unsure of action

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Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 3/18/2008 8:43 PM (GMT -6)   
Hey all,
 
I am really starting to doubt myself.  I did the SSI/SSDI thing and was turned down.  I know it's the first time through, and it's normal to get a denial first and all.  Now I feel like it was a huge mistake to have even applied.  The Disablity part of it, I don't care if I get that.  I would prefer to get the SSI and still be able to work.  I enjoy my job, but it is only part time and I can't work very many hours in a day.  I haven't tried a full time job in about 2 and a half years.  Do I try a full time job and see how it goes?  Am I being stupid by even considering it?  I remember how tired I was when I was working all the time, and how often I had to rely on my dad picking my boys up from school.  I just don't think I can go through all that again.
 
I know that I will never be "normal" again, but does that mean I don't deserve SSI.  In the letter, they tell me that because of my chosen line of work, my medical problems don't prevent me from working a "substantial" job.  I am lucky if I make $400 a month, and they tell me that my work is substantial.  Or should I just suck it up and let it go?  Should I just follow through and see where it goes?
 
And the thing that gets me is that Social Security didn't even list everything that was wrong with me.  They left out the Fibro.  They also even said that I have COPD which I don't.  I am even wondering if they looked at the right medical files.
 
Help.  I am so confused.
 
Heather


Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  Starting Betaseron for MS
 
co-mod for Fibro

Post Edited (Heather H.) : 3/18/2008 8:58:55 PM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/18/2008 8:56 PM (GMT -6)   
Hey Heather

I don't think it was a mistake to apply unless u feel u really could work. It sounds like it wasn't possible 2 1/2 years ago. What is u'r chosen line of work?? I am not at all versed on SSI/SSDI, but i THINK with disability there is a certain amount of income u can have before u affect u'r disability income. I certainly don't know the full extent of u'r situation, but i'd guess that since u've already started the process of applying, u should continue on and see what happens. U know if u'r able to work or not...if ur not then u need to push for this. Best wishes friend and please let us know how this all goes for u.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 3/18/2008 9:08 PM (GMT -6)   
Rhonda,

I am a retail vendor for an international card and party supplier. I had to force my boss to hire another girl to help me, and this girl happens to be my sister and she is now doing all of the heavy lifting for me. I am now down to working 10 to 12 hours a week on a good week, and 5-6 on a bad week. I worked a little over 3 hours today and now I can't even stand up straight.... I just need to vent. I am so tired of dealing with life going down hill. When one thing goes bad in my life, it seems like everything follows.

Thanks for listening...or I should say reading. I know I'm just whining.

Heather
Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  Starting Betaseron for MS
 
co-mod for Fibro


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/18/2008 9:20 PM (GMT -6)   
Hey Friend

I hear u. Vent all u like...we'll be glad to listen and lend a shoulder too. Ur not whining..u have a valid complaint and every right to get things off u'r chest too.

U'r job doesn't sound to easy. I can't understand the reasoning behind the denial of benefits and i'd certainly reapply since u'r far from being able to work a full time job...or a part time fo that matter. Hang on friend and vent all u'd like. We have all been or are where u are now...we get it. Take good care of u!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/19/2008 4:12 AM (GMT -6)   
Heather H. said...
Hey all,
 
I am really starting to doubt myself.  I did the SSI/SSDI thing and was turned down.  I know it's the first time through, and it's normal to get a denial first and all.  Now I feel like it was a huge mistake to have even applied.  The Disablity part of it, I don't care if I get that.  I would prefer to get the SSI and still be able to work.  I enjoy my job, but it is only part time and I can't work very many hours in a day.  I haven't tried a full time job in about 2 and a half years.  Do I try a full time job and see how it goes?  Am I being stupid by even considering it?  I remember how tired I was when I was working all the time, and how often I had to rely on my dad picking my boys up from school.  I just don't think I can go through all that again.
 
I know that I will never be "normal" again, but does that mean I don't deserve SSI.  In the letter, they tell me that because of my chosen line of work, my medical problems don't prevent me from working a "substantial" job.  I am lucky if I make $400 a month, and they tell me that my work is substantial.  Or should I just suck it up and let it go?  Should I just follow through and see where it goes?
 
And the thing that gets me is that Social Security didn't even list everything that was wrong with me.  They left out the Fibro.  They also even said that I have COPD which I don't.  I am even wondering if they looked at the right medical files.
 
Help.  I am so confused.
 
Heather

Heather -- a couple of things.
First, are you applying for SSI -- supplemental security income, or SSDI -- social security disability insurance?  They're different, and different criteria apply. I'm assuming here - since you're working -- you applied for ssDi...and my comments are related to the criteria for SSDI.
 
Second, it's quite common to turn people down and use the line, "substantial gainful employment" or some variant of that.  The fact that you were working..even part time...was really the only thing they looked at. Their (ill)logic goes something like, "...well, if she is well enough to work and apply for disability, she's well enough to work!" Crazy, I know.
 
Third, it also is quite common (and again, inexcusable) to not list everything you've disclosed.  They (the social security folks) don't accept "fibro" as a "disability", so if you claimed that, they dismissed that right away, too.  Again, crazy.
 
So, what to do?  Get a lawyer.  Call the local National MS Society (or if there isn't a chapter nearby, go on line and find them). Ask for a referral to an attorney in your area -- one that is trained to work on disability cases. Give the attorney all your records, and have them appeal your case. They'll charge a fee -- but only a small percent of your first check, and only if they win your case.  MOST cases are won on appeal.
 
But do this SOON. There is a time frame in which appeals must be done, or you have to start all over again, and you don't want to do that.
 
The attorney may tell you to quit your job, for now (if that's at all possible).  Once you get on SSDI, you'll be able to work part-time, earn up to (last number I heard was $700/month, might be more now) some set sum (don't quote me on the $700! It's been awhile since I looked at that!), and still get SSDI, so you could go back to work then.
 
But appeal. And soon!  Good luck!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Heather H.
Veteran Member


Date Joined Mar 2005
Total Posts : 756
   Posted 3/25/2008 5:42 PM (GMT -6)   
uppity,

When I went into the Social Security office, the man who filled out the application with me did both SSI and SSDI. I called and requested the appeals paperwork and just recieved it in the mail today. I am going to sit down and fill them out after I get done putting my boys to bed. The SS office also sent me a list of lawyers that will help and represent me for the appeal.

Thanks for the advice and the moral boost.

Heather
Love many, trust few, always paddle your own canoe!
 
dx's:  Fibro, 8th cranial nerve inflamation, MS.
 
meds.:  Starting Betaseron for MS
 
co-mod for Fibro


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/25/2008 5:53 PM (GMT -6)   
Great advice from Uppity, I was thinking all the same stuff she wrote.... Heather, don't quit, keep at it but I wouldn't list the Fibro as many don't recognize it because it's a "syndrome" indicating a multitude of issues complicating their process so they discard it. Heck, my own neuro won't deal with it because he just figures it's part of my melee!

It's very discouraging to get caught in the bureaucratic red tape but do what they ask, keep filing their paperwork and stick to it and most times, it comes through. Unfortunately I think they make it hard because so many abuse it that have no rights to it but still get it... then those like you who really need it can't get it. Hoping fhe best for you!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/25/2008 6:28 PM (GMT -6)   
Yes, get a lawyer, keep filing, fill out ALL the paperwork, keep copies of all the paperwork, and keep pushing it.  I hope this works out for you.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/25/2008 6:35 PM (GMT -6)   
SSI would only be available to you if you are poor -- you'd have to have assets of LESS than $2,000/year, one car, a house (or rental), and only $2,000 in the bank. Presumably you have more than that..so you're really appying for SSDI -- social security disability insurance. SSI (supplemental security income) is "means" tested...meaning you can't have more than that in order to even begin to qualify. YOu can't have someone else in your family (like a spouse) earning income, or have investment income, or anything like that. SSDI is NOT means tested -- a very good thing -- meaning you can have spousal income, investment income, more resources and assets, without that being counted against you. So presumably you fit the latter category and are applying for SSDI.

Keep applying..but get a lawyer. Hopefully that will speed this process along. Good luck!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/25/2008 9:26 PM (GMT -6)   
Keep applying and if the 3hrs you did today will be something your lawyer will use in your case. The hours of gainful employment have decreased and the person's illness has progressed (ive read forms and ive been through it though i never was turned down.

However, mine was before all of this lawyer stuff and it also was based on military records that they couldnt' dispute.

Youd think if theyd thought you had Copd (although that shows its incorrect info they have grrr), theyd of considered you even more likey....
but truthfully do not feel guilty . Do not compare yourself to others, look only at yourself and how you feel less able to work.
Do not feel bad and Yes id keep going for it.

Best of luck

kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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