Welcome Jetta1!!

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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/13/2008 1:56 PM (GMT -6)   
Jetta1 said...
I'm new to the forum but not new to M.S.
I was dxg in Feb 2003.  Did beta seron for 2 years
but side effects were nearly worse than the
m.s.  I felt like I was loosing confidence in it and I think
that is possibly half the battle.  My doctor put me on
copaxone and it was great.  I felt alot more human. I was
for approx 2.5 years. It was summer and I had a very physical outdoor job (stupid I know but was still in denial
that this was going to change my life)  "God said. Ha"
I suddenly felt like I had been hit by a truck.  All symptoms at the same time. Double vision, no balance,
slurred speech, my skin hurt all over.  I think my hair even hurt.  Did the IV steroids.  Then I just became a monster with the same symptoms and a temper from HELL.
     I considered myself to feel about 3 beers in all the time and I only weighed 110 lbs.  So that was rather drunk feeling.  I got the bonus of the hangover at the same time. devil
     I've been on Rebif since 03 but it is an interferon
too so side effects still suck really hard.
    I just saw this month that on the rebif box it says that an interferon beta one -1a is produced by ********Chinese Hamster ovary cell*********
 
No wonder it makes us feel bad.  Maybe we are turning into hamsters.  I now have the cheeks for it.
Anyway, I'm afraid to quit because the relapses are so much worse than the side effects.
 
Hang in there and do what ever you feel confident about.  The chemicals do their thing but the rest is up to us, and our attitude
     May God Bless you during your time of struggle.
 
Hey Jetta1!
 
Welcome to the board! I started this thread to let everyone see that u'r here. Wow...i'm sorry fo the rough ride u've had with ms and the therapy meds. Seems like when ms makes it'self known it's VERY clearly there. I do hope u don't turn into a hamster! Hang in there friend...u'll get thru this. ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


D'awesome
Regular Member


Date Joined Oct 2007
Total Posts : 343
   Posted 5/13/2008 4:16 PM (GMT -6)   
Welcome Jetta! I'm looking forward to your sharing... wow, what a road so far!
Fear knocked ~ Faith Answered ~ No one was there! :)
 ~ Ephesians 6:13 ~  * ~ Psalm 27:1 ~


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 5/13/2008 8:04 PM (GMT -6)   
Hi Jetta- I like what you say at the end about doing what you are 'confident' in. You're right, attitude is at least half the battle. For me the interferons did seem to keep the relapses at bay, so I will re-start my Avonex with some confidence in that. And manage side effects as best I can. Sounds like you got hit with a whopper of a relapse. The one that landed me a diagnosis also had me wanting to get a T-shirt saying "I'm not drunk, I have MS".
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