Kiera, I don't know of anyone (but you) who has gotten massage therapy. Was this guy an MD, or a chiropractor? You say he was a "spinal rehabilitation doctor" -- chiropractors often call themselves "doctors" but they don't have any medical degree. Did he claim to have any experience with people with MS? Some will say that when in fact all they've had are patients who have MS..not that they really know anything about MS...
You are right -- MS cannot be "massaged away", so I really can't comment on what he did, and whether you'll deal with long-term effects, either good or bad.
Physical therapy generally works on things like "range of motion" exercises, and can be helpful with walking problems. Occupational therapy helps you learn how to do things better and more efficiently in your daily life, when you aren't able to do them "normally" -- like, I saw an occupational therapist to learn how to prepare food and cook from a wheelchair..
You do need to get that bowel and bladder thing under control, though. I use a product called enemeez -- you can find it on the internet. There are two varieties -- I use the "plain glycerine suppository" type. If you're not having a bowel movement every 2-3 days, you need to use something to make it happen. But first you need to talk with a urologist to find out exactly what is going on, and get their recommendation.
I have a large lesion(very obvious on an MRI)on my spine and I was told by my neuro who I love and trust completely that I should avoid any kind of pressure on that part of my back. She showed me exactly where that lesion is. She did not tell me to avoid chiropractors as she understands this is my body. She did say if you ever get a massage, you might have them avoid pushing or rubbing directly on the spine. She said the ribs next to the that area is fine as long as I am comfortable. Pain and numbness during touch is a red flag. I have never trusted chiropractors as they are not doctors nor do they receive the same training. I would never let anyone "crack" or "adjust" my back.
If you were "damaged" by a doctor I would think you would never consider returning to that doctor. I certainly wouldn't.
Love and prayers,
I drive almost two hours to see my blessed and beloved neurologist. I meant to only use her as a second opinion. After I met with her I decided to keep her!! She works at the MS clinic at UCLA and she only sees MS patients. I talked to her about the distance and she was very willing to work with me by phone and email. She is amazing. She gets right back to me by email when I have a question or concern. I just love her!!! I see her twice a year and she spends about 45 minutes at each exam. I have never asked for PT or OT. She got me into PT after that last flare where I needed some balance training and strength and stretching stuff.
I have not needed OT so she has not offered it. She has been real good about working with my GP who is very local. The two of them work very well together. They share in my treatment and all info on this treatment is faxed to the other.
Good luck! Love and prayers,
Oh one thing i forgot was the paperwork they give you about his practice explains that he treats MS patients. So it all was going good. He has alot of patients who dont have it, i even asked my hubby if maybe he forgets that im not just the neck prob? (altho i keep reminding him lol)..im going to try to find that paperwork and see if it says what he is..
Post Edited (Kiera) : 3/24/2008 11:06:57 AM (GMT-6)