incontinence-big time!

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frannie55
Regular Member


Date Joined Dec 2006
Total Posts : 29
   Posted 5/3/2008 6:29 PM (GMT -6)   
any suggestions for incontinence???  my husband is changing our bed 2-4 X @day.  i wear depends and we have 'rubber'pad under sheet and a couple towels under me.  i am where i need to be picked up to move-my legs are 'gone' except fo contraction pain.  any new diaper type products on the market???suggestions for helpful clothing, i now just wear short nightie.  have taken ditropan so many years i'm immune.  im open to anything alternative-anything!  glad to bypass the humiliation for once to type this out.

Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 5/3/2008 6:50 PM (GMT -6)   
Hi Frannie,
I am sorry you are having such problems with incontinence. Is this new? I ask only because if ts new maybe you have a Urinary Tract Infection. I don't know to much about this because  i do not have much issues with this only frequency and urgency. However a few months ago i was having trouble holding my urine and i had a UTI. My doctor gave me antibiotic and it stopped the problem in a few days. If not, i am not sure. There are so many meds out there, maybe you can try a different one? If not, maybe it is time to think about a catherer. It is a pain, but if this is so bothersome, i would deffinately consider it. There are alot of people who self-cath.
Just a few suggestions. Hope this helps a little.
Love
Lynn :-)
Dx MS Dec 06, Started Tysabri March 2008, Baclofen, Cymbalta


frannie55
Regular Member


Date Joined Dec 2006
Total Posts : 29
   Posted 5/3/2008 7:06 PM (GMT -6)   
ty for getting back so quick.  i am very used to uti's and do not have one at this time.  have had this problem over the years but seems to have gotten alot worse since ive become wc/bedridden.  always heard cath's cause more infection than
help but reading here and ms world sounds like that'll have to be my next step.
somedays 'the next step' for us ms'rs feels so trying.oh well.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 5/3/2008 8:47 PM (GMT -6)   

Hey Frannie,

What does your doctor have to say about the incontinence??  I am sorry to hear of this.  You would think with all of today's medical advances, that there would be some sort of product either meds or undergarments that would make you more comfortable.  Please let your doctor know.  I know that you find this humiliating.  This really can be a humiliating disease.  Remember that your doctor does want to help you and it may be worth talking to him or her.  I hope you get some relief with this.  Keep us posted and let us know how you are going?

Love and prayers,


Gretchen       co-moderator MS board       diagnosed with MS July 2006


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/4/2008 6:24 AM (GMT -6)   

Catheters can sometimes cause more infections...but if your incontinence is this out of control, you may need to consider them, at least for awhile. Going to a catheter (whether self-catheterizing or an indwelling catheter -- which is easier for a woman) isn't a "final decision" -- if you and your doctor can figure out what's going wrong and what meds might work better, you can wean off the catheter and go back to medicating.

You really do need to talk to your doctor about this, though.  Bladder infectins aren't always that easy to determine if, like me, you have altered sensations. I don't feel them much at all and have to depend on increased frequency and difficulty urinating to know that I need to be checked for one.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sunnycitrus
Regular Member


Date Joined Apr 2007
Total Posts : 334
   Posted 5/4/2008 12:31 PM (GMT -6)   

Hi Frannie,

 

I’m so sorry you are dealing with this issue, and also wanted to just chime in and urge you go to the doc and get tested for a uti…just in case. I was also wondering if you’ve been to a urologist recently, as I think they have specific tests that can determine exactly what is going on. Here is a link to some info on what’s out there right now, and also some current areas of research:

 

http://www.mayoclinic.com/health/bladder-control-problems/WO00123

 

At the bottom of the article there are links to some additional reading, including an article called “Urinary incontinence: Incontinence products to help keep you dry” that has some info on various products that might be helpful.

 

Here is some more info on botox injections for ms-related incontinence. I think this is still in clinical trials. It is the second article on the page, titled “Better Treatment for Bladder Problems in People With Multiple Sclerosis”

http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=1829

 

Sunny


Caleb
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/5/2008 8:57 PM (GMT -6)   
Frannie, it sounds like you're looking for a better way to contain the wetness. I have two suggestions. First, switch from Depends brand briefs to Attends. This brand will absorb much more liquid than Depends thereby reducing accidents. Second, wear a vinyl cover pant over the disposable brief to contain any leakage. The best products I have found is a pant made by Suprima and can be purchased at www.b4ns.com  These products are made of all soft, comfortable vinyl, have no fabric which can get wet, and the waist band and leg bands are fully wrapped in vinyl to prevent them from wicking liquid from the inside the pant. Personally, I prefer model S1211 or S1212.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/5/2008 9:56 PM (GMT -6)   
Hey Caleb

Wow....sounds like u'r selling these products! Have u read the forum rules??? Please do so.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


cindiago
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 5/10/2008 10:04 AM (GMT -6)   

hi everyone. Read about the incontinet problem that I am also experiencing, it makes me feel like a small child to have this problem. Are there any suggestions about what kind of clothing you were to keep other people from noticing you have on a diaper? I wear long dresses to keep from revealing this because I figure it would be a dead give away if I wore shorts or pants. Any suggestions would be appriciated.

                                                                                      God Bless us all! This is sure tough.


Hi! My name is cindiago and I am very new to Healing Well. I diagnosed with MS. Having a hard time with the mential and physical changes of it all. Have always been very active and MS sure slows me down, not to mention how my capabilities have become so limited. Depressed very! Then I found this forum. Think it will help a great deal to talk to people that also have MS and I will have a better understanding of what I am dealing with. 
 
        God Bless you all!


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/10/2008 10:33 AM (GMT -6)   
cindiago said...

hi everyone. Read about the incontinet problem that I am also experiencing, it makes me feel like a small child to have this problem. Are there any suggestions about what kind of clothing you were to keep other people from noticing you have on a diaper? I wear long dresses to keep from revealing this because I figure it would be a dead give away if I wore shorts or pants. Any suggestions would be appriciated.

                                                                                      God Bless us all! This is sure tough.

Well, I do use Depends regularly, but since I don't walk anymore, having other people notice is not a problem.  I don't even own a dress anymore...spend most of my time in jeans.
 
There are incontinence panties available that aren't much different than regular panties. You might wear a size larger outer pant than normal, so that it's not tight around your buns, but otherwise I don't think anyone will really notice those.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


cindiago
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 5/11/2008 9:50 PM (GMT -6)   
Hi! Uppitycats--thanks for info. think I am just self consious about this.
Would love to be able to were jeans again, but can't because it makes my back sore. Accident last July mess up my back and they are talking surgery x 2. My neck and lumbar area are in bad shape, plus I have degenerative stenosis and spinal stenosis on top of the MS and with the need for Depends--well lets say sure scary when you lose control of your body functions. Anyway Thanks-Take care-God Bless :-)
Hi! My name is cindiago and I am very new to Healing Well. I diagnosed with MS. Having a hard time with the mential and physical changes of it all. Have always been very active and MS sure slows me down, not to mention how my capabilities have become so limited. Depressed very! Then I found this forum. Think it will help a great deal to talk to people that also have MS and I will have a better understanding of what I am dealing with. 
 
        God Bless you all!

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