Eye Tics? Any solutions?

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D'awesome
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Date Joined Oct 2007
Total Posts : 343
   Posted 3/6/2008 7:35 PM (GMT -6)   
Today was a bit of a rough day. It seemed everything was kicking in. We're getting lousy weather here and it seems sometimes I think I'm weather affective, is there any truth to that- any connection to atmospheric changes to our bodies reacting?
 
I don't know but it seems like my migraines step up when the weather does too... so today was just like that... I pushed thru a migraine most all day, nursed it with advil to keep the edge off til I could get home tonight to the Maxalt now... in the meantime, my right eye started it's uncontrollable tic'ing - like it's bouncing or some weird thing!  And then the numb tinglies thru the feet and hands, (I get up and walk alot around my office when that happens to try to ease the stiffness and prickly tingles). 
 
Any suggestions for the tics though? I look in the mirror and can't see it happening but I can feel it just as clear as can be.
 


1mom
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Date Joined Feb 2008
Total Posts : 69
   Posted 3/6/2008 8:22 PM (GMT -6)   
Dear, awesome....does it affect your vision? Check the National MS Society  symptoms..Nystagmas..Thats was my son has,his eyes bounce downward,its a residual effect of a his relaspe,he has light sensitivity, also. Check with your nero,,or a nero opt..if it continues there are some drugs that has helped him..Valuim ..Klonopin...Maybe yours won't stay around long if it does. see a doctor, they can see it,, even if you cannot.If you have a friend, you could check it in a semi darken room, have them take a small light ,like a mini flashlight, and if you focus on a object, the other person, can put the light toward the side of your eyenot directly at it..(away from your eye). that person could see if its bouncing, and in what direction, I do this with my son, and when its bad , we tape it on his camera and email it to his doctor...we experimented with 4-ap..to try and stop this..it induced it,,so this is what U of M had us do.....for the record...test failed...But Nystagmus can come and go...Thinking of you!!get checked,please.
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
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Date Joined Oct 2007
Total Posts : 343
   Posted 3/6/2008 10:30 PM (GMT -6)   
Wow, it's good to know it's got a name and it really happens as part of this stuff... will talk it over with the neuro... not too sure about doing Valium or Klonopin for it. It would have to be alot worst, right now it only annoys me. My vision has always been horrible since I was 9 yrs old, been legally blind but correctable with glasses (-650) and then I was finally able to do contacts in the 80's thru the 90's until about 5 yrs ago when more of the other symptoms set in, I never connected the dots but my eyes wouldn't tolerate the contacts anymore. My vision quit being clear, kept getting too irritable and dry, kept blurring out... eye dr said it was being over 40 yrs old, ya know... thne bifocals so I gave up the contacts completely. Now even with glasses, my vision regularly blurs alot, dries out constantly, the twitchy tics, irritability, and most recently ON in the right eye, unequal pupils etc.
 
I've just finally been dx'd so this is all new to begin figuring out what's going on and realizing how many dots really interconnect here. So thank you for the info, will definitely discuss with him and check out the site info! Thanks!
 


1mom
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Date Joined Feb 2008
Total Posts : 69
   Posted 3/7/2008 4:49 AM (GMT -6)   
Welcome, and your welcome, I don't know if that's your problem, but that what Ricks problem.is..he has to take the drugs, cause his bouncing  has to be sedated...so he can focus...he gets the vertigo stuff sometimes if he doesn't..Anyways...Just my thoughts..we live it too..Debi :-)

its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/7/2008 5:34 AM (GMT -6)   
Thanks Debi, (btw my name is Debbi, initials daw thus 'nickname' d'awesome) thanks for the welcome too.
 
My big adjustment is to the notion of drug regimens. I've managed alot of my stuff up to this point very minimally (though not without it's lousy days and lots of pain) because of family hx of addictions and my job hx in addiction counseling. So I'm taking all the advice I can get so I can weigh alot of options and make good decisions. That's one of the things I'm liking most about this board is the practical advice from folks experiencing it. The neuro has already experienced trying different levels of drugs with me (more than 50 mg of Topomax doesn't make me better and only throws me into a weepy depression) and Imitrex makes me sick even though it kills the migraine fast. So I like all the experience advice... it helps me know what might or might not work for me.
 
Thanks again!
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/8/2008 1:00 AM (GMT -6)   

Hi, Deb..its Deb..(funny)..I don't know anything  about the pain that comes with MS.I have not had to deal with this issue.I'm living this illness second hand.I rarely have a day, that I don't spend time with my son,to help him get though this. Tell me Deb,do you hurt every day? Is it just your legs? whole body? Is it painful..or do you ache?I live in Michigan the weather this winter has been record breaking snow and freezing temps, I hate winter, the other 3 seasons are awesome..though.You mentioned weather,earlier on, where are you from?I bet weather issues don't help anyones problems..too hot..too cold...ya know..Let me know..what up with you.


its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/8/2008 7:21 AM (GMT -6)   
Hi Deb :-)   Weather does seem to affect the pain alot... I live in Florida on the Gulf Coast. It's most hot. We get  a little cold. I'm from Wisconsin though and I know the really cold too... but living in Florida its year round constant heat/humidity/atmospheric changes and I've discovered I seem to be weather affective.
 
Yes, I ache alot. The pain varies in lots of different way depending on what... it can be anything from stabbling knife like pains randomly thru my right eye, or up the back of my head to leg spasms that feel like massive charlie horses. My feet often hurt unmercifully but that is also a combination of Osteoarthritis particularly in the feet and knees... I've managed to alleviate a lot of the knee pain with Glucasomine Chonrdroitin w/MSM daily supps.  Pain can also be a sense of all over malaise, swelling, or extreme weightiness making me feel like I can't lift my arms or move another step. For so long it's been called Fibromyalgia by the drs so I just nursed it with daily Advil and nightly Flexeril + Tylenol 3 when it was too much to deal with.
 
But the worst part is trying to explain it to anyone else, friends and family and they'll immediately say, "Oh I get that too, it's just getting older, ya know?!"   I just smile and think, how I wish I could blame just that. 
 
I'm active person, only about 30lbs overweight but I carry it well. I'm very limber so it makes me look "not ill"... I am stronger than most from a history of work as an Auto Parts Mgr (you build a lot of arm strength over the years picking up parts that weigh 10-25# averages) and a former Boy Scout Scoutmaster (15 yrs). I used to hike, camp, backpack, canoe, horsebackriding etc... without weakness and debilitating wear me out fatigue. Then I had a car accident in '92 that left me with minor nerve damage and it's been a downward spiral ever since. Now I frustrate myself as much as my husband in my "weaknesses", my stumbling, staggering, misjudgments, painfulness, and numb achy feeling all the time. Not to mention alot of other areas of my life and body that have faied me miserably.
 
So I'm here learning and lapping up everything I can to adjust... and reading books like crazy to figure out the best gameplan.
 
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/8/2008 9:27 AM (GMT -6)   
Hi Deb :)   Well, My son explains the days(which have been only a couple of)and hes starting his 4 year with MS, he calls the few days of weightiness..his sandbag days...he explains it as carrying a body suit of sand bags..sounds familar?Also the summer here bothers him most on high humidity days,more that the hotter days..either are great.He also suffers sometimes with the knee ache and the legs,mild compared to you,but they tested him for vitimin D def...guess what..he was deficient.His nero is the Professor of MS @ U of M ..top dog.. out here. He started him on 2000 iu of Vitiman D for 2 months,daily.. then 1000 iu now,  until ..forever maybe..bottom line, it was a great improvement for him. Helped with the daily body fatigue, and his legs alot. I hear how you feel bout the drug thing,maybe you could have your Vitiman D checked also? Simple blood test....it wouldn't hurt matters? Is the Glucasomine a vitiman also? I think I've seen it around..I will look into it for him..He played hockey since 7..(now 30)until his relaspe a year ago..he feels some of the problem is years of hockey, but some of the knee ache is related to his MS.Tell me more about Glucasomine.....Deb

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/8/2008 10:13 PM (GMT -6)   
Hey Deb :) Glucosamine Chondroitin with MSM is a natural health supplement available everywhere under private labels or known as Flexamin, Osteo BiFlex, etc in the name brands. I watch for it on sale every week at either Walgreens or CVS and get it buy one get one free. It's important to get the max strength (you take less pills that way) and make sure it's including all 3 ingredients... some will have one or the other or no MSM. The MSM is for muscle pain. It helps a little, hasn't eased alot of it, or maybe I'm just tolerant now, don't know but it def took care of the joint pains. I had it recommended by my ortho doc when I was practically crippled by my osteo arthritis of the knees and wearing double braces to walk... couldn't dream of stairs... he said we could schedule knee replacement or I could take the GCw/MSM... I laughed at him at first, said does it really work? He smiled and said he makes lot more money off the surgeries, but recommends the GCw/MSM cos it DOES work and it's kinder to his patients! :) Wow! I said, ok, ok... I'll try it... dang if it didn't do the trick... it took 6 months to show the full effects but the pain was gone, and a year later I could do stairs... now 3 yrs later I can't tell I had bad knees (except for the occasional bad twist). NO Knee surgery for me! My son (also 30) has osteo arthritis (hereditary for us) in knees and feet and he's now taking it too.

In the meantime, I'm gonna ask about the Vit D for sure, could help. I haven't been sunbathing much for a long time, used to alot... not much time anymore. Will get tested. It's good to have great neuro, I know I love mine... he's been very thorough with me, but the best part is his dx's are dead on, he's just not always happy with them when they are. :)
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/9/2008 7:15 AM (GMT -6)   
Thanks Deb :)..That's great new for you...Well I did go to CVS yesterday...I saw a few diff. kinds..i was unsure of what the MSM was about(so I didn't buy it)..Waited to hear from you. Not cheap stuff, for sure.Anyways I talked with him about it yesterday and he was trying to fiqure out, if the knees were making his legs ache, or was the legs making his knees ache? Or of course.is it just an MS thing.He said the knee thing goes way back from years of playing hockey..lots of knee abuse.MS may be aggrvating it.Anyways,it doesn't matter, really,If this MSM is for muscle and GC is for joint..we are going to try it.Just an add on to the vitiman list he takes
D-C-E-& Multi.
 
Yeah, also get some sun,early morning, less heat and less powerful.sunlight :-) .My son lives in darkness at his house, because of the eye issues.When spring comes again,he will sit outside in the early mornings, before it gets too hot.His nero said alot of MS patients are lacking (or on the low scale) of Vit-d, and don't know it..Thanks for the help on this,I appreciate it.Deb
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/9/2008 4:10 PM (GMT -6)   
Hey Deb, glad to help... I played Basketball in High School (Girls team and pickup teams with the boys and severely abused my knees too) so the pain is a rebound thing like the egg and chicken, which came first, but then it doesn't really matter. GC w/MSM help rebuild and cushion cartilage in the joints... so it can only help.
 
Here's a link to some info about the products: http://www.webmd.com/osteoarthritis/guide/arthritis-supplements and here's the Flexamin site, showing the product, I use the Triple Strength.  http://http://www.flexamin.com/pages/productinfo.asp
 
Like I said there's lots of brands including private label and if he has trouble swallowing there's even liquid available. Glad to help.
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/9/2008 5:02 PM (GMT -6)   
Your awesome.....he reserchs everthing before he takes anything,,,so I told him to get busy,do the homework.The 24th we go to U of M, for his fitting with contact lens,(no precription inculded.)They are hoping that the weight of these contacts will slow the eye jitters(Nystagmus.)Did you notice your eye tics ..as you say, more since you have not worn your contacts? Just curious..Maybe thats going to far back..,But we are going to give it a shot. If that doesn't work ..we are doing the eye muscle surgery. around July.I guess you fiqured out, that eye problem is more than likely a permanant fixture.Its been over a year now.Its improved but..this may be as good as it gets,,Since his eyes beat downward, they are going to pull the muscle up, & tighten it to slow the downward beat and the drift thats comes with it.Hopefully fix the double vision in one eye also.He takes alot of meds to function, hopefully he can get off all the Klonopin..at least..taper down..ya know....Thanks Deb
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/9/2008 6:00 PM (GMT -6)   
Thanks Deb, I research a lot too before I add stuff to my system. It's always worked best for me. I was my mother's caregiver for the last year of her life and did full scale research of her meds and realized some conflicted with others, which her doctors (3 separate ones) agreed with later. I learned a lot of medical stuff during that time... still nothing prepared me for this.
 
I haven't worn the contacts for about 5 yrs now, but the tics didn't start showing up until a couple yrs ago. And now I can't tolerate contacts at all without being plagued by dry eyes, tears and itchyness beyond tolerance. I hope the contacts work well for your son.
 
 
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/9/2008 6:40 PM (GMT -6)   
Me too..I fall aslept praying..
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/10/2008 8:29 PM (GMT -6)   
Prayer is a nonstop conversation  between me and God... :) Good thing I know He knows what's ahead.
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/11/2008 5:45 PM (GMT -6)   
I hear Ya...Life changes in so many ways...How can you plan a future when you don't know it? I just put my trust in the Lord.He'll take care of me and mine.
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/11/2008 7:01 PM (GMT -6)   
My mom always had a little saying she liked (she'd heard it somewhere and it stuck to her dying day, literally)... Want to know how to make God laugh? Go ahead and make plans! tongue I always laughed when she'd say that and I smiled thru the tears that morning in the hospital before I had to inform her it was to soon be her last because she was busy talking new plans for when she got out... so I've learned to trust Him. Maybe that's why He let it take so long for me to learn the truth of the dx... most likely so I would have learned how to truly trust Him by now.  Curious how that works! yeah
 


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/11/2008 7:21 PM (GMT -6)   
That is also my sons saying.WOW,,that too ironic!...Almost scary:) Your awesome Deb. But, the thing thats the most awesome is: my son has found the Lord, thru all of this...when things have gotten really bad,,the strength he receives and the healing he has been given are truly remarkable, I know people call them remissions, I preferr to say healings , cause the Lord can heal you at any time,you must have faith and believe in him.It has happened in my family, to my cousin with Lupus.So I truly know...Deb too.
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/11/2008 8:05 PM (GMT -6)   
I hear ya, Deb and I believe, no doubt but most of all I accept. The weird part of all this "journey" is that I knew from the first moment the first numb spot showed up but I just didn't have enough evidence to take to the drs to prompt further study. My body and I have always been very iattuned and in turn the Lord has always granted me great insight into it and what's best. Only when I've gone against my "instincts" have I done harm or failed to get better. So to me now that the initial confirmation shock is wearing off, I accept. I cannot profess trust in Him, belief in His providence or full faith if I don't totally practice it.
 
Reminds me of the scene in the first Indiana Jones movie when he has to go out the bridge of faith across the canyon ... the bridge looks exactly like the canyon creating an optical illusion of disappearance, yet step by step in faith he puts one foot in front of the other and successfully crosses!  So it is with me with the Lord... and what an adventure it is along the way! :-)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


1mom
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Date Joined Feb 2008
Total Posts : 69
   Posted 3/12/2008 5:12 PM (GMT -6)   
I'm so glad I met you here..How old are you Deb?
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/12/2008 9:20 PM (GMT -6)   
:-)  ey Deb, same here... 52.  Been having symptoms like I said for a long time, about 12-15 yrs minor little miscellaneous stuff... noticed the first numb spot in '97, dr didn't take it seriously... so I'm very suspicious that I've gone thru the R & R stage and may be moving into the secondary progressive stage as the symptoms have stepped up lately... but we shall see.
 
Today has been particularly bad again.. but I have a connection now after three different days of eye tics, I have connected realizing a migraine has either followed or been present so it's like the chicken and the egg... I don't know who heralds who... if the tics precede the migraine or vice versa. But today the migraine wasn't touched much by the Maxalt and tonight I'm gonna crawl into bed with pain meds again... I've got MRI's tomorrow... maybe it's a good thing if it's all flared up when those get done... hard to know.
 
Anyhow, have a wonderful night Deb, I look forward to my visits here and learning as I go...
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/13/2008 6:29 PM (GMT -6)   
Hey back, Ya me too..52.VIEW IMAGE I'm glad your having your MRI  today.Rick has had episodes,but instead of migranes,the vertigo came with the eye tics....they thought maybe it was mirgranes, it was all in the head and eyes..it would last up to 12 hours,,then it was over,,he would be hungry and (felt like he had a bad hangover).This happened for 1 year.Then he was good for a year.They tested him for everything..menieres..ruled out mirgraines,blah,blah,...nothing proved concrete.Except the eye tics(nystagmus.)Just a liitle bit though,came and went.Well you know the rest.Something aggravating the vesibular system probably.Its so difficult,I understand what your dealing with.How do you function when your eye are acting crazy? I agree about the  having the MRI when things aren't good......in our case for that year the MRI was good, and all this weird things still happened? go fiqure? Let me know how your doing..OK...I'm here for ya.Deb

D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/13/2008 9:02 PM (GMT -6)   
Thanks Deb, the MRI's went well... did the first three without contrast then the three again with contrast... only gave her a little bit of trouble when I got some spasms that kept me moving a bit til I tensed enough to keep from moving but then that made me spastic and painful... still overall better than expected... achy all over from having to be so still... you'd never think that would ya?
 
The tic just bugs me, it doesn't mess with my vision. It's something I can feel but noone can see, and just that eye gets blurry... I have to blink alot more or use Visine to help it tear up to clear up. So far that's how it works with me.
 
The tics have been gone today and the headache too... :) Hoping he got the views he needs to find what he's looking for and there's no surprises. 
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/18/2008 5:39 PM (GMT -6)   
Hey Deb. any news on the MRI's yet? How has your week been?
its not how hard you get hit,its how hard you get hit,and keep moving forward, that how winning is done. 
                                        Sincerely,1MOM


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/18/2008 7:20 PM (GMT -6)   
Hey Deb, week's going ok... did the repeat MRI, the tech said the radiologist ordered the additional MRI of the lumbar plus and overlap of the thoracic...that he's very thorough... I suspect that's where my lesions must be by the way my legs are so incredibly weak and trembly and stiff... but then I fear I'll hear the dreaded "we couldn't find any lesions but you've got all the other symptoms!" 
 
The vision is blurring more but I don't want to get checked til I know more and then deal with maybe an opthamalogist directly instead of my usual optometrist...
 
it's all a waiting game. I expect the next move will be the spinal tap. I keep thinking as long as I'm moving and coping all's good right? :)
 
How's your week and your son?
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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