I am FURSTRATED!!! Sorry moderators, I just felt the need to yell. I don't know whether to cry, scream, or just laugh. As you can see from my subject, I had another reaction yesterday right after my infusion. I started coughing a lot about 1/2 way through the process, but thought that is just my bronchitis acting up again. Then once I was done and sitting in the office for my one hour of observation, I began to experienced intense lower back spasms, a really bad headache, cold chills and shakes, and my puse rate and blood pressure kept going up and down. (I did not experience the shortness of breath of chest pains I had with first reaction). I had pre medicated with benadryl and tylenol. My neuro came in and ordered an iv of benadryl. After I began to feel better, he came back and said he did not not know if I would be able to continue on tysabri. I told him I wanted to if it was possible. He said, "we'll see." He was going to call the drug manufacturers for suggestions and said we could perhaps try an iv of benadryl before I receive the tysabri.
Before I even had the infusion, he came in to talk to me about the liver issues that are now possibly being associated with ty and the melanoma issue. He scheduled blood work and I am going to see a dermatologist next week for a full body mole check. That should be fun. I am leaving now to go have the bloodwork done at my local clinic as the lab was closed yesterday by the time they released me. I was so upset (and perhaps a bit out of it from all the benadryl) that I almost hit another car when exiting the parking garage.
I almost did not post this because I do not want to scare you Lynn. I am fine today so try to keep a positive frame of mind. I actually am feeling better on tysabri and have more energy.
Diagnosed April 2007
Started tysabri -- December 2007