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Nicaribbean
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/16/2008 1:46 PM (GMT -6)   
Hello,
 
      I was wondering if those of you that suffer from vertigo could describe what kind of vertigo they have. My form of vertigo is the feeling of being on a ship. It's a rocking/swaying kinda feeling. Once in a while I get a bobbing feeling. I fell this all the time, it never stops. The only relief I get is when I am in motion. Does anyone else here have this?
 
 
                             Sincerely, Nicaribbean
Nicaribbean


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 2/16/2008 6:32 PM (GMT -6)   

Hey Nic,

Vertigo was my presenting symptom.  I have had it ever since.  I have the same sensation you have, that feeling of movement or like I am on a boat.  The only difference is that I don't have this stop when I am in motion.  I have to be very careful when I move.  I have to be careful because in addition to vertigo I also have balance issues.  I MUST look where I am going.  There is no looking over my shoulder as I walk or down I go.  According to my neuro, this is due to a lesion on my cerebelum.

Keep record of this and let your doctor know.  I know you are just starting the diagnostic procedure but do make sure your doctor is aware of this.

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 2/16/2008 9:53 PM (GMT -6)   
I too had vertigo for my inital sypmtom Ifelt like I was in a trance I would be so dizzy when it struck I couldnt be sure if I was sitting or standing so I fell alot...Antivert and valium mix helped......I wore the motion sickness patches but I had a bad reaction to them. Now 24 yrs later I still have no balance but I only suffer from vertigo when I move too quick..Haha which doesnt happen alot..The nic fits..pokey79 I can say and I am sure Gretchen agrees it is a horrible sensation..Good Luck to you I hope they find something to ease it some......Pokey
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/16/2008 10:13 PM (GMT -6)   
My son presented with vertigo. three years ago. He had severe relaspe 1 year ago.is still suffering with nystagmus.(eyes beating in downward direction).Valium has worked very well,at the worst time of his vertigo,,he's taking Klonopin now to settle the eye movement which is caused by the leision on the brain stem(which in turn causes vertigo like symptoms).Maybe you could try a little Valuim. yeah

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/17/2008 12:39 PM (GMT -6)   

Hi Nicaribbean,

 

Vertigo was my first symptom as well. I have CIS (one “ms attack”). I woke up dizzy one morning. Over the following weeks it went through different stages. In addition to constant dizziness, I went through intense spinning, and then the world began tipping down to the left. The left side of my face and my left arm became involved in numerous daily attacks of uncontrolled movement, which coincided with intense dizzy head rush sensations (neuros called it ataxia).

 

Like Gretchen, I have a lesion on my cerebellum that nueros say is the cause of all of this. I have residual issues with balance, dizziness, and also the left side of my face and my left arm. When I get fatigued, my eyes often still feel like they briefly “jerk,” the world spins a bit, my left arm and the side of my face go “weird,” and then I will have a period of heightened vertigo.

 

I find moving increases my vertigo. When I had intense spins I didn’t know where I was in space, and at one point felt like I literally couldn’t move. The only time I’ve ever had moving help like you describe, was after a plan ride. I felt like the floor was moving, and walking along with it made it less noticeable. Is this what you are feeling? I hope you find some answers and relief soon! Vertigo is certainly a big drag.

 

Sunny


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 2/17/2008 2:48 PM (GMT -6)   
Hey Nic,
 
I too have suffered from vertigo, other than being dizzy and needing to move very slowly like the others have already said, I was so very nauseaus.
 
My doc recommended antivert, when I got it at the pharmacy, the pharmacist said take a loading dose of two, then 1 every 4 hours I think, or whatever the box said (fog, sorry).  It really helped me that way.
 
Good luck.
Debbie

Nicaribbean
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/17/2008 6:01 PM (GMT -6)   

Hi,

     I was on Serc (something like antivert) for a while but it did not help. I tried Ventigoheel a homeopathic med and that did nothing either. After all of that I had physiotherapy and acupuncture with no luck. I am presently waiting to see a neurotologist. My ENT is sending me to see one. Until then I'll keep on rocking! I am lucky though because I never have nausea.

 

                     Sincerely, Nicaribbean

 

                                           

 


Nicaribbean


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/17/2008 7:31 PM (GMT -6)   
1mom said...
My son presented with vertigo. three years ago. He had severe relaspe 1 year ago.is still suffering with nystagmus.(eyes beating in downward direction).Valium has worked very well,at the worst time of his vertigo,,he's taking Klonopin now to settle the eye movement which is caused by the leision on the brain stem(which in turn causes vertigo like symptoms).Maybe you could try a little Valuim. yeah
You might want to encourage your son to join this forum.  He'll be among people his own age (many of the posters here range in age from late 20's to 40's...I'm one of the old ones at 61) and his personal experience might be helpful for others.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/17/2008 8:20 PM (GMT -6)   
  I think he's into the my space thing,young people share their MS stories...there also.Thats certainly out of my relm.I have received some peace knowing that I'm not alone..dealing with his illness.This may become my own private world.I probably won't ever go to group meeting for MS families or any thing like that, I help him keep his home up,cook, laundry, chores etc.That takes most of my time,He can rest without worry about the small stuff.When he gets  home from work he's spent.What I do is small pototoes, what he does every day to get through...is remarkable.

its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


Quack
Regular Member


Date Joined Feb 2008
Total Posts : 29
   Posted 2/18/2008 2:51 PM (GMT -6)   
I don't know if this is Vertigo? My spells have been happening for a few years now...but did happen about 10 years ago and went away after 6 months...the Room will all the sudden move back and forth...sometimes my eyes will move as well. I cannot stay up..I fall over or hold on to the chair..My head and body fall like dead weight. It last for about 10 - 30 min. I'm nauseated and tired afterwards. I will be offbalance for the next few days or so.
quack

1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/18/2008 8:51 PM (GMT -6)   
My son suffers from Nystagmus..eye movements which beats downward.There area lot of different types around 78 the Professor @ U of M tells us.In the severe part of his relaspe he could not move off the sofa for 3 months.when he opened  his eyes the vision was like a TV screen rolling downward... days of vomiting.But the symptoms he gets from the eye movemts (which are constant)are vertigo symptoms.He uses a cane,for security blanket,,Hes strong body wise,he has used valuim  which helped alot ..now he takes klonopin for the nystagmus.Bottom line he has had similar episodes the first years he was dx.his were milder in form but lasted, longer.He said afterwards the episodes made him feel like he was severely hung over.If your eye are jittering side to side.Their are meds that can help..make you more stable.Good idea to have your eyes check out. Sincerely..1MOM

its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


mamana monster
Veteran Member


Date Joined May 2004
Total Posts : 2236
   Posted 2/19/2008 8:57 AM (GMT -6)   
I have these moments of vertigo as well. I try to explain it to friends because I never know when it will happen and honestly I feel so stupid when I'm standing talking to someone and BOOM! all of a sudden I feel like I have been either drinking for a week straight or just gotten off a merry-go-round. I also get eye issues with it, feels like something is pulling my eye and I get blurred vision. This was one of the reasons that I decided to start Avonex, it really scares me since I don't know when it will hit. My hubby travels a lot of the time so I worry about driving, etc. I don't have family that lives anywhere close to me so don't really have anyone to drive me to the store, bible study, etc.
 
Just wondering what everyone else does when they are out and one of these episodes hit? How do you explain it to people when you are in the middle of a conversation? Most of all is there anyway to control it when you need to drive? I guess the Avonex will help at some point? Do I need to talk to my neuro about additional meds? I feel like I am losing my independence sometimes... sad
 
Blessings!

 

 

"Be yourself. An original is always worth more than a copy."

 

Dx'd with Ulcerative Colitis (pancolitis) 2004 in remission...no meds!

 2008...Multiple Sclerosis...Avonex once weekly

 

 


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 2/19/2008 11:36 AM (GMT -6)   
I get something weird also, I think it could be Vertigo?! The best way I can describe it is when I'm laying down I feel like I'm in a fat suit, like my body is really huge. And there is a constant heart beat feeling through my whole body that feels like everything is zooming in and out, kinda like a camera... I know it sounds confusing but that's the only way I can describe it.
-Tertle


dealin83
Regular Member


Date Joined Feb 2008
Total Posts : 36
   Posted 2/19/2008 2:29 PM (GMT -6)   
hey nic,
I too had vertigo as my presenting symptom of MS. Same feelings, but for me it was more like having drank to much and having perpetual spins. Awful..I know but for me once I was diagnosed and began treatment my vertigo symptoms subsided alot. I still get dizzy from time to time and have to be careful when i stand up or turn fast. Stay strong i know how hard it is.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/19/2008 2:52 PM (GMT -6)   
Quack said...
I don't know if this is Vertigo? My spells have been happening for a few years now...but did happen about 10 years ago and went away after 6 months...the Room will all the sudden move back and forth...sometimes my eyes will move as well. I cannot stay up..I fall over or hold on to the chair..My head and body fall like dead weight. It last for about 10 - 30 min. I'm nauseated and tired afterwards. I will be offbalance for the next few days or so.
quack
This sounds VERY much like a seizure disorder, especially the feeling nauseated and tired part. You really need to see a neuro and be tested for that.
 
Vertigo is "dizziness", like the room spinning, the sensation you get if you step off a carnival ride, for example.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/19/2008 7:19 PM (GMT -6)   
They tryed to say my son was having seizures, they said the symptoms are related to the brain stem area..there was no leision there.2 years he suffered with this...bam..he called stranded out 45 minutes away having dinner..vertigo, vommiting.i rescue him many times.Quess what .they stopped...1 year later..huge leision hit the brain stem.His doctor is the professor of MS, @ U of M hospital, in (Michigan).Says they are working on a theory of blood flow...which he interpeted to us,as  
symptoms of leisions..that have not appeared yet but are causes havoc before it actually strikes that area.At these times of his episodes, i have taken him to ER..it has showed Nystagmus the eye movement..disorder,sometime week intervals  sometimes months..now after the relaspe..it has not left..just slowed down, to where he can function with medication.
After he had the relaspe they finally said..quess we thought it could have be seizures , but it was a warning sign..for that leision. (no way to predict)? seizures=no..meneires disease=no..all tests neg.   MS=yes ?????????????
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM

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