tysabri question

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Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 349
   Posted 4/2/2008 2:39 PM (GMT -6)   
Good Afternoon,
I'm from the crohn's disease forum but I have some questions reguarding tysabri. I have not had any luck with the other biologic agents for treating crohn's and my doctor plans to start me on tysabri in the next couple weeks. What are some of the most common side that you have noticed from the infusion? How long does it take and can you drive home afterwards? And how hard was it to get insurance to approve this (I have United Health Care)? Thanks for any help.

Jason
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 180lbs). On prednisone and will be starting Tysabri Soon.
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Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 4/2/2008 3:55 PM (GMT -6)   
Hey Jason,
I don't know how much help i will be since i only had one infusion on March 24th. I really didn't have any side effects except a slight headache and a little chills, but nothingthat advil couldn't take away. I do have some spasticity in my legs that is worse than usual but this is an MS thing. I read that tysabri was just approved for crohns, i wish you luck with everything. I was approved very quickly with my insurance. Quicker than i expected. First infuion takes longer because of all the paper work (i was there 3 hours), but they tell me next time it will be 2 hour, 1 hour for infusion and 1 hour observation. I went with someone, but i probably could have gone alone b/c i didn't have any problems, but everyone is different. I would definately take someone w/ you just to make sure your ok to drive home. Better safe, you know. There are several of us here that are on tysabri, i'm sure they will be along to share their experiences too. Good Luck
Lynn
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta

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