Vertigo was my presenting symptom. I have had it ever since. I have the same sensation you have, that feeling of movement or like I am on a boat. The only difference is that I don't have this stop when I am in motion. I have to be very careful when I move. I have to be careful because in addition to vertigo I also have balance issues. I MUST look where I am going. There is no looking over my shoulder as I walk or down I go. According to my neuro, this is due to a lesion on my cerebelum.
Keep record of this and let your doctor know. I know you are just starting the diagnostic procedure but do make sure your doctor is aware of this.
Love and prayers,
Vertigo was my first symptom as well. I have CIS (one “ms attack”). I woke up dizzy one morning. Over the following weeks it went through different stages. In addition to constant dizziness, I went through intense spinning, and then the world began tipping down to the left. The left side of my face and my left arm became involved in numerous daily attacks of uncontrolled movement, which coincided with intense dizzy head rush sensations (neuros called it ataxia).
Like Gretchen, I have a lesion on my cerebellum that nueros say is the cause of all of this. I have residual issues with balance, dizziness, and also the left side of my face and my left arm. When I get fatigued, my eyes often still feel like they briefly “jerk,” the world spins a bit, my left arm and the side of my face go “weird,” and then I will have a period of heightened vertigo.
I find moving increases my vertigo. When I had intense spins I didn’t know where I was in space, and at one point felt like I literally couldn’t move. The only time I’ve ever had moving help like you describe, was after a plan ride. I felt like the floor was moving, and walking along with it made it less noticeable. Is this what you are feeling? I hope you find some answers and relief soon! Vertigo is certainly a big drag.
I was on Serc (something like antivert) for a while but it did not help. I tried Ventigoheel a homeopathic med and that did nothing either. After all of that I had physiotherapy and acupuncture with no luck. I am presently waiting to see a neurotologist. My ENT is sending me to see one. Until then I'll keep on rocking! I am lucky though because I never have nausea.
"Be yourself. An original is always worth more than a copy."
Dx'd with Ulcerative Colitis (pancolitis) 2004 in remission...no meds!
2008...Multiple Sclerosis...Avonex once weekly