I don't know what to say since I am new to this also. It's funny but I just had a baby and my name is Carolyn! All my symptoms started after his birth. I hope you find the answers you are looking for. GL
I am glad you found a doctor that is familiar with lyme disease. I know that Lyme can cause lesions on the brain as well. Hopefully it turns out to be something treatable. Good luck with your future tests and let us know how you are doing. What muscle test is he doing? They usually do nerve tests I am curious as to the muscle test.
Love and prayers,
I’m so sorry you’re having such a hard time right now. It’s going to be hard for your docs to know how to treat this or give you relief until they determine if it is MS or lyme related. It sounds like your docs are going about all the correct testing, and in the meantime please accept your husband’s help. I know it absolutely stinks to be dependant on someone for help in this way, but you need to take care of yourself right now and conserve your energy. It is also important to slow down and be careful when you are weak, having balance issues, and dizziness. I’ve found this combo to be a recipe for a fall, and dealing with injury on top of all these other issues is not something you want. Numbness is very common with MS, and can affect pretty much any part of your body from your head to your feet and everything in between.
With regard to meds…neuros will give IV steroids when someone is in an acute MS exacerbation. This may help shorten the exacerbation and ease some of the probs, but won’t affect long-term disease outcome. However, I don’t know how that would affect the lyme. The ms meds slow progression of the disease, but do not directly help with symptoms. There are various meds that are used to treat symptoms and can make you more comfortable. Here is a link to symptom meds and what they are used for. I am having problems with posting links today, but go ahead and copy and paste this url:
Here is some info on tremors:
Here is some info on lumbar puncture. I didn’t find the procedure itself to be too painful, and developed the post-tap headache due to my own stupidity (I flew home the next day).
Hang in there okay? Just work on getting through today, and then tomorrow and the next day…it sounds cliché, but just take this one step at a time.
Gretchen gave you some great input on the other thread. It sounds like steroids are really something you should avoid even if you do have ms. I also want to stress again that you will not gain long-term benefits from using them, and apologize for not being too clear about that in my previous post.
Unfortunately there is no single test that can definitively diagnose ms, and the path to diagnosis can be long and difficult for many people. The lumbar puncture is only one piece of the puzzle, as are the mris, evoked potentials, clinical exam, medical history, etc. There are also a lot of ms mimics that need to be ruled out before a diagnosis can be made, and I’m guessing that your medical history might add an extra level of complexity to the process. Your doc will take all of these factors into consideration when making a diagnosis. It sounds like you are in good hands with your neuro, and I hope you get some answers soon!
Thanks for all your links here. You are so good an doing searches and finding the good links with helpful information. Thanks for all the time you put into this. Thanks for all your support here. Now get that air conditioning installed so you can keep up with that. We need you here even on hot days!!!
Love and prayers,