might have found some answers to my own questions

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Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/12/2008 9:44 PM (GMT -6)   
Numbness<<<i went to view this and it describes what im trying to say in general. Then i hit their pain part.
 
I do realize that we need to be careful of different web sites online. However, i checked with several to make sure it was something mentioned in most before putting this link here.
 
If anyone else suffers from pain.
 
Or for those of you who experience these shocks/vibrations and wonder about them it probably wouldn't hurt to take a peek and go through the different topics to see if it describes you to some degree.
 
 
thanks
 
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/13/2008 8:33 AM (GMT -6)   

McFox is not a doctor, though he tries to play one on the internet.  He isn't a scientist, nor MS expert...but goes from site to site collecting information, some of it actual and factual, a lot of it anecdotal..

meaning.."Yes!! I feel that way too!!!" -- story-telling, amateurs comparing symptoms, without much basis in fact or actual medical knowledge. 

So be careful with what you read at his site.

I read his description, realized I'd read it before, somewhere else, and went digging.  Here it is again from the book, "Multiple Sclerosis, The Questions You Have -- The Answers You Need", edited by Rosalind C. Kalb, Ph.D. Rosalind Kalb is a clinical psychologist at the MS Care Center at St. Agness Hospital in White Plains, New York, and Clinical Assistant Professor of Neurology at New York Medical College...  so reasonably legitimate.

Her book is arranged as if someone was asking a question, and then it will be answered (not all by her, but by a team of MS specialists).  Here is the section from the book which McFox nearly quotes without attribution:

"My hands and feet often get numb or feel like "pins and needles."  Are there any medications for this problems?"

"Pins and needles" are one example of sensory symptoms in MS. Sensory symptoms are those that a person can feel but for which the physician cannot see objective evidence during the neurologic exam.  Other examples include numbness, tingling decreased or blurred vision, dizziness, or pain.  These symptoms occur because of demyelination in the sensory pathways of the spinal cord or brain.  Although they can be quite uncomfortable, sensory symptoms are generally considered relatively benigh because they tend to come and go without severely restricting a person's ability to function.  Although there is no specific medication for most sensory symtpoms, antiseizure medictions, such as gabapentin (Neurontin), carbamazepin (Tegretol), and valproic acid (Depakene) may decrease their intensity.  A tri-cyclic antidepressant medication such as amitriptyline (Elavil) can provide some relief, particulary if the symptoms are painful. In the meantim, remember that these symptoms tend to go away on their own and seldom signal significan't impairment."

This book, by the way, can be found in most libraries. The publisher donated several thousand copies to libraries across the US, and it's even in my small-town (population, 2,000) library. I consider it an excellent source, whether you're in limbo, newly diagnosed, or long-time person with MS.

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 2/13/2008 11:27 AM (GMT -6)   
Thank you very much. I have the pins and needles and they definitely come and go. Not so bothersome to me in comparison of other things. Even when my legs (entire legs) fall asleep or become dead for periods of time (not permanent), i dont mind....I dont wish to take a medicine for that. I have more neuropathic pain than i know what to do with.

One reason i know this is when i do allow myself to take a neurontin it does ease it. Which is further evidence that it is neuropathic. I have alot of spinal pain and i think that alot of my pain comes from that. Of course this all still is within the CNS involvement.


I thank you for sharing with me this book. I am going to try and obtain a copy of it and it seems from what you say,not very difficult to get. If nothing else im sure i can get a copy from online.

I have alot of sensory come and go's alot of sking burning in different places as well but again, that is not anything i worry about.

Ive adjusted to all the numbness, tingling, pins needles are very mild compared to spasticity (as you know).

The spasticity is for however long it decides to last, can be painful indeed but again not my worst worry. Baclofen as needed seems to help that. Theres some kind of pain that is deeper and in my spine.
According to the spinal rehab center, its from severe encroachment of the neural foramen? No surgery for it but injections, and that does relieve it until the MS flares and then its like i have so much pain through my back/shoulders/neck/arms...that its overwhelming.


Thanks again


kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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