I'm sorry it's taken you so long to finally get a diagnosis! Welcome to the forum; I hope we can help you with our experiences.
I've had MS for more than 25 years. I'm 61 now. I've been on Betaseron for over 15 years. It is one of several disease-modifying drugs that are available now. (Nothing much was available when I was diagnosed). I jumped at the chance to get on it when it did become available -- anything I could do then..and now..to slow the progression of the disease seemed like a reasonable choice!
None of the drugs will help your symptoms -- only slow the progression of the disease (which of course is a very good thing!) There are meds available that can help with bladder and bowel control, though, if that is of concern.
The sudden weight loss doesn't sound much like an MS-related situation. I hope you told your doctor about that, as there can be lots of reasons for that -- just not a lot of them neurological!
The only other comment I'd offer right now is -- please don't be reluctant to use a wheelchair! Don't think of it as "giving in" to the disease -- think of it as a TOOL to help your mobility! You may be surprised to see how your world has shrunk because it's increasingly difficult to get around..and a chair can be SO helpful to open it back up! Why waste your energy just trying to "keep going" when you can get so much farther, and so much easier, in a chair??
Oh -- one other thing. YOu might also press for an MRI of your spine. A lot of your symptoms sound to me (and no, I'm not a doctor!) sound like they might be originating from lesions on your spine (yes, myelin is there, too, and can be compromised with MS there, too..)
And again, welcome.
Welcome to the board D’awesome,
I’m sorry to hear about your diagnosis, but glad you now finally know what you’re dealing with and can begin treatment. This great group of people, and I hope you will find this board to be a good source of support and information.
Hi and welcome to the forum
Last September I went to Disneyworld, and rented a scooter. It was awesome! I really wouldn't have made it one day without it. It's another option if you don't want (aren't ready) to go the wheelchair route, also, no one needs to push you around all day so you're free to go wherever you like.
Just another option available to you.