to walk. Painful? Indeed. Like having continuous "charlie horses". My big toes on both feet are constantly curled upward, making it difficult to find comfortable shoes. They are always feeling like they are cramping (although there is no discernable movement; the doctor says the tendon is just stretched to its maximum). I have lots of sensory stuff -- the constant numbness and tingling from torso to toes, an area on my back that constantly itches... But I don't take meds for it, as they didn't seem to help much (I acknowledge here that I haven't really talked about it with doctors over the last 10 years...so many some of the new meds would help), and I don't like to take more meds than I think I "need".
I've had most of this for 25 years now. I've gotten used to it. It's just "there", part of my new reality, and so I don't always think about it, or feel a need to talk much about it. But if someone asks, I'll tell them.
Taking pain medication when you obviously need pain medication...even oxycontin...will not cause you to be addicted to pain medication.
I know 2-3 weeks is a long time to have to suffer...but you might want to get through the sleep study before you add on or change medication, as that might show something treatable (with meds) and all those meds would need to be adjusted and maybe changed to accommodate each other.
I do hope you've talked with the clinic where the sleep study is being done to ask some very basic questions, like:
1. What do I need to bring with me to be comfortable through this? (will they allow you to wear your own sleep garments, for example, and not that silly hospital robe thing?).
2. What do I need to do if I wake up in the middle of the night and need to use the bathroom? Who will help me? What will that entail?
3. Should I stop taking in liquids 2-3 hours before the study is done? (which will maybe help you not have to go through the bathroom routine)
4. Should I take my regular meds that day, at the usual times?
Good luck with that. I hope all this comes together soon with some concrete answers for you.