Post Edited (Kiera) : 3/10/2008 5:15:42 AM (GMT-6)
I can't speak for the moderators, of course...but OF COURSE you should stay here!
I so hope the kidney specialist can figure out what's going on and get you some help. Take care, keep in touch as you can. And hang in there. We're all praying for you in a variety of ways.
What can I say?! I was so very touched reading all the posts in this thread! I cannot remember if I had told any of you but I am a clergy and God has certainly taught me MANY things though this journey we call life. Besides the MS I also have Sarcoidosis. Seven years ago my colon perforated and I had to have an emergency colectomy. Six months later I had a dihist and had to have an emergercy reversal. The doctors told my family to get ready that I might not make it. Those days are very fuzzy for me but one thing I remember being told that people were praying for me everywhere! I also remember one night in my "twilight awareness" singing every hymn I knew and the nurses coming and telling me I needed to rest. I told her, she told me later that I said, "I can't rest, God is going to get me through." By morning that nurse came into my room in tears and said, "you're going to be OK, you've turned the corner!" A couple of years later I was firmly diagnosed with MS. My church would ask me, "Pastor, why does God do this to you?" My answer is, "God does not DO this but allows it for our growth and it is up to us what we do with it! It is in His hands to heal us and He certainly can. I told them "Paul had his thorn in the flesh and still ministered and so will I."
Please bear with me as this subject has really touched my heart. In the last couple of days I have been contacted by two people with whom I was a student clergy with. Both of them are also stricken with illness but, they, like me have decided that the illness will not rule them! And that's the key, I believe! I may have MS but, MS DOES NOT HAVE ME!!
God Bless you Kiera and indeed all of us. May we all keep going and know that we have a purpose and there is someone out that who needs the knowledge and the wisdom we have. In my early years of ministry I preached a sermon called, "the puzzle sermon." As people entered the church they were handed a puzzle piece. In the front of the sanctuary I had a card table. As the sermon progressed I laid my piece on the table as asked everyone to come and make the puzzle. The point? I am only one piece in this life and I need all God's people to fill my life and make the puzzle.
I am not perfect, by any means! There have been times when I have written and needed support and, I'm sure there will be again. I'm human too! LOL
I apologize if this is too long or if you think I have gotten off subject but I hope it serves as an encouragement!
Much love and Prayers,
"Revvie" (if I could change my user name I would use this)
Indeed your post was encouraging and many i think forget the clergy are human too lol!...Ive seen a puzzle type of thing taught where none of us could recognize what the entire picture was (considering we each only held one blurry piece) once put together it was a gorgeous display of flower gardens. In other words HE see's and know's the big picture!
Paul indeed kept his thorn. Job isn't to give everyone a fairy tale ending but i do find it interesting that it was once he had accepted his condition AND forgiven his friends that the change was given.
I'm so sorry that you've been through so much. Then again, he's brought me through things that I truly never thought a human would see on this earth. It does allow you to know that he can do all of this and more.
I've had the same questions asked of me. Why is he failing me? He is not. Why does he keep adding more?...etc. So i do know what you mean. I see it alot a pregnant mother, the carrying period is trying and the labor is hard. The delivering is brutal but then there is joy. Sometimes life seems alot like this to me. Also i do agree that it is to teach us. How do we grow? We certainly dont strive for truth's when all goes well , and we (or at least not i) are not so apt to have the compassion for another's suffering until you've first borne some. It gets very hard as things seem to multiply and add upon themselves. More all the time. Im here though? This is also proof that he can make whom he wishes to stand. I will not fall as long as he holds me up. You've been through alot and singing the hyms, i do that at home sometimes. Blast them or put on the Gaither's and cry and sing lol....I'm very thankful that he brought you around that corner!. Thanks for sharing all of that, are you still actively preaching? Timothy was sick very often, yet Paul knew he would be next.
B'awesome! I definitely would consult your doctor. These diets sometimes arent necessary unless your losing function or spilling large amounts of protein due to CKD. the phantom stone thing i have had as well. I really am not sure. I had the Cat scan too and thought what? How can you NOT find it????...but they didn't. Please do let me know if you find out what your protein and creatine levels are. Sorry your going through another UTI as they can keep the MS flared!!!!! You also want to catch it before it gets to the kidneys. One method is to go on low dose antibiotics for 90 days to prevent the bladder infections entirely. This might be mentioned to you. Bactrim is used alot.
I've begun to have heel pain. Excruciating and have no clue why. It just seem's that things are domino'ing on me. I did complete my stress test and they injected my nerve in the back of my head yesterday for lower nerve type of headaches. I return to all doctor's this week for trying to figure out all results of all tests. Enough to consider a job. I'm feeling like the time i DO have here is being taken up in appointments. I'd like to have a few weeks away from doctor's to simply get my mind off of new tests. I'm running out of veins. I'm a hard stick anyway.
Best to all of you. I've been waking up with hands numb and pins and needles in right one, doesnt seem to be leaving til around midday but at least it does seem to leave--so far.
use what you have today..........while it's called today! (smile)
Kiera, thanks for the advice on the kidneys, right now my GP's got me on Levaquin, it does double duty for me to knock out the UTI and chronic sinusitus. But when I see her in April I'll ask about the Bactrim for a low dose deal, that might do the trick since this is repeating itself now.
I"m in the waiting game waiting on my MRI results, the radiologist ordered additional MRI of the lumbar and overlap of the thoracic... in the meantime everything's status quo. I just know more why now.
HL, thank you for sharing so much with us... it is my faith that keeps me grounded through everything I've been thru and everything I'll ever go thru. I cannot imagine a moment without knowing He is beside me every step of the way.