First, take a DEEP breath. If you DO have MS (and it's really much too early to tell!) that doesn't mean all that much with regard to your kids. You'll likely be around a long time -- I've had MS for 25 years, now, I'm 61 -- so set that worry aside.
There's a lot going on with you -- at age 44, having a new baby, a history of other neurological problems in your family (the brain tumor, the pituitary thing..). Make sure you tell the neuro all that when you see him.
You may not actually see a neuro tomorrow -- so don't be disappointed if indeed you have to wait awhile. Did your doctor offer any suggestions about which neuro to see, or offer to refer you to someone? Usually a doctor's referral will get you in to a doctor much more quickly than you simply calling an office. You might want to call your doctor back and ask for assistance, so yo u don't have to wait a really long time to be seen.
The neuro will want a complete family history, so while you have some time now, write down everything you can about your health history, and gather up your records, including the new stuff. Make sure your rheumatologist knows you're seeing a neuro, and have him forward any records he might have, too. And indeed take the MRI and any written results from that (or have your doctor forward them for you.)
What your rheumatologist did sounds much like what you'll get at the neuro's office -- a test of your balance, sensory testing (pins pricking you to see if you can feel them), strength tests, other things. He may do a series of blood tests to rule out other things (if your primary care doctor hasn't already done that..and sent along his records). He'll want that medical history, and will ask about your pregnancies (and if you had any health issues after the first three).
All this may take awhile, so you'll not get answers right away anyway. Just hang in there, come back with questions, love your kids, and give that new baby a hug from us here! :)
Hi Carolyn I just want to welcome you to the board. Uppity and John have given you some excellent advice…the waiting process can be really scary and it is all too easy to jump to conclusions and think of worst case scenarios. Hang in there and try and distract yourself as much as possible during this waiting period (easier said than done, I know). Also, feel free to ask any questions you might have, we are here to support you.
Welcome to the board. I am sorry to hear that you are not feeling well. I understand your fear. I want to second what Uppitycats had to say about the chiro. I am terrified of them. I have spinal lesions and was told that pressure on those could cause an increase in symptoms and a flare. My neuro has even said I need to watch just your average massage type pressure. Is there anyway you could wait until you have seen the neuro??? See what he or she has to say and until then try to manage pain with some tylenol and maybe heat or ice packs.
On the records. I do both. I carry mine and ask that they be sent. It really paid off when the records did not make it and I had my own with me. The drive to my neuro is an hour and half and I was glad not to have to reschedule due to no records.
Good luck and let us know how you are doing.
I have found that there are certain gifts to this disease. I know that sounds really wrong but for me it is true. I have given myself permission to not sweat the small stuff. I no longer obssess about those slow drivers, or the mess my boys have made playing, or the pounding rock music coming from either the piano or the stereo, I don't sweat the occasional low grade, or the quick dinner. I have found that my priorities are in a much better place and that gives me some peace. Do give yourself that gift as well. Just love those babies as much as you can and by kind to yourself.
Love and prayers,
The swank diet is pretty safe. Just be sure that you are getting enough to eat. Most people lose weight on that and you don't really want to be doing that if you are nursing. It is a very healthy diet though and should be ok. I am so glad to hear that your doctor does not feel you have MS. That is wonderful news!!!! So now you get to relax and enjoy being a mommy. If your current symptoms get worse then you go back and let your doctor know.
If for any reason you are doubting what the doctor said, there is always a second opinion.
The only CPR I know about is cardio-pulmonary resuscitation...and that's not what you mean, I'm sure.
Here's a website that describes many of the common symptoms of peri-menopause (pre-menopause) and menopause. Read through them and see if there is any similarity to what you're experiencing. If so ... probably need to talk with your doctor.
There are blood tests that can determine whether you're starting menopause or not -- at age 45, it really is likely -- but they're not always accurate, and if the doctor isn't doing them specifically to look for menopausal stuff, he may not see it.
"Numb feeling in my two front teeth" is not a symptom I've seen relating to MS, anywhere.
A blood test to determine inflammation -- don't know what that might be, either. MS is not an inflammatory disease in the sense of some others that might be determined by a blood test, like rheumatoid arthritis, or lupus, though.
I wish there were some relatively simple test to determine whether someone has MS. Unfortunately there isn't.
But again, given your age, given your recent pregnancy, I'd sure be bugging my doctor to check out a hormonal imbalance, which indeed can cause a lot of your symptoms. The cognitive stuff for sure can happen with a hormonal problem, as can numbness, tingling, lots of other things.
Here's the web site: http://www.project-aware.org/Experience/symptoms.shtml
I put "symptoms of menopause" into Google (with the quotation marks) and came up with a host of sites.
It seems you are very bothered by your many symptoms. I would be either going back to that doctor and asking more questions or I would be taking my MRI results and any other health reports and going for a second opinion. It seems that your gut instinct is telling you that there is more to this than what the doctor said. Please know that we understand what you are going through and we can all vouch for your frustration.
I am heading out of town so I might not be real responsive over the holiday weekend.
I hope you are out having a good hike today. This is stuff is very frustrating, and sometimes the best thing to do really is just distract, distract, distract. It sounds like maybe your neuro is waiting on further testing until after you finish nursing? I just wanted to second what Gretchen said above: if you feel uncomfortable waiting then you should by all means look into further testing and/or a second opinion given the disparity between the radiology report and your docs opinion. There are also a ton of other things that can mimic ms, and a lot of them can be ruled out by simple bloodwork. As Uppity mentioned hormones can really disrupt things, as can something as simple as a vit b-12 deficiency. Hang in there, and let us know how you’re doing.