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pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 2/27/2008 9:17 PM (GMT -6)   
I found out the other day that my elevated liver enzymes checked out ok after a sonagram.Nothing abnormal with the liver. I am working on getting another home health nursing service for my steroid infusions. They are coming out on friday I think to evluate me. They also said I should get therapy in home to but I dont know about that..They said if I went out for therapy and stayed in for infusions that would be a red flag...I am still frustrated with the whole thing..One policy is medicare the secondary is a regular highmark policy.....And I do not have to be homebound for that one..Long as they bill right I should be ok although if I have to go out for them my brother will take me.I still havent decided as to whether I should switch dr.s I have an ms support group thursday most of them go to him I will see how the staff has treated them..Plus I got my state represenative involved..The first nursing service was to come every three months for three days which they did but they always came back 2 months later to take my blood pressure......And medicare paid for that but that wasnt what was ordered....So I should have an answer hopefully by next week.thanks for listening to me ramble.....barb....
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 2/28/2008 9:12 PM (GMT -6)   

Hi Barb,

 

I’m so glad things are heading in the right direction for you. That’s great that your liver checked out okay!  It sounds like you’ll be able to get your steroids no matter what happens with the whole insurance mess, and that must be such a huge relief. I hope your evaluation goes well tomorrow.

 

Sunny


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 3/4/2008 2:09 PM (GMT -6)   

What was the reason for your enzymes in your liver to be high. I ask this, because when all of this started for me 2.5 years ago, I too, had a high enzyme count in my liver - that did go away until after I took some antibiotics, but it was never resolved as to why.

I have brought this back up for discussion with the neurologist, and family doctor, plus the fact that I lost so much weight in the beginning, had blood sugar problems, rashes, etc. Not that I do not beleive my neurologist that I have MS, but it all started in the way described above. The neurologist even said to me that he did not think I had MS, until the L'hermitte sign showed up....and f course the lesions on my spine and back of brain.

I asked him to run some tests for Lyme, well, that just did not go over well, and looked at me like I was completely nuts....

And yes, I have been to the Lyme Disease threads, which leads me to think that addition investigation is in order - I mean, whats the harm?

Gary


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/4/2008 9:12 PM (GMT -6)   
Gary, I'd be concerned if my dr didn't want to run a test to double check something. There's no harm in checking. Fortunately for me in the course of my past 18 months of trying to figure out what's wrong, he originally said MS, found no lesions so said it wasn't then has come full circle again to MS due to a multitude of concluding symptoms now... but he ruled out Lyme, Cushings, Diabetes, rechecked my Thyroid, ran normal labs etc... the whole gamut (about 12 vials of blood tests). 
 
If you have reason to thinki you could have been exposed, I'd push your doctor to go for it, Lyme can linger on and be a major problem later on. JMHO.
 


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 3/5/2008 9:44 PM (GMT -6)   
The liver enzemes were (are) from the meds, Avonex myscoline and i was on cresstor they stopped that.Like I said everything checked out ok....I was picked up by the other nurses I am going to get my steroids and PT and OT at home and they are checking into me getting a scooter too..We will see about that.I still have it in the back of my mind I can still do things wrong-- wrong. So I am gonna swallow my pride and do what they tell me.....Amazing how one bunch of nurses will do what ever they can and the other bunch did nothing to help me....After a year and a half they did nothing....I think I am with the right ppl now...And I do get blood tests every 6 months....barb.

diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 

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