Welcome to the forum. I am sorry to hear of your diagnosis and that things are getting worse. That is indeed the nature of this unfortunately. Are you not on a progression therapy? I was diagnosed at 43 about two years ago. I also had little warning before I was diagnosed.
Love and prayers,
Welcome to the board! I'm so glad u've found us and decided to post! This is a great place...as i'm sure u'll soon see. The people here are wonderful and willing to try to answer u'r questions and help where they can. Please feel free to ask anything u'd like.
Wow...not on a progression therapy huh?? That seems way scary. U'r getting worse and not on any meds?? Does u'r doc give u a reason for not trying any of them? What is it that is diff about u'r situation that makes them feel u don't need to be on one? I'm sorry, lots of questions, but it just seems that fighting this in any way would be far better than sitting back and letting it roll. Numbness and stiffness in u'r legs is actually quite common with ms and given that u'r doc has u on bacflocan seems to indicate that he sees the need to treat the symptoms...so why then doesn't he want to treat the cause?? Best wishes to u on this friend...seems like such a roulette.
Rhonda, what is different about her situation is primarily her age -- pretty old to get a diagnosis of MS with no earlier episodes, and the fact that the only main symptom seems to be the stiffness and spasticity in her legs. At age 56 there could be other causes for that which they're not finding...yet.
BarbaraAnn, I'm assuming they ruled out other things like cirulatory problems? What got you to the MS clinic? I'm asking because the spasticity could have lots of other causes.
Baclofen isn't a cure for spasticity...and doesn't always work well for everyone. Unfortunately there isn't a really good treatment that will make it go away entirely.
Hi Barb! My name is Barb also, and I was dx last year at the age of 50. I also did not have much warning prior to an exacerberation/flare. In retrospect, my only previous symptoms were a partially numb foot and fatigue. My foot was that way (and still is) for several years and the doctors said it was probably caused by a pinched nerve. I am only taking a low dose of baclofen in the evening right now, and I do not really notice that it has a noticeable effect on the stiffness in my left leg. My other symptoms are pain/ siffness in left rib cage, occasional back pain, and burning/tingling pain in left forearm and on the top of my head. Neurontin seems to lessen the burning/tingling pain.
I am not on amy of the progression therapies either although I tried 3 different ones and had bad reactions to all three. (Long story). I have been to a ms clinic and they consider my ms to be relatively mild at this point. I have another MRI at the end of this week and if it shows no active inflamation I will not try any new therapies for at least 6 months.
I am also surprised that your doctor/neuro has not put you on any of the DMD's. There are lots of people in their 50's and 60's who are on these treatments.
I was diagnosed (finally) at age 57, although I had symptoms for the last 20 years but never worsened until just 3- 4 years ago. I'm now 60 and require a cane for assistance in walking.
Over the years of seeing many doctors, they indicated a possiblity of MS to it was all in my head. Don't feel to upset of what you feel the doctor is thinking about you. No one has exactly the same symptoms with MS.
I'm currently taking Betaseron after 2 years on Copaxone.
Good luck to you and keep a positive attitude. Get lots of rest and try Yoga or at least try to stay relatively active.
I am sorry to hear that you are back in limbo. I hope you get some answers real soon. It seems as your doctor is saying this could be something else. This makes sense as you were never treated for MS. I think I recall you never having taken an MS progression therapy. But, it could be that the doctor finds that your symptoms are caused by something else that is perhaps more treatable than MS. That is my sincere hope for you. I know you are suffering I am hoping this doc can at least successfully treat your symptoms so you are feeling better soon. Please keep us posted as to the results of your MRI. Let us know what the doc says. Good luck and hang in there.
I do not get any swelling of my feet. Usually swelling of the feet or ankles is associated with circulation disorders. In women, it can be a sign of heart disease. I would definitely tell your doctor. Swelling is usually caused by a condition called "pitting edema" and it is typically not a good thing. It can happen once in a while when you stand for a long time, or during heat spells or if you have ingested a lot of salty foods. Usually this is short lived however and will resolve itself in a day or two. If this is lasting longer or if it happens frequently, it can be a sign of a more serious problem. This is my understanding of swollen feet but I am not a doctor. If I were you, I would let your doc know.
Post Edited (Gretchen1) : 6/19/2008 9:46:14 AM (GMT-6)
Hi there and lots of posts......one that stuck in my mind was the one by D'Awesome - where you said that you were dx in March and you will be going to see your doctor here right away to determine what DMT (treatment) u should be on.... I really disagree with this - gees your dx was almost 9 months ago.......it has been established that once you recieve your dx, the faster that you can get on a DMT the better off you will be....this person has almost waisted a year for u, and I would not let this go on any longer. Just my two cents worth..
And yes Gretchen, I have not been here for awhile, but Im bacccckkkkkkkk!!! Did you miss me ????? Don't answer that....
Anyhow, have a great day, even and talk at you all later