I am so glad you work so well with your neuro. That is more than half the battle, finding a doctor you trust. The lumbar puncture is not great fun but you will do just fine and it can tell a lot. It is a very useful tool in ruling in and ruling out other stuff that mimics MS. Those o-bands were there for me but they are not there for everyone. Just remember what your doctor said, that this is a hard disease to diagnose.
love and prayers,
Post Edited (rhondab) : 5/23/2008 8:21:33 PM (GMT-6)
Well, Deb I've been out of the loop for a while, and came back to check on you.I'm confused.Nothing on your MRI.Hey?Well I can sort of relate,when my son had every symtom of a leision in the brain stem area that effected him dizziness, vertigo episodes,hearing changes, they said these symtoms come from the lower part of the brain,but found no leision there, He suffered about 1-1/2 years..and then it stopped.8- months later a leision popped up there.I know his doctor said they are working on theories,regarding this kind of situation.I don't want you to have any leision thats for sure.I would hope you to get a dx, though, for peace of mind.
Just remember,that God has a plan, and in my life,the light switch has been turned to on.My son is doing so well since the very first pill of Neurontin.Hes on the highest dose now, and doing extremely well and has gone back to his life.Still has the eye jitter thing , but less severe, and has given up his cane,and walks with strength now.MRI is stable.
Anyways, how can the very first pill he took bring light to his body? We saw his movement disorder nero 2 days after he started that med, he said no way, it doesn't work that fast, its placebo effect..5-weeks later, hes a person I have not seen in 2- years.You know his faith is very strong, and before he started this med. I asked him one day..so what are you going to do today? His said....I will sit here and wait to receive Gods blessings.I said..and you will receive, and he has.I must thank you all, that have prayed for us,the journey is not over,but we are standing strong..Love to all and God Bless.