Parents chat room-(whos children have MS)?

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1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/17/2008 7:40 AM (GMT -6)   
Hi, I'm new to the chat room thing...but I'm looking for parents( Mom or Dads)that have a child with MS.My son is 30 and I have devoted much of my life,trying to help him each day.His relaspe was severe one year ago.and he still has effects left over from that.Things are OK , he is back to work now.He suffers from Nystagmus (eye jitters)..and  vertigo symptoms. I am divorced and stay close to him for support,we have each other.People don't understand. They look at him and say ..how handsome he is and what a positive attitude he has..and in fact ..he is my Peaceful Warrior.Any thoughts?

Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/17/2008 1:39 PM (GMT -6)   

Welcome 1Mom,

 

I’m not sure how many parents we have on this board, but hopefully there will be someone you can connect with here. You might check out the link below for some info on support groups and resources for parents. The National MS Society would be able to tell you more about specific resources, and their contact info is at the bottom of the page.

 

http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_spotlight_selfhelp

 

Best of luck to you and your son. He is really lucky to have such a dedicated mom, and I’m glad you’re looking to get some support for yourself. J

 

Sunny


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/17/2008 2:57 PM (GMT -6)   
How old was your son when he was diagnosed with MS?

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 2/17/2008 5:22 PM (GMT -6)   
He presented 4 years ago Feb 8. @ 27 years old.He had a few episodes where the room was tilted to the right when he was at work,This happened twice . I took him to the family doctor,he inturn sent him for a MRI.We got a call 2 hours later saying he had a brain tumor..We ems him to U of M..hospital.They said they would not agree,It could be MS. One year later it took for another lesion to appear..(every 3 months he had MRIs)Then they dx him 3 years ago.Started him on Rebif...a few more lesions 2 years ago....Last year he was hit hard with a giant lesion in the brain stem,1/4 inch away from the area in the stem that could have paralized him. He has just regained the feeling back in his hands 6 weeks ago.He is left with Nystagmus,,Hes being treated with Klonopin now..helps alot..They also switched him to Copaxone..He did the cobo for 6 month.Rebif copaxone.together.Logistical injection nightmare.He's getting fitted for contacts that may help slow the eye jitters,,,I pray. I have read your blogs...and you had the vertigo thing also..correct? He had it bad after the relaspe..the whole room was rolling downward..the only thing that got us though was the valuim..took many drugs to find one that worked...Thanks for asking uppity!
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