Post Edited (rhondab) : 2/27/2008 2:06:17 PM (GMT-7)
I hope you’re feeling much better today! I’ve had a shorter run at all this stuff than you, but I do know all the dxing and undxing takes quite a toll…you just hang in there a little while longer, and let us know how you’re doing, okay? Your rheumy does sound really thorough, so hopefully this new round of tests will lead to some conclusive info and treatment.
I am jumping on here late but I have been reading these posts. I just wanted to offer my support. I hope you get some answers and relief real soon. This Doctor sounds very thorough. Hang in there and let us know what the outcome is.
Love and prayers,
Thanks for all your support. My Rheumy called yesterday with a few results. I have red blood cells in the urine so they may do an abdominal ultrasound to look at the kidneys and bladder, my B12 is very low, (which it has been), and my CPK is 15 should be less than 5 - that is the test for inflammation. I sure didn't need the test to tell them that HAHA. Waiting for more test results. Accepting the "undiagnosis" a little better now, I realized noone said I don't have MS, or I have MS and Lupus, so I have to try to find my patience, at least until the end of March when I see the Rheumny again.
Thanks all for being here with love and support.
Post Edited (Kiera) : 2/29/2008 9:39:42 PM (GMT-7)
Well, here is the latest. The Rheumy called Friday afternoon to say the Panka(sp) test that test for antinetrophils is elevated, and that along with the other results has her suspecting a type of vasculitis that effects kidney, bladder and lungs. So now she is sending me to a nephrologist. I of course looked this up and found the treatment to be steriods and chemo drugs. Called my mom for comfort and got the same old story. She wants me to move my 2 girls and me to NC where she is. She knows I don't want to do this. So now, I wait for the appt.
I’m so sorry you are going through this. I really hope the new appt leads you to the correct dx and proper treatment. We are all here to support you. When do you see the nephrologist?