Welcome to the board. I am very sorry to hear that you have been diagnosed by at least one doctor with MS. I am fairly new to this disease as well. We have people here that are diagnosed with MS, CIS (clinically isolated symdrome), probable MS, and some that are limbo with no real answers. All are welcome here. You will find great support, experience and information from our members. We also have a live chat on Mondays at 4pm pacific, 5pm mountain, 6pm central and 7pm eastern time. All you have to do is click on the word "chat" that is on the blue bar up on the right hand side of this page.
Please feel free to ask lots of questions and vent as you need. I agree with Rhonda, you have every reason to be edgy. That could actually be caused by a lesion, or it can be caused by the stress if finding out you have a chronic disease. I hope you find great support here to help you adjust to this.
Love and prayers,
Thank you all for your support. I am determined to deal with whatever happens and not let it stop me from moving forward with life. I am not very good about needles ( I have always had trouble with IV's, they have a hard time finding veins in me and poke me often to get one). I understand, so it seems, many of the meds used to treat MS are shots? Are there Oral meds that are just as good? I hate to be a pansy, but...hey...I am...lol. Just wanting to know so that when I talk to the Doctor next week and IF this is MS....I am prepared to ask about meds that can be taken orally rather than injections.
I will be sure to let you all know as soon as I know, what the Docs say . If this is MS, I will stay on this forum to become more educated for sure. You all are TERRIFIC! I have never met so many compassionate people online before as I am new to the forum stuff,,,and well...MS. I wish you all well and God Bless ~Kate
Hi Buckeye! Thank you for your kind words. Just wondering if your an Ohio Buckeye...I am. Anyway...I dread the idea of shots but if thats how its gotta be,,then so be it, I'll live.lol
I will be talking ( hoprfully) tomorrow to the Docs to see what the plan is for me. I will certainly be posting as soon as I know. This is just a mountain have to climb, the valley is no fun, but theres always another siade to the mountain and I WILL get there...as we all will. Valleys just make us stronger, weather I have MS or not. Gotta stay positive! Hugs~Kate
I am not 100% sure, but I don't believe an optomitrist ( most likley spelled wrong,lol) can't diagnose MS. I went to an Opthalmoligist ( also spelled wrong, I am sure) because I was having vision problems..He ordered the first MRI of my brain, when it came back with all the white matter stuff he sent me to a neurolgist, who ordered another type of MRI only on my eyes. Optomitrist are not MD's, so I don't think they can diagnose.....but...then again, I might be wrong. Just a guess here.
Hope you are doing well...sorry I can't give you a positive answer, but I am betting others can and will:)~Kate
PS....just so EVERYONE KNOWS.....I AM A HORRIBLE SPELLER! LOL, LOL IS AN EASY ONE, I LIKE THAT...LOL
Hey Katie and Muzz
We have another member who is much more knowledgeable on this subject, but i'll take a stab at it. As i understand it, any eye doc who can see the back of the eye...the optic nerve...can diagnose Optic Neuritis. That said, maybe not all docs will recognize it...but if they can see the optic nerve and it's pale color when ON is present, they can dx it. Hope this helps!
I was just called and the 3rd MRI is to be this Friday at 3pm. On this 3rd MRI he wants to look closer at the area in center of my brain where theres swelling and pituitory area closer, so I've been told by the fellow who set it up, one of the Docs assistants. He said they also want to compare it to the first brain MRI I had on the 21st.
Is it possible some of the lesions may have gone away?
I wanted to ask and see if any of you with OP, before starting treatment for it ever had days of no pain. I hardly had any pain the day before yesterday up till last night and it started again. This morning, just a dull headache. I got very sick to my stomach yesterday and had dry heaves and today stomcah is still queezy. Just curious. Thanks and hugs~Kate
Yes, sometimes lesions can "go away" -- heal -- disappear -- on an MRI. And MRI's aren't perfect. By that I mean, sometimes lesions will appear on one MRI and not another. So it might be that lesions will appear to have "gone away"..but they're there.
It's good that he's doing a follow-up, and it sounds like he wants to carefully check the pituitary gland, too -- which can also cause problems that can mimic MS. It sounds like you're in good hands with your doctor!
As for "OP" -- I'm assuming you meant "ON", or optic neuritis? I have had that twice in the past, without any pain...so I'm guessing (and this is ONLY a guess!)..that you could experience it without pain as well....
I hope you get some answers soon!
Just wanted to post a belated welcome. I hope your MRI goes well tomorrow, and that this will allow your docs to give you some concrete answers. Like Uppity, I have heard really good things about the Cleveland Clinic, and it sounds like your docs are being really thorough. Please let us know how things go for you.