Most helpful or best books on MS- or videos...

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D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 5/10/2008 5:11 AM (GMT -6)   
There is a plethora of books out there on the market by everyone who has anything to say about MS! From the "cure" diets, to special exercises, to how to deal with it, to what to expect, to living with it, to whatever...
 
I'd like to know what books any of you have found the most helpful. In my Amazon explorations, I've bought a slew of used books already and devoured a few that I've found useful to get me a foundation on this thing but now I'm at the point of living with it day in day out, teaching my husband so he doesn't give me "that look" again (like here we go or I really think you're making more of this than it is or you really look fine to me) and dealing with family members outside (his family who doesn't understand when I'm crashed or at my limits and can't take one more demand). 
 
So advice? Your favorite books? Ideas? Would love to hear them... hubby said last night he wants to learn and understand ... actually if it was on video it might be better (hope it's a good video) because he's more a TV guy than ever a book guy! :-)


Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 5/10/2008 5:31 AM (GMT -6)   
D'awesome said...
There is a plethora of books out there on the market by everyone who has anything to say about MS! From the "cure" diets, to special exercises, to how to deal with it, to what to expect, to living with it, to whatever...
 
I'd like to know what books any of you have found the most helpful. In my Amazon explorations, I've bought a slew of used books already and devoured a few that I've found useful to get me a foundation on this thing but now I'm at the point of living with it day in day out, teaching my husband so he doesn't give me "that look" again (like here we go or I really think you're making more of this than it is or you really look fine to me) and dealing with family members outside (his family who doesn't understand when I'm crashed or at my limits and can't take one more demand). 
 
So advice? Your favorite books? Ideas? Would love to hear them... hubby said last night he wants to learn and understand ... actually if it was on video it might be better (hope it's a good video) because he's more a TV guy than ever a book guy! :-)

The only book in my MS-related library is this one:
"Multiple Sclerosis: The Questions You Have -- The Answers You Need", edited by Rosalind C. Kalb, Ph.D., published by Demos Medical Publishing, New York.  It's expensive, but if you have only one...  :-)   $39.95
 
I have the second edition. There may be a third edition right now.
 
I like it because it is written in question-and-answer format, includes some of the very basic questions that newly diagnosed folks would ask, and also has some highly technical stuff.  I've had the book for years, and still find new stuff I didn't know, or forgot.
 
And now you know why I "seem" so "smart".  I pull out this book and start from here, when I offer my opinions!   tongue
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 5/10/2008 7:36 AM (GMT -6)   
My favorite so far is actually free: 300 Tips for Making Life with Multiple Sclerosis Easier, by Shelley Peterman Schwarz and published by Teva Neuroscience. Some of the tips are familiar, but others offer new solutions to ongoing problems. My ivig drip nurse gave the book to me. linda

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 5/10/2008 9:09 AM (GMT -6)   

Hey Deb,

This is an AWESOME thread!!!  Great thinking.  I struggled with the psyochological side of this disease.  I really enjoyed reading MS and your Feelings by Allison Shaday.  I also love the dummies book; MS for Dummies

Love and prayers,



Gretchen       co-moderator MS board       diagnosed with MS July 2006


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 5/10/2008 11:06 AM (GMT -6)   
Thanks Gretchen! I was curious!  tongue
 
But from these so far I'm on the right track! Uppity's book was the first one I got, and I've just ordered Odette's and yours! The psychological thing is what's tugging at me the most right now... it's hard to get thru a day that it doesn't creep across your brain that you've got MS... or your body reminds you in a full scale thump on the head when you're dead in your seat with fatigue... or whatever millioneth symptom crops up. So I'm looking forward to those new books coming and have already benefited from what I've already read...
 
 
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~

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