Post Edited (colee1979) : 5/1/2008 4:12:01 AM (GMT-6)
I'm sorry you're having an exacerbation (or flare). Unfortunately the numbness and tingling are indeed a pretty common part of this disease.
Your doctor's office may be stalling a bit at the steroid infusion, as generally doctors don't like to prescribe steroids unless the flare is causing serious difficulty with things they call "Activities of Daily Living" -- being unable to walk (or only walk with great difficulty), having problems dressing, bathing, eating; bowel or bladder malfunctions; extreme weakness -- that sort of thing. And they don't generally prescribe them for the numbness and tingling. Why not? Because there are major and serious risks to steroid use, and they want to try to help patients avoid those as much as possible.
You might ask your doctor about neurotonin, a medication that may help with some pain and sensory stuff (the numbness and tingling are sensory symptoms).
Heat is a problem for folks with MS for sure. If you do have to be out in it, there are cooling vests you can purchase.
I hope you feel better soon.
I agree that you should at least write out what happened and how you made it feel- no one should laugh at you like that. Provide a copy to your neuro and the desk staff. Do you like your neuro? If so, maybe see what the response is. But if you don't have a good relationship it might be time to move on. Because I have an HMO, my neurologist is a migraine specialist. But- he is a good and patient listener and has gone with my requests on occasion if I back it up with articles or clear reasoning for it. Unfortunately, the ladies are right about the numbness and tingling. It drove me nearly insane at first. Comes and goes. My hope is that it will settle down for you and not be a persistent symptom. Sometimes mine feels like little burning ants crawling under my skin and I scratch at, well, nothing. Klonopin helps a bit with mine, but especially with the tightness across the chest. Part of that could be the MS Hug (lots of tiny muscle spasms I think) that squeezes across chest or waist or back. The Neurontin someone else mentioned may help also. I'm wondering are you on any of the interferons or copaxone? If you hadn't started those yet, maybe this is a time to talk to your neuro about one of those. Hang in there. Willow
I am sorry about all of this. This is a humiliating disease and the last thing any of us needs is to be laughed at. I go to a neurologist that is an MS specialist. She only sees MS patients. She is pretty realistic about numbness and tingling. She says if it is not interfering with abilties and is sensory only, then she is not too impressed. When function is involved then she wants to see me and talk about options. There are no real treatments for a flare. The steroids will help make you more comfortable, but they will not decrease any disability that may develop from the flare. Apparently the damage has been done once that flare begins. This is how my doc explained to me anyway. Options for me were physical therapy and botox to treat spasticity and balance problems that are residual symptoms from flares.
Love and prayers,