Ms person's need to know what can fool ya! Miracle for me!@

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Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/21/2008 4:59 AM (GMT -6)   
Hi,
 
I had gotten so sick and couldn't urinate nor could i hold down fluid or food. I didnt' understand why  and gave a call to my Gp. She thought it was the kidneys losing more function so she got me in earlier.
Picture me sitting with knowing 43% function but the kidney doctor telling me that my kidneys are fine and the past insult really did resolve itself.
 
I was like, Well thats the greatest news ive ever heard , there is only one problem? I cant urinate! Nor can i hold fluid down.
He asked if id had any procedures as of late and i told him about a Dnc, he said that maybe this caused it or its gastrio. Again i said , You  DO understand i have no urine output? Yes he did. I went home and remained sick x 3 days. Omg i hurt in my ribs , both sides but mainly left. I couldnt hold even my meds down. Not even the ones that keep naseau away.
the last time i went to throw up i felt an urge (you can stop reading if your easily embarrassed here)..
to have a bowel movement. I got up after throwing up but nothing came out. I thought on it hard, i hadnt had one in over 5 days but hadnt given it much thought (sounds nuts i know), but i got a fleet enema and when it "WORKED' , i felt new again, even the pain in the ribs left! I couldnt believe i had been so bad off to of cut off my own urine!...Also when i asked about 43 percent i was assured that my creatine was fine but that they said that due to : insufficient amount of urine dropped off (due to bowel blockage it turned out).
 
Not only was it not the kidneys but now my kidneys only have 39 protein which is the lowest in my life (miracle to me)..
I saw all of my doctors yesterday, my neuro feels its nerve related because after the first enema the second one didnt come out, and  i was able to sleep with it in me UGH...he said to be VERY proactive to avoid a surgery for the bowels.
So we have MS. If you fail to be able to urinate , please KNOW unlike myself, that it doesnt mean the kidneys all the time, even if you have a low function rate (ensure the amount you dropped off is measured in ratio).....
Upper chest pain eased and i also learned the respect for GERD that i had thought was "nothing to give thought to".
My neuro also thinks my heel pain (so does Gp) is from my ankles twisting during episode.
My spinal doctor induced a headache in lower nerve behind my ear , then numbed it to avoid me having to continue taking immitrex for the constant headaches on one side of my head.
 
My neuro also released my neurontin , and said that he'd make it prn as they trust me and really feel that the one doctor who raised the questions was more than wrong, given the new good findings about my kidneys ( i pray this continues). I dont have to see my neuro until June ( i was going to appts every day and it was wearing me out).
 
I saw my GP right after and she agreed about the heel pain and took some type of level for vitamin D to see if she can REPLENISH me, also the spinal clinic finds my thyroid low and she does not so she will follow that as well. She told me i was lucky that i didnt end up in the hospital with my bowels (i should of went, i drank that prep for surgery too)...
She told me that im a good patient and she DOES believe God did this, as she prayed for my kidneys as well. She also gave me antibiotics for me to hold at home so that i dont have to come back in for a month (feel like im getting time off from work).
Psych-did the narcalepsy reading , i cant lie here, he didn't say much other than start me on provigil for it and told me it was a different brain disease and not from my ms (he has no clue of lesion location and neuro hadnt gotten the sleep study yet)...i really didnt feel like he discussed it very well...sigh.
 
today i go back for them to inject t2 t3 area in hopes that i can wear a bra again, this is something the spinal clinic stays up on. Prior to this i had no idea if injections worked or not, but i do get them in my neck , now my head for headaches (i may or may not do that one again) and now one in thoracic region.
 
Thank you all so very much for your support. I was so terribly scared and without output of urine and being told function was down , it seemed pretty normal to think it was the kidneys. I will say B
awesome that even if we have a kidney problem the bowels can fool you. Well from what ive seen, if you have MS and dont keep up with that alot it can build to the point that your complaints are misleading, such as chest pain, rib pain, throwing up, little urine output, general feeling of unwellness...when its really the  bowels. Since i have a bad bladder, fiber will be used , and alot of it....to prevent this from happening again.
 
Rhonda, thanks for your support, well ALL OF YOU!!!!!!!
 
Im still a bit shook from thinking of axons and neurons being damaged or shrinking from narcalepsy and dont understand how i could have 2 brain disorders...but i guess more prayer and time will tell on that. For now at least noone will be in danger when i drive.
 
I soooooo appreciate the faith. Rhondas  quote along with revvie  and beau, and as i said, all of you...helped so much. I was really feeling to bad to sign on for the past week or so, until yesterday.
 
Keep an open mind though. Ms symptoms may not present the way you think. Such as the bowels, they surely tricked me and my Gp!
 
thanks
 
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/21/2008 6:39 AM (GMT -6)   
Wow Kiera very good to know and so thankful you have a resolution to what you feared were end times! This is truly a wonderful blessing and coming at Easter so like whole new lease on life again!

I am very familiar with my bowels and their issues though so I will definitely watch this... GI tract issues have been passed off for GERD and IBS for years for me but are only now being realized that it's most likely part of the this package. My bowels are on a cycle all their own like having the period I lost at 34 yrs old to a complete hysterectomy (precancer) they took over and started their own little cycle running the gamut from hard to water week after week month after month... and nothing I've done diet or fiber or meds has changed it. I just stay aware of any major discomforts.

I did have a very nasty episode back in 2002 in which they thought I had the flu originally, stuck me on Cipro (my GP was so apologetic aftewards) and by the weekend I was admitted thru the ER for meningitis... now the neuro who was not (and is not happy about it) called in at the time wants those records becos they called it viral meningitis when I suspect he thinks I may have had a very very bad flare up ... it left me with double vision which sent me to his office then finally but cleared up on it's own 30 days later... but it was a mild fever, violent vomiting, nothing stayed down, dehydration, severe headache (helmet of pain) couldn't touch chin to chestk, I was in fetal position in the ER by the time they got me in and then the ER doc flew into action with the spinal tap etc... finally hubby realized something might be wrong. But they called it meningitis, but never got confirmation. My other symptoms were around at the time but never bad enough to note so I never mentioned them. Now the neuro is suspicious that it was a major MS flare up.

6 yrs later we're dealing with it finally. So thanks for the info... every little bit helps and saves all of us worries along the way! Glad to know you're kinda good again Keira!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 3/21/2008 7:57 AM (GMT -6)   
Chronic constipation is very common in people with MS.  For me it is related to a lesion located on my spine.  My bowel no longer is doing the normal smooth muscle contractions that helps move stool along at a normal pace.  This allows too much water to be reabsorbed into the body throught the walls of the intestine.  So the stool becomes very dry and hard.  For me this is remedied by copious amounts of fiber.   Good old fashion metamucil works well for me.  Fiber will hold water all the way through intestines.  You may also want to consider increasing the amount of water you drink.  I also eat a ton of fiber throughout the day (high fiber cereal, lots of fruits and especially vegetables - I have recently discovered the southern favorite; collards!!
 
You may want to talk to your doctor about a "bowel program".  This is a more systematic approach to bowel problems in people with MS. 
 
Chronic constipation can be extremely serious.  Bowel blockages, in some instances, can be life threatening.  Please take care with this.
 
Love and prayers,
Gretchen       co-moderator MS board       diagnosed with MS July 2006


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/21/2008 7:57 AM (GMT -6)   

I'm so glad this seems to be resolving for you!  Indeed, "blocked" bowels can cause your bladder to not release urine..it's like the blockage "closes off" the tube that needs to progress to the outside (non-medical, to be sure, but that's what happens! :) )  I know that whenever I get constipated..and finally manage a bowel movement, the urine flows like a fountain....

I think often the talk about IBS, and diarrea (however that's spelled!) and constipation are often not connected to the fact that many folks with MS have a very sluggish digestive system, and when it doesn't work properly, all kinds of really unpleasant things can happen.

I hope you're feeling better soon.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 3/21/2008 8:01 AM (GMT -6)   
 
Here is a link to more information on bowel problems in people with MS.  I hope this helps.
 
http://main.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_brochures_bowelproblems1
Gretchen       co-moderator MS board       diagnosed with MS July 2006


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/21/2008 8:50 AM (GMT -6)   
Thanks all!
 
I had been (thought) very educated on my bowels. I've had 5 colonoscopies and they never could determine why i kept diareha (sp) for over 13yrs. I now think its all a nerve thing. At any rate I did know about fiber, that i had Ibs and that i had diverticulosis. What i didn't know was the symptoms could sneak up so easily on me that id not have a clue.
 
It was as you called it ms. uppity, Locked Bowels ( a term my mother often used).
 
This past year i was regular which was a first for me. So i had never been through any constipation with my  history being the opposite. When the doctor says 43% renal function and you cant hold water down or fiber either, no urine comes out , then it can get confusing. I'll know next time though and i guess thats what counts. As well as we know our bodies , im learning that they can pull some change that if we've not had it happen in the past, can be quite alarming. I also like you ms uppity had a fountain or like a russian horse? lol..........so it felt so great to output again to say the least.
 
I've stocked up on fiber bars, miraLax is what my gp recommended (used to be by prescription) and now ill know the symptoms. Knowledge can be power.....
 
I've just returned from the spinal clinic and found out more news. I havent been able to wear a bra for a long time and had been taking liquid motrin for swelling ribs in front chest. I also have just completed a stress test. At any rate , once the doctor saw me , he positioned me on my tummy and said well we dont even need the exray after all, then he began hurting me so good. Wow did i have spasms. He asked if my doctors had been suspicious of heart attacks lately and i said yes. He asked if anyone had put hands on me to feel what he was feeling (chosta chondritis area and back), when i told him no he proceeded. He worked out huge muscle cramps and then injected a series of 4 shots in a square around the point in my back that had been radiating around to the front of my ribs. Afterward there was so much less pain that I truly felt he was a God send!...
 
I told him that i hadnt quite connected the front ribs to my poor neck/shoulder region and he also said that i hadnt complained so he didnt know how bad my back was. Seems i have to retrain some of those muscles he worked out. He feels its coming from my neck and since those areas werent involved in my MS spastic attack im also hoping so.
 
He recommends that i get massage therapy now, since he's got the nerve numbed and all the major ones worked out, and to buy tennis balls to lay on the floor to keep these from knotting up again.
 
So if you can imagine , between the kidneys being good, blockage gone, neurontin released for pain, and feeling like i have a new back, its been a wonderful end to what started out very scary.
 
I do appreciate all of your inputs. I can see that all of us are a bit different in the bowels. I myself had began to be regular this past year, but with my history of the other, i wasnt quick to notice when a few days passed (maybe becuz of kidney scare too), i just so glad to know what im dealing with and will try to remain proactive on this.
 
Your correct ms. uppity about it blocking off the urine stream, also that can cause a UTI if not attended to promptly. I now understand my mom's concern for Locked Bowels lol.
 
D'awesome, what a spell you went through, and i do understand that your doctors' really didnt know and are now quite apologetic for it. Mine are as well, they aren't perfect and neither are we. Sometimes things can  get fuzzy for them as well. Im glad that your better from that and more informed now. So sorry that it happened at all though.
 
 
 
thanks all
 
kiera
 
ty for the link and support gretchen
 


Every day brings us closer to what we reach for .........in all things.
 
Kiera

Post Edited (Kiera) : 3/21/2008 8:54:31 AM (GMT-6)


1mom
Regular Member


Date Joined Feb 2008
Total Posts : 69
   Posted 3/22/2008 6:14 AM (GMT -6)   

Well I can certainly relate to this issue.When my son had his relaspe his bowels stopped.Urine was darker..Dr. gave him prescription liquid..nothing.....days went to weeks..His stomach poofed out..then he couldn't eat .I called the doctor.He said No ememas..Push fluids blah..blah..blah..fiber, fiber,well son.he didn' say anything about supositories(however you spell that).Anyways...he asked( whats that).I explained it..No way ma.he said..I said yes- way...Another trip to CVS.So an hour later he sent me out (of my own home)he was in a bad need for a frosty from Wendys..Sure I though?Well my condo is set up with a handicap safty rail in the shower & one next to the toliet..(to hold on to).The bar next to the toliet has been named the OH S--T  bar.Solved  that problem....Did see him much that afternoon.LOL...Ya know ..We still revisit that story.,he tells it with all the drama inolved.I hope I didn't offend anyone...just 1moms story :)


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 3/23/2008 9:22 PM (GMT -6)   
Thanks for the info Gretchen, like I said though it's like a horrible cycle, it's just chronic and painful. But this good info and maybe I can keep them out of one or both extremes!  I've tried lots of dietary changes and usually all it does it upset my system anyhow, but not really change anything.
 
I think though this might be contributing to the recent frequent UTI's and kidney infection/bleeding two months ago... so thank you again for the link and info, gonna check it out right away! :)
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 6:53 AM (GMT -6)   
i truly hope you get some answers to your kidneys deb. The 24hr urine and a blood draw for blood creatine level will tell alot...

They might scedule the urodynamcis and you may find that your bladder isnt emtying as much as it "feels" like it is. For over a year i thought mine was totally ok. Until they shot a bunch up inside me and i was unable to push it back out...it something you dont feel<<<thats whats so screwy about it. Then it can sit there gaining bacteria and backwash up into your kidneys flaring more probs.

Please keep me updated about your levels and news on your kidneys. Your in my prayers and im sure you know ive just come through that so i do know what to pray for ya!

It can be very scary but there are ways of finding out whats going on!

(hugs)
kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera


Kiera
Regular Member


Date Joined Dec 2007
Total Posts : 364
   Posted 3/24/2008 6:59 AM (GMT -6)   
1mom i applaud you for being so proactive for your son lol. Im afraid to sign off this forum as im holding onto it like its the only thing thatll keep me outta dealing with my Own MS LOL...

tHE OH SH--T BAR...(TICKled me)....

Good for you and the suppositories, theyve melted and stayed inside of me lol. Gosh its wild when they scream fiber , and its all good and true that fiber helps but when ur locked down and cant keep fiber in the front in or anyting making a difference from the other end....

good old spasticity came along and carmped mine out of me last night lol.

Gotta laugh to not give up at times. I love your posts and its amusing but i do know while you went through it, it wasnt. I also was swelling and fiber wouldnt go down past throat lol.

those enemas went somewhere? The suppostitories met up with them and they HID lol.

Hope your day is uneventful in the probs of your son..again i applaud you:) he's blessed to have you!


kiera
Every day brings us closer to what we reach for .........in all things.
 
Kiera

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