I am so sorry to hear that you are feeling like this. You must be terribly frustrated. I know that I am frustrated for you. You really were doing so well and feeling good. I am glad to see making changes. I truly, truly hope and pray that the Tysabri helps you. Keep strong dear friend.
Love and prayers from Rhonda house!!
I know the tysabri is a big step for you, and I truly hope it helps. I’m really sorry you are flaring and so uncomfortable right now. Please do let me know if I can do anything to help you.
I do have a question, about flair ups..... I hear where people have been good for awhile, and then have a relapse. What do you mean by this.....when you have an attach, what happens.....the reason I ask this is:
I was dx in Decembeer with MS.....I started copaxone right away. I get neck stiff necks, and neck aches, some headaches from time to time, some lower back aches. My fingers are kinda numb and tingly sometimes, and sometimes not. This can change several times every day. It is noticeable when I get up in the morning, and before I go to bed, but my hands can be symptom free all day long. It almost seems to be posture related. Same with the shock feeling when I bend my head forward. Sometimes it is there, and sometimes it is not. Again this can change several times a day. It seems more noticeable during the evening hours then during the day. As I sit here right now, my hands feel good, and no shocking feeling, but that could change in the next hour.
I guess what I am saying, is that I stay pretty much the same from day to day, with little to no change, except for the changes that happen throughout the day. When I am feeling the symptoms during the day - is this a flair up? And if not, why would my hands feel good one minute, and the next, they could be tingly and numb.
Thanks, and have a nice day